Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am Grateful Truly I Am But Some Days......

cahill

Recommended Posts

cahill Collaborator
cahill
Posted

I am grateful, truly I am, but some days,, like today,, it is hard to concentrate on what I am grateful for.

Today I am sad over the loss of two foods that I thought I could not live without,,,,I am adding eggs and dairy to the ever growing list of foods my body currently has a true allergy or an intolerance too . I am in physical pain and my emotions are all over the place,,, a result of ingesting dairy. The latest self inflicted assault on my body as I continue my elimination diet . The pain and emotional rollercoster will clear as the dairy leaves my body,and hopefully the overwhelming sadness and grief will dissipate soon also.

I am trying I truly am but some days..........

so today I will try to remember to be grateful,,

Grateful that my 4 year old granddaughter ,who is showing signs of celiacs ,has a mom that is gluten free. A mom that understands and can see the signs. I am grateful she will not have to suffer as I or her mom have.

I am grateful that I found meat at the market that is among the few my body has chosen to tolerate.The last time I when shopping they didnt have any and I started to cry in the meat isle.

I found sweet potato chips,I never though I would cry over being able to find potato chips I can eat.

So I will make foods that I know are safe for lunch and pamper my body as it recovers from the dairy.

What are you grateful for today ??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Great idea for a thread. Sometimes it is hard to concentrate on the good things we do have when it seems so much is lacking or gone.

I am grateful that I woke up today, got out of bed and stood up without falling over.

I am grateful that I have my little dog and my kitties to brighten my day.

I am grateful that although I don't have a lot of extra money I do have enough to buy food and pay the bills I have.

I am grateful that at least for today it isn't snowing. :D

Takala Enthusiast
Takala
Posted

Coconut milk, so I can tell you to go buy some to start using in your coffee, tea, and soups in place of dairy.

I am grateful we have had a run of really nice weather and the rain stopped for a while, although that is going to change. B)

Grateful I don't fall over, anymore, either. I used to lay in bed and think, what happens if I can't get up, as I tested to see what I could still feel.

Happyw5 Explorer
Happyw5
Posted

I agree I definitely needed to see the bright side of things today!!!

I am grateful I have 5 healthy, wonderful children!

I am grateful my 10 yr old son just got a terrific kid award at school today (I just got the call)

I am grateful I have a supportive husband and a great support system with my big family!

I am grateful for my 5 dogs!!!

I am grateful I can stay home and take care of the kids, and though we may not have the newest of everything--we are doing pretty darn great!

I am grateful I can still eat popcorn and potatoes!!!!

HAVE A HAPPY DAY EVERYONE!!!!!!!!!!!!!

Diane-in-FL Explorer
Diane-in-FL
Posted

I am grateful for my wonderful husband who is super supportive and loves to cook and doesn't mind eating gluten free along with me!

Also grateful today is a snow free day!

And for this forum!!

shopgirl Contributor
shopgirl
Posted

I'm grateful that no matter how whiny, self-pitying, and obnoxious I happen to be, I can always ask mom for a hug and receive one without hesitation.

cahill Collaborator
cahill
Posted
  • Author

I am grateful for the friend who told me about this web site.

I am grateful for this forum and each of you :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

I am grateful that my sister who has melanoma is doing much better now than 2 weeks ago. A blessing from God!

I am grateful for days when I can read this celiac board and think of it as just a disease that I happen to have and not a major detriment to living my life.

I am grateful for all the things God has given me even tho I didn't exactly want some of them at the time they were "gifted".

And another one, a month or so a gao I went to a local Safeway grocery store in Vienna, VA on Nutley street and asked for gluten-free bread after wandering around for a long tiem lokking for it. All they had was some Ezekial sprouted grain bread, which they thot was gluten-free. After talking to the bakery manager and getting nowhere, and the on duty store manager, it turned out they just didn't have any gluten-free bread. And this is a big new store, not a small one. So, no biggie, I thanked them for their effort and left.

