Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finding The Culprit


SheaLynne

Recommended Posts

SheaLynne Newbie

I know this sort of question has been asked over and over...and I'm reading as much as I can and searching, but in the meantime, I need some experienced help!

I have *something* that is still causing a reaction. My diary-keeping shows a pattern of having "D" the day after dh and I are intimate (sorry!), and I also could have a trend of "D" after eating homemade gluten-free quickbreads.

So...we are making a trial of 'no kissing' to see if I'm getting contaminated from dh's gluten eating.

And I'm trying to track a culprit in my baking...or perhaps it's just when I eat too much "gluten free" but processed stuff? I am using all Bob's flours (sweet sorghum, brown and white rice, garbanzo bean, tapioca) and some Hodgson Mills brown rice flour. I use Clabber Girl baking soda, which claims gluten-free, Arm & Hammer baking soda (is that a possible culprit?), canola oil, and homemade rice milk or Almond dream almond milk. Also, Hill Country Fare corn starch (store brand from a grocery that labels its gluten-free stuff on the shelf and this claims to be gluten-free). For cornbread I used Hill Country Fare corn meal (again, supposed to be safe).

I eat my biscuits or cornbread with honey or coconut oil.

I didn't imagine that I was extremely sensitive, but *something* is still getting me. Other than the quickbreads on occasion and Rice Chex (which cause no problems), I am doing mostly whole foods and avoiding processed stuff. I'm avoiding yeast right now since I thought that might be the problem, but nothing I'm eating has yeast and I'm still having episodes occasionally.

Thanks for helping me analyze!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

I know this sort of question has been asked over and over...and I'm reading as much as I can and searching, but in the meantime, I need some experienced help!

I have *something* that is still causing a reaction. My diary-keeping shows a pattern of having "D" the day after dh and I are intimate (sorry!), and I also could have a trend of "D" after eating homemade gluten-free quickbreads.

So...we are making a trial of 'no kissing' to see if I'm getting contaminated from dh's gluten eating.

And I'm trying to track a culprit in my baking...or perhaps it's just when I eat too much "gluten free" but processed stuff? I am using all Bob's flours (sweet sorghum, brown and white rice, garbanzo bean, tapioca) and some Hodgson Mills brown rice flour. I use Clabber Girl baking soda, which claims gluten-free, Arm & Hammer baking soda (is that a possible culprit?), canola oil, and homemade rice milk or Almond dream almond milk. Also, Hill Country Fare corn starch (store brand from a grocery that labels its gluten-free stuff on the shelf and this claims to be gluten-free). For cornbread I used Hill Country Fare corn meal (again, supposed to be safe).

I eat my biscuits or cornbread with honey or coconut oil.

I didn't imagine that I was extremely sensitive, but *something* is still getting me. Other than the quickbreads on occasion and Rice Chex (which cause no problems), I am doing mostly whole foods and avoiding processed stuff. I'm avoiding yeast right now since I thought that might be the problem, but nothing I'm eating has yeast and I'm still having episodes occasionally.

Thanks for helping me analyze!

I suggest going off all grains and then when you are stabilized, add one grain at a time to find the culprit.

Its also possible you may have candida overgrowth, and thus the honey as well as ground up grains (and possibly grains in general) might be feeding the candida. Garbanzo flour can also feed candida. If this last possibility is the case, normally one has a white gucky tongue in the morning. You can also try the spit test--spit in a clean clear glass of water in the morning. If it forms strings that hang down in the glass of water, candida is likely. If not, you are likely OK.

It is also a strong indication of candida overgrowth if you go off candida encouraging foods and go through a "die off" reaction the first week or so (the first 5 days are the worst)--you get irritable and b%$@#y, have headaches and the like. The candida wants to be fed and while it dies off it releases alcohol into your system that makes one irritable and have cravings for sugary or starchy things etc.

Hope this helps!

Bea

cassP Contributor

from what i read on here- there could be CC with the baking soda or the Chex. i avoid Chex anyways- isnt it corn?? i try to eat Grain/Carb lite- and i really try to avoid corn- UNLESS i MUST have these yummy gluten-free oreos, or rice/bean/corn chips with my guac.

some people have gluten like reactions to corn... dont know if its an additional intolerance- or if its CC- and recently someone on here posted that a lot of farms rotate 3 particular crops on the same field: Wheat, Corn, & Soy.. that sounds like a Horror Film to me :o

also, sorry if i sound like a broken record with the "Fructose Malabsorption"... but it was so eye opening for me! anyways- for me- the honey you mention could be a problem, and the Garbanzo flour could possibly have me doubled over in gas pain.

good luck. i think the above poster has good advice... you might need to abstain from all grains temporarily to identify the culprits. my guess would be corn or cc.

Marilyn R Community Regular

In my case, I traced to to the Almond Milk, and there's some old posts about the Almond Milk that helped me figure it out. I don't know if that will help you, but I'd rather kiss my honey than drink almond milk! :D Good luck!

