Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Never Thought I Would Be Able To Do This


ravenwoodglass

Recommended Posts

txplowgirl Enthusiast

CONGRATS Raven! Gives me hope that my problems will be gone in time too. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Well done, and congratulations. It is possible to overcome many obstacles it you try hard enough. :)

Roda Rising Star

Cheers and congrats!!

kareng Grand Master

Congrats, Raven! I feel I should say something deep and meaningful here......but then you would ask who wrote it for me!

Really, this is a great accomplishment! You have overcome a lot of obstacles. :D

kayo Explorer

I have chills! Congratulations doesn't seem like a big enough word for all that you have accomplished. You're amazing, simply amazing. :)

gifree Apprentice

In 2002 I had given up all hope of ever being able to do anything but live in pain and continue slowing dieing. Even after diagnosis I still had little hope of ever being able to accomplish much as my brain and body were so very damaged. Everything was so hard from thinking to walking to even talking to my children. I felt trapped in my own body.

I had to quit college one semester short of my degree in 1996 due to being so very sick from undiagnosed celiac. In 2008 I tried to go back to school and finish my last semester but my brain was still not back enough and my memory was still so poor and movement was still so difficult at times that I went back for a little over a month and gave up. It was just too hard physically and mentally. To say that was demoralizing is an understatement. But I continued with physical therapy for my motion issues and never gave up on the idea that I could heal fully.

Last summer I decided to give it one last shot. I sit here now with tears in my eyes still not quite believing that I took my last exam today. I did it. I finished my duel degrees. Even if I don't ever find a job with them at least my children can say now that their Mom at least finished college. Something no one else in my family (other than my children) ever did. It was hard and I spent many many hours studying to get my brain to be able retain what I was reading but I did it. I even had a 100% average in 2 of my classes going into the exams.

For those of you who are still struggling with neuro damage keep the faith. We can recover even from severe brain damage. I wish it hadn't taken so long but I am so glad I never gave up. You shouldn't either.

Big, big congrats Ravenwood!! I know from personal experience how difficult it is to persevere academically when Celiac affect's one's cognition...so, a big hats off to you!

Hang that diploma prominently and proudly!

Googles Community Regular

Awesome! That is so cool!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ox on the Roof Apprentice

Congratulations! You are a kind person and even though I've been here a short time, you've already been an encouragement. I celebrate with you! Someone should bake you a good ol' gluten-free CAKE! :D

plantime Contributor

Way to go!!

sandsurfgirl Collaborator

Congratulations!!!! I am SO proud of you! What an inspiration you are. Thank you for sharing and for all you do to help others on this board. Way to go!!!!!

Woot woot! Woop Woop! Yippee!!! Yay! Awesome! You're number one! Go Ravenwoodglass! (that's my cheerleader impression)

finally diagnosed Apprentice

In 2002 I had given up all hope of ever being able to do anything but live in pain and continue slowing dieing. Even after diagnosis I still had little hope of ever being able to accomplish much as my brain and body were so very damaged. Everything was so hard from thinking to walking to even talking to my children. I felt trapped in my own body.

I had to quit college one semester short of my degree in 1996 due to being so very sick from undiagnosed celiac. In 2008 I tried to go back to school and finish my last semester but my brain was still not back enough and my memory was still so poor and movement was still so difficult at times that I went back for a little over a month and gave up. It was just too hard physically and mentally. To say that was demoralizing is an understatement. But I continued with physical therapy for my motion issues and never gave up on the idea that I could heal fully.

Last summer I decided to give it one last shot. I sit here now with tears in my eyes still not quite believing that I took my last exam today. I did it. I finished my duel degrees. Even if I don't ever find a job with them at least my children can say now that their Mom at least finished college. Something no one else in my family (other than my children) ever did. It was hard and I spent many many hours studying to get my brain to be able retain what I was reading but I did it. I even had a 100% average in 2 of my classes going into the exams.

For those of you who are still struggling with neuro damage keep the faith. We can recover even from severe brain damage. I wish it hadn't taken so long but I am so glad I never gave up. You shouldn't either.

Congrad's.... you earned every bit of that degree, its never to late to finish what we started many years ago....

be proud...

Mama Melissa Enthusiast

Congrats Raven!!!!!That is awesome all that hard work did pay off:)

Marz Enthusiast

Wow, congrats Raven!! Taking up studying after several years of not studying is hard enough, having to deal with celiac disease and disability on top of that must have been almost impossible.

Well done for tackling the impossible, you are an inspiration! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

    2. - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    4. - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748

    Michelle C.
    Newest Member
    Michelle C.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.