A few weeks later I went back in that store and they had installed a whole display of about 10 feet wide of gluten free products right up front of the store as you walk in the entrance. Pretty amazing! I even found some GFCFSF items on the display I can eat which is pretty cool. :D :D

mcc0523 Newbie
mcc0523
Posted

I'm grateful that I was able to hike earlier 2.5 hours in the woods. A feat that was impossible 2 months ago, that I had given up for good (that was such a horrible night when I told my best friend that I would never be able to do that again... I actually cried over that). I went gluten-free a month ago, and I can already tell such a difference in how I feel. In general my energy levels are starting to pick back up again. I can now gladly give up beer (the only thing I still wasn't OK with giving up before this hike, actually) and I do mean gladly! I love hiking much more than I could ever love beer (and that's a lot).

I'm grateful that my friend is going gluten free (actually, I've been following more of a primal/paleo diet, and now so is he) with me, and that he is starting to feel a difference in his health, too. I've suspected that he has had problems with gluten for awhile, and that he was able to hike with me today is a good sign (since he's been gluten-free for awhile, too) that gluten is not his friend, either.

I'm grateful for people where I go (school and church) that make sure my needs are taken care of, but do so in a way that makes me feel normal.

I'm grateful that it's not all "in [my] head", that I'm not completely losing my mind. I knew that I wasn't when it appeared that I was, but I couldn't convince others of that for a long time. I now have my parents in my corner (as best as they can right now... but they finally know that I'm not going crazy), and I even have a few good doctors that believe me and actually listen to me, not cut me off mid-sentence and just shove pills my way that was just dropped off by the pharmaceutical rep. One actually told me that me not throwing up since the day I went gluten-free was a pretty good sign, and it seemed like my body was telling me something and I should listen to it.

There are so, so many more things that I'm grateful for, some even more than what I listed here.... I wish I'd gone gluten-free much, much sooner.

catarific Contributor
catarific
Posted

I am grateful I can eat egg whites! I, like you, can no longer eat eggs - but I can eat egg whites that are fried with a bit of Pam in the pan. I do not like the egg whites in the container. Instead, we get high grade eggs and separate the whites from the yolk - and the taste is really good! My husband argued with me that there is no nutritional value in the whites - but, I looked it up on the internet, and the whites of the egg are full of protein! So I do hope you give this a try - it may be something you like. I usually am plagued with diarrhea and stomach cramps when eating something I cannot tolerate, but am happy and grateful to say, the egg whites do not cause these complaints!

mushroom Proficient
mushroom
Posted

I am grateful that my sister who has melanoma is doing much better now than 2 weeks ago. A blessing from God!

I am so glad to hear this, Gee Eff. May her healing journey continue :) I will keep her in my thoughts.

AerinA Rookie
AerinA
Posted

I am grateful that my mom finally gets to have a healthy kid, after so many years of heartache and worry, for all the support that my family, friends, and all of you on the forum have given me.

I am grateful for my doctor, who was the first one to direct me to the idea of gluten intolerance after so many years of nobody understanding -- and grateful that the diet works!!

Today, I am most grateful for the extra time I got to spend with my family last weekend since I didn't have to spend the majority of it sleeping or nursing a headache, and I am looking forward to being able to do all those things I had been putting off for so long because I wasn't feeling up to it.

And thanks for this thread, a little positive thinking can do a world of good--best of luck coping with the new diet, I hope you feel better soon!

IrishHeart Veteran
IrishHeart
Posted

I know how you feel when things seem like they keep getting worse, instead of better. I hope you feel better soon!

I think focusing on what we are grateful for is helpful and I appreciate you starting this topic! I try to remember to be grateful every morning, but sometimes the pain makes that very difficult indeed.

