Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Done Today

wow89

Recommended Posts

wow89 Rookie
wow89
Posted

I got a celiac panel done today, food allergies, along with thryoid and glucose. Pleased with new dr. she leaned more toward thyroid, but thought I was on the right track wiht the celiac... since I glutened this weekend my heart keeps "popping" I guess that's a palpitation ;) and feeling fuzzy/out of focus and weak.

If it's not gluten then I don't know what the heck is wrong... feeling frustrated. IF it is gluten it means I've had this for about 20 years, cause that's when it ALL (tummy troubles) started.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


txplowgirl Enthusiast
txplowgirl
Posted

Wow89, have you been gluten free for a while? If you have then i'm sorry to say that you have a very good chance of the blood tests coming back negative. I hope you get the answers you need.

wow89 Rookie
wow89
Posted
  • Author

Thanks for the info - stopped for 2/3 weeks - I tried to eat some this weekend.. told the dr about the lapse, even it says I am little I'm done with it as bad as I feel so as long as it's a 'little positive' that works for me. ;) If not, hormone issues it is! ;)

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks for the info - stopped for 2/3 weeks - I tried to eat some this weekend.. told the dr about the lapse, even it says I am little I'm done with it as bad as I feel so as long as it's a 'little positive' that works for me. ;) If not, hormone issues it is! ;)

Please don't assume that if the test is negative that it isn't celaic. My doctors doing so cost me many, many painful years. When you are done with testing no matter what the results do give the diet a good strict trial.

wow89 Rookie
wow89
Posted
  • Author

Thanks for the advice - yes I am going to go gluten free, as because Sat and Sun I ate gluten, Tuesday a.m. I have D. It just makes sense. I have low B12 and am otherwise quite healthy despite my weakness, fatigue, palpitations, jitteryness, hair loss, ridges in fingernails and anxiety. These symptons REALLY majorly appear after I have had some sort of tummy virus or am sick, but the D remains a constant and tends to also appear around my time of the month. It could be hormonal too but it's gotta be the gluten.

question is there one symptom that all celiacs have or is it just that varied?

wow89 Rookie
wow89
Posted
  • Author

Also just wondering... I can be sitting and doing nothing and then my body just kind of has a mind of it's own I start feeling anxious or my heart jumps or palpitates... is that a celiac thing or just my stress over waiting to hear something? ;)

Also, how long before you are back to normal ie - like you were before it all started?

kareng Grand Master
kareng
Posted

Also just wondering... I can be sitting and doing nothing and then my body just kind of has a mind of it's own I start feeling anxious or my heart jumps or palpitates... is that a celiac thing or just my stress over waiting to hear something? ;)

Also, how long before you are back to normal ie - like you were before it all started?

I had that when I was severly anemic. I think because the blood can't carry enough oxygen so your heart tries to pump more. Have you been checked for iron, ferritin, B12, D?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks for the advice - yes I am going to go gluten free, as because Sat and Sun I ate gluten, Tuesday a.m. I have D. It just makes sense. I have low B12 and am otherwise quite healthy despite my weakness, fatigue, palpitations, jitteryness, hair loss, ridges in fingernails and anxiety. These symptons REALLY majorly appear after I have had some sort of tummy virus or am sick, but the D remains a constant and tends to also appear around my time of the month. It could be hormonal too but it's gotta be the gluten.

question is there one symptom that all celiacs have or is it just that varied?

Symptoms can really vary a lot. I also had a worsening in symptoms around the time of my periods, well until celiac put me in early menapause. The delayed D is fairly common for us. Also what you think are tummy viruses may actually be celiac symptoms. I am glad to hear you are going to give the diet a good strict try. I hope you have quick results, and you may with the D, but some of the other stuff may take longer to resolve. Do get your iron, ferritin and vitamin levels checked also.

wow89 Rookie
wow89
Posted
  • Author

Thanks - yes I do have low b12 I know for sure... am getting other levels checks. Thansk for all your help!

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks - yes I do have low b12 I know for sure... am getting other levels checks. Thansk for all your help!

You should make sure you are taking the sublingual form of B12 supplements as you may not absorb the pills you swallow until you are fully healed.

annabella Newbie
annabella
Posted

I had a blood test on Wednesday, but am also told that it could be negative as I've been gluten-free for a few weeks now. Did you get your results yet?

wow89 Rookie
wow89
Posted
  • Author

Anabella - no test results yet? How about you? Waiting waiting waiting... It's just gotta be the gluten too much makes sense now!

I've been gluten free for a few days and am feeling lots better. My vitamin had wheat in it, changed to a sublingual B12 and and feeling better in all those aspects too. I used to also get sick after cleaning house, always thought it was because my hubby was germy - now I read cleaners have gluten.. could it be?

If it is positive I could have had this for 10-15 years!!! or more, I remember being constipated as a child a lot... is that a memory lots of kids have??? ;)

Will taking B12 and eating lots of eggs skew an anemia/b12 test?

So does all vitamin E mean what? I have a "holy grail" foundation I'm using and I really don't want to give it up :) (but I would) ;)

ravenwoodglass Mentor
ravenwoodglass
Posted

Will taking B12 and eating lots of eggs skew an anemia/b12 test?

So does all vitamin E mean what? I have a "holy grail" foundation I'm using and I really don't want to give it up :) (but I would) ;)

Yes taking B12 will skew the results and so will taking folate as it can give a reading that is higher than it really is for the B12. I don't think the eggs will. Just tell your doctor what supplements you are taking before the doctor tests your levels.

Not all vit E is wheat derived some is soy derived and there are other sources.

The best way to find out about the foundation's source is to call the company and ask. Not all of us would be concerned about the source in foundation. As long as it doesn't contact any mucous membranes in your eyes, nose or mouth and you wash your hands well it might be okay. If in doubt use something else until you feel better and then see if starting up with it again causes any issues.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,263
    • Most Online (within 30 mins)
      7,748
    Fruitypebbles
    Newest Member
    Fruitypebbles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Doctors and Celiac.com

      By Scott Adams · Posted

      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.