Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free Beer- Puzzled

jasonD2

By jasonD2
in Coping with Celiac Disease

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

Many of u probably heard of the new Daura gluten free beer. anyway, i tried it last night and had a euphoric experience cause i forgot how much i loved beer. however, when i got back to my hotel room an hr later i felt pins and needles in my arms and legs and also felt like my circulation was being cut off. i slept for 3 hrs and woke up at 3 and couldnt fall back asleep cause i had a headache and felt lousy. this beer is supposed to contain less than 6 ppm of gluten so how could i have possibly reacted to this? i eat out all the time and while im careful im sure i get hit with trace amts of gluten here and there...its unavoidable but i never felt as poorly as i did last night.

on my allergy test i tested high positive for barley so is there a chance i was reacting to the barley and not necessarily the gluten? whats the deal...this beer is being marketed to people with celiac and many restaurants are carrying it now. the site even said it was tested on people with the most severe for of celiac and they were fine.

please enlighten me

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

You're allergic to barley and you drank beer made of barley.... :blink:

You're still allergic to barley.

This has been another simple answer to simple questions.

I personally, do not try to consume things that I know I am allergic to or have an auto immune reaction to, despite the assurances of the manufacturer that is will "be okay." But that's just little ole cynical me, who doesn't intend to die from one of those bad reactions.

Congrats you've probably saved a few more people from getting sick.

______

edited to add a review here, check out the comments

Open Original Shared Link

See the comments about peptides

jasonD2 Experienced
jasonD2
Posted
  • Author

hey ya live ya learn, right?

Takala Enthusiast
Takala
Posted

You did good. B)

All this internet chatter about the new gluten-free Daura beer and here we find out that the stuff is made of barley.

Read the link. One person said it tasted like Stoh's. :lol: :lol: :lol: Must be the "imported from Spain" that's the marketing hook.

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks for letting us know you did react to it. You may have saved some of us who would have been tempted to try from the pain.

Monklady123 Collaborator
Monklady123
Posted

Well... I'm not sure how something made from barley could be on anyone's "gluten free" list. Barley contains gluten!

If you want a truly gluten free beer try one of the sorghum ones. Redbridge is the only one I've tried so far and I liked it, especially when it was nice and cold. I know there are a couple of others also, but I haven't found them yet to try.

killernj13 Enthusiast
killernj13
Posted

Well... I'm not sure how something made from barley could be on anyone's "gluten free" list. Barley contains gluten!

If you want a truly gluten free beer try one of the sorghum ones. Redbridge is the only one I've tried so far and I liked it, especially when it was nice and cold. I know there are a couple of others also, but I haven't found them yet to try.

Is this the one that is made from barley and claims to have the gluten removed? Sounds fishy to me?

Although, I do drink distilled vodka.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fire Fairy Enthusiast
Fire Fairy
Posted

Thank you Jason for the warning about Daura. And thanks Monkeylady for the recommendation. :)

mcc0523 Newbie
mcc0523
Posted

Fruit ciders are another good substitute for beer. I know that Magner's Hard Cider is made from apples and is really good. Pear ciders are very nice, as well. Not all brands are gluten-free, so make sure to research beforehand... however, it seems more are than not.

That's nice to know about the "gluten-free" beer. I shall make sure to avoid it.

GlutenFreeKate Newbie
GlutenFreeKate
Posted

Hard cider (like Magner's), hard liquor, and truly gluten free beer (like RedBridge) is all I need! I can't believe something made with barley is still being toted as gluten free. Talk about a lawsuit waiting to happen!

Cypressmyst Explorer
Cypressmyst
Posted

Just wanted to put a plug in for New Grist and Greene's Dark. Both are very tasty. Bards is good too, in fact I have yet to find a gluten-free beer I don't like... something about how they don't upset my stomach like gluten beer... :lol: but I think I'll stay clear of the unfortunately named Daura. ;)

luvs2eat Collaborator
luvs2eat
Posted

Ooooh... I've not seen Greene's Dark, but love New Grist!!

larry mac Enthusiast
larry mac
Posted

Man this is a tough crowd. One person thinks they reacted to a gluten-free product and everyone's ready to dump on it. There's someone out there that thinks they react to gluten-free Corn Chex too. That doesn't stop me from eating it.

