Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Done Today


wow89

Recommended Posts

wow89 Rookie

I got a celiac panel done today, food allergies, along with thryoid and glucose. Pleased with new dr. she leaned more toward thyroid, but thought I was on the right track wiht the celiac... since I glutened this weekend my heart keeps "popping" I guess that's a palpitation ;) and feeling fuzzy/out of focus and weak.

If it's not gluten then I don't know what the heck is wrong... feeling frustrated. IF it is gluten it means I've had this for about 20 years, cause that's when it ALL (tummy troubles) started.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Wow89, have you been gluten free for a while? If you have then i'm sorry to say that you have a very good chance of the blood tests coming back negative. I hope you get the answers you need.

wow89 Rookie

Thanks for the info - stopped for 2/3 weeks - I tried to eat some this weekend.. told the dr about the lapse, even it says I am little I'm done with it as bad as I feel so as long as it's a 'little positive' that works for me. ;) If not, hormone issues it is! ;)

ravenwoodglass Mentor

Thanks for the info - stopped for 2/3 weeks - I tried to eat some this weekend.. told the dr about the lapse, even it says I am little I'm done with it as bad as I feel so as long as it's a 'little positive' that works for me. ;) If not, hormone issues it is! ;)

Please don't assume that if the test is negative that it isn't celaic. My doctors doing so cost me many, many painful years. When you are done with testing no matter what the results do give the diet a good strict trial.

wow89 Rookie

Thanks for the advice - yes I am going to go gluten free, as because Sat and Sun I ate gluten, Tuesday a.m. I have D. It just makes sense. I have low B12 and am otherwise quite healthy despite my weakness, fatigue, palpitations, jitteryness, hair loss, ridges in fingernails and anxiety. These symptons REALLY majorly appear after I have had some sort of tummy virus or am sick, but the D remains a constant and tends to also appear around my time of the month. It could be hormonal too but it's gotta be the gluten.

question is there one symptom that all celiacs have or is it just that varied?

wow89 Rookie

Also just wondering... I can be sitting and doing nothing and then my body just kind of has a mind of it's own I start feeling anxious or my heart jumps or palpitates... is that a celiac thing or just my stress over waiting to hear something? ;)

Also, how long before you are back to normal ie - like you were before it all started?

kareng Grand Master

Also just wondering... I can be sitting and doing nothing and then my body just kind of has a mind of it's own I start feeling anxious or my heart jumps or palpitates... is that a celiac thing or just my stress over waiting to hear something? ;)

Also, how long before you are back to normal ie - like you were before it all started?

I had that when I was severly anemic. I think because the blood can't carry enough oxygen so your heart tries to pump more. Have you been checked for iron, ferritin, B12, D?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Thanks for the advice - yes I am going to go gluten free, as because Sat and Sun I ate gluten, Tuesday a.m. I have D. It just makes sense. I have low B12 and am otherwise quite healthy despite my weakness, fatigue, palpitations, jitteryness, hair loss, ridges in fingernails and anxiety. These symptons REALLY majorly appear after I have had some sort of tummy virus or am sick, but the D remains a constant and tends to also appear around my time of the month. It could be hormonal too but it's gotta be the gluten.

question is there one symptom that all celiacs have or is it just that varied?

Symptoms can really vary a lot. I also had a worsening in symptoms around the time of my periods, well until celiac put me in early menapause. The delayed D is fairly common for us. Also what you think are tummy viruses may actually be celiac symptoms. I am glad to hear you are going to give the diet a good strict try. I hope you have quick results, and you may with the D, but some of the other stuff may take longer to resolve. Do get your iron, ferritin and vitamin levels checked also.

wow89 Rookie

Thanks - yes I do have low b12 I know for sure... am getting other levels checks. Thansk for all your help!

ravenwoodglass Mentor

Thanks - yes I do have low b12 I know for sure... am getting other levels checks. Thansk for all your help!

You should make sure you are taking the sublingual form of B12 supplements as you may not absorb the pills you swallow until you are fully healed.

annabella Newbie

I had a blood test on Wednesday, but am also told that it could be negative as I've been gluten-free for a few weeks now. Did you get your results yet?

wow89 Rookie

Anabella - no test results yet? How about you? Waiting waiting waiting... It's just gotta be the gluten too much makes sense now!

I've been gluten free for a few days and am feeling lots better. My vitamin had wheat in it, changed to a sublingual B12 and and feeling better in all those aspects too. I used to also get sick after cleaning house, always thought it was because my hubby was germy - now I read cleaners have gluten.. could it be?

If it is positive I could have had this for 10-15 years!!! or more, I remember being constipated as a child a lot... is that a memory lots of kids have??? ;)

Will taking B12 and eating lots of eggs skew an anemia/b12 test?

So does all vitamin E mean what? I have a "holy grail" foundation I'm using and I really don't want to give it up :) (but I would) ;)

ravenwoodglass Mentor

Will taking B12 and eating lots of eggs skew an anemia/b12 test?

So does all vitamin E mean what? I have a "holy grail" foundation I'm using and I really don't want to give it up :) (but I would) ;)

Yes taking B12 will skew the results and so will taking folate as it can give a reading that is higher than it really is for the B12. I don't think the eggs will. Just tell your doctor what supplements you are taking before the doctor tests your levels.

Not all vit E is wheat derived some is soy derived and there are other sources.

The best way to find out about the foundation's source is to call the company and ask. Not all of us would be concerned about the source in foundation. As long as it doesn't contact any mucous membranes in your eyes, nose or mouth and you wash your hands well it might be okay. If in doubt use something else until you feel better and then see if starting up with it again causes any issues.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,540
    • Most Online (within 30 mins)
      7,748

    Nina J
    Newest Member
    Nina J
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.