Pac Apprentice

I get cc from being intimate with my dh. So no kisses after eating gluten and he has to wash his face and hands when he comes home. (The whole household is gluten-free.) Even like that I usualy get itchy rash when he kisses me on the cheek withing several hours after eating gluten.

Marz Enthusiast

I second the grain idea - try skip the gluten-free flours for a while and see if it helps. Even "naturally gluten-free" flours can be contaminated with gluten from shared equipment, and some people even react to the certified < 5ppm gluten free flours. Are you making the biscuits on a non-stick tray that you use before with gluten-containing biscuits? Traces of gluten can hang around even after a scrubbing.

dilettantesteph Collaborator

If you might be sensitive to oats, Bob's might be a problem.

For gluten free flours, I make my own. I buy whole grains, sort to remove gluten grains and pebbles or whatever else doesn't belong, wash, dry and grind. That might do it for you.

I also make my own nut milks.

Good luck finding the problem. We spent all summer figuring out ours.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Keela Newbie

Some of your gluten free flours may be contaminated. It's a scary thought, but a possibility. Here is a link for more information... Open Original Shared Link

YoloGx Rookie

Some of your gluten free flours may be contaminated. It's a scary thought, but a possibility. Here is a link for more information... Open Original Shared Link

You are right, it is a scary thought. I have often wondered about this problem of CC of supposedly gluten-free foods--especially the grains. I have universally reacted to all of them. I can have some (throughly washed before cooking) brown rice however on occasion without the reaction. So something is definitely up here...

Also my boyfriend reminds me--stay away from anything made by Glutino. We have both been glutened by their products.

Further yeah there is the whole problem of grains kept in silos and put in trains that have had gluten products in them previously, thus causing a whole generic CC problem. So, as previously suggested, it makes sense to buy one's own grains and thoroughly wash and dry them before grinding and using them. It is actually inspiring me to try this method out when I get better! For now however I am still trying to kill off vestiges of candida overgrowth so I am avoiding grains for the most part anyway...

Bea

SheaLynne Newbie

Oh, thank you everyone! I won't try to reply to each, but it was amazing to come back and find all these possibilities so kindly offered. Thank you!

I am going to go off the grains for a while, as well as continue the no kissing trial just in case. I don't think I have any of the mouth/saliva symptoms of a candida problem, but I'll try the spit test in the morning, and I think stopping the grains and honey for a while should help with that if it is a problem, as well.

Milk is just an issue for me...I love milk and so far I've had to cut dairy and soy. Rice Dream was the only kind I could buy conveniently and it caused definite problems...so I guess I shouldn't have even tried the Almond Dream, but it was on sale this week and I couldn't resist giving it a try. In between, I had started making my own rice milk, and I do not seem to be having problems from the rice I'm buying, so I'll go back to that when I add grains back in.

This is really beginning to feel like a heavy burden. I was at first so excited to find something that made me feel so much better that I didn't mind giving up all the gluten...but now I see so many others having problems with corn, nightshades, etc. etc....what is safe to eat?? <Vent over. :) >

Thank you all so much!

T.H. Community Regular

I get cc from being intimate with my dh.

Me too. The shaving cream he used, the lotions he used, the shampoo he used, the lubrication we might have used that got on our hands and...uh...such :rolleyes: ...well, the list went on and on about what he used on his skin or hair - or what he ate or put in his mouth - that got me but good.

It's pretty sad, but we have to plan it out now, with him cleaning with gluten-free products and not putting any lotions or things on his body anywhere before we're intimate. Doesn't eat gluten for a few hours before, makes sure to brush his teeth with gluten-free toothpaste beforehand.

Kinda frustrating, but not as much as getting sick in the middle of having fun!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - Scott Adams replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Low iron and vitamin d

    3. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Healthy Gluten Free Foods low sugar that you found?

    4. - Scott Adams replied to lizzie42's topic in Traveling with Celiac Disease
      1

      Trip to Anaheim/Disney

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,242
    • Most Online (within 30 mins)
      7,748

    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in foods. I encourage everyone here who is affected by celiac or gluten sensitivity to read the announcement and submit their own suggestions — real lived experience matters and can influence policy changes that benefit the whole community.
    • Scott Adams
      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also commonly reported in celiac kids and can be related to slow healing, reflux, motility, or even low iron itself. It sounds like the supplements are clearly helping, which is reassuring, and ongoing monitoring with her doctor can help determine when (or if) doses can be reduced as absorption improves. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. This article has more info:    
    • Scott Adams
      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those with whole foods can help you feel more “normal” without triggering symptoms. Subscription boxes can be hit or miss, so checking labels carefully and using them as an occasional supplement—rather than a staple—often works best.
    • Scott Adams
      This article is a few of years old, but my still be helpful.  
    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.