I can't wait to try this beer made from Barley. Maybe it actually tastes like real beer, the sourghum beer is awful. If they say they remove the gluten, I'll just have to see for myself.

best regards, lm

ravenwoodglass Mentor
ravenwoodglass
Posted

Man this is a tough crowd. One person thinks they reacted to a gluten-free product and everyone's ready to dump on it. There's someone out there that thinks they react to gluten-free Corn Chex too. That doesn't stop me from eating it.

I can't wait to try this beer made from Barley. Maybe it actually tastes like real beer, the sourghum beer is awful. If they say they remove the gluten, I'll just have to see for myself.

best regards, lm

Different folks have different tolerance levels. As always the choice is an individual one. You may tolerate it just fine. Myself I simply prefer not to risk items that are 'processed to be gluten free'. When you do find it I hope it works for you. I agree the sorghum beers are not great that's why I go with ciders or rum and pepsi usually.

Monklady123 Collaborator
Monklady123
Posted

Man this is a tough crowd. One person thinks they reacted to a gluten-free product and everyone's ready to dump on it. There's someone out there that thinks they react to gluten-free Corn Chex too. That doesn't stop me from eating it.

I can't wait to try this beer made from Barley. Maybe it actually tastes like real beer, the sourghum beer is awful. If they say they remove the gluten, I'll just have to see for myself.

best regards, lm

Well for me -- when I look at the ingredients of Corn Chex and see "corn" then I feel much more confident that if I look at beer and it's made from "barley." Since barley contains gluten and corn does not. So I'm not going to feel confident in barley beer. Simple as that.

You do what you feel is best for you. I opt for sorghum beer or cider or wine or a gin and tonic or one of many other options that are available should I want some alcohol, options that are not naturally gluten-containing.

Brookesmom Newbie
Brookesmom
Posted

Well, they deglutenize it down to 6 ppm (way lower than the EU standards for gluten free) but I imagine other fragments of barley other than the gluten might affect someone allergic to barley.

I tried it last week and was so excited. No problem whatsoever (and I get a little bloated from sorghum beer- I think I have a bit of a sorghum intolerance because it happens from every brand). If I accidentally have wheat I'm in excruciating pain in the fetal position and 6 parts per million didn't affect me that way at all, FWIW. YMMV and all that. :D

  • 11 months later...
Fosterlu Newbie
Fosterlu
Posted

I had a couple a day for a couple days in a row. It tasted SO good. I hate to report that I had a very bad reaction to it . Makes me so sad.

  • 2 months later...
singlutinoya Newbie
singlutinoya
Posted

Man this is a tough crowd. One person thinks they reacted to a gluten-free product and everyone's ready to dump on it. There's someone out there that thinks they react to gluten-free Corn Chex too. That doesn't stop me from eating it.

I can't wait to try this beer made from Barley. Maybe it actually tastes like real beer, the sourghum beer is awful. If they say they remove the gluten, I'll just have to see for myself.

best regards, lm

Did you see for yourself? I tried that. I got wretchedly sick. Definitely glutened by Daura Beer. It's extremely obvious when I am glutened... did you react?

singlutinoya Newbie
singlutinoya
Posted

I had a couple a day for a couple days in a row. It tasted SO good. I hate to report that I had a very bad reaction to it . Makes me so sad.

Me, too. I will never, ever touch Daura Beer again. Definitely glutened.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    2. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    3. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
    4. knitty kitty
      - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release...
    5. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Guinness, can you drink it?

      This article may be helpful:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,243
    • Most Online (within 30 mins)
      7,748
    Dorfor
    Newest Member
    Dorfor
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.