I am grateful for this forum and all of you wonderful people who provide endless encouragement and wisdom. Special thanks to Raven for taking me under her wing (pun intended!)XXOO

I am BEYOND grateful for an amazing husband who has stood by me during years of inexplicable burning pain and illness, never giving up, driving me to endless doctor and PT visits because I was too spacey/anxious to drive, holding me while I sobbed and felt as if I would go mad because I did not know why I was so sick and out of it every damn day, and for going gluten-free with me, making our home 100% gluten-free, (even giving up his beer)...and baking our gluten-free bread. He's my rock and my heartbeat.

I am grateful that I am a persistent woman who would not accept a NON-diagnosis, or being bed-ridden with excruciating burning pain and parasthesia, or being told "get a scooter" to get around, "accept your fate" and "take these drugs." Poo on that! I have things to do!! :D

and I am grateful to have some remaining loyal friends, my sister who "gets it", a roof over my head, a fire in the wood stove, food to eat (that I actually feel like eating now!) and my crazy kitty cat who came to us in a most unexpected way. Simple pleasures are the best, don't you agree??

Blessings to you all!!

GFinDC Veteran
GFinDC
Posted

I am so glad to hear this, Gee Eff. May her healing journey continue :) I will keep her in my thoughts.

Thanks Shroomster! She is still doing better. We are looking at some drug trials that might help now. Prayers do help tho. :)

cO-ol Explorer
cO-ol
Posted

I am grateful

That I still live with mom and dad and am not homeless/totally broke despite the terrible wages my job provides

For the Internet! From good music to this support group to good blogs, the Internet makes my life bearable

That I live in an area with a co-op and a "health nut" (I use the term lovingly) community

  • 7 months later...
cahill Collaborator
cahill
Posted
  • Author

The resent talk Thanksgiving reminded me of this thread.

Today I am grateful that since I last posted in this tread my body has healed enough to reintroduce many foods.

I am grateful that I now have more good days than bad.

The damage from the ataxia may never completely go away but today I am grateful that I have not fallen or walked into a wall in a very long time. :)

What are you grateful or thankful for ?? :)

jswog Contributor
jswog
Posted

I am so greatful to FINALLY find the CAUSE of so many things that have held me back in life. I am greatful (or at least *trying*) to give up foods that have been making me sick for so long. I am greatful for a wonderful, supportive husband who's helped push me along in this journey of finding the 'healthy' me. I am greatful that after not even a month of being gluten-free, there is a very noticable difference in my health. I'm sure I could go on, but I'll stop with that!

ravenwoodglass Mentor
ravenwoodglass
Posted

This is a great thread to resurrect.

I am grateful for my new little four legged freind who has helped heal my heart and makes me go for long walks every day and more importantly laugh.

I am grateful that I feel good enough to work every week as a volunteer and the freindships I have made there.

I am grateful my furnace worked when I had to turn it on this week.

I am grateful for this forum and all the people here and for every day that I wake up without pain.

AVR1962 Collaborator
AVR1962
Posted

This is a great thread to resurrect.

I am grateful for my new little four legged freind who has helped heal my heart and makes me go for long walks every day and more importantly laugh.

I am grateful that I feel good enough to work every week as a volunteer and the freindships I have made there.

I am grateful my furnace worked when I had to turn it on this week.

I am grateful for this forum and all the people here and for every day that I wake up without pain.

You got yourself a new little friend? That is great!!! Nothing like time spent with our pets to mkae our hearts feel fuller!!

Gfresh404 Enthusiast
Gfresh404
Posted

I am grateful I am going to die.

"We are going to die, and that makes us the lucky ones. Most people are never going to die because they are never going to be born. The potential people who could have been here in my place but who will in fact never see the light of day outnumber the sand grains of Arabia. Certainly those unborn ghosts include greater poets than Keats, scientists greater than Newton. We know this because the set of possible people allowed by our DNA so massively exceeds the set of actual people. In the teeth of these stupefying odds it is you and I, in our ordinariness, that are here."

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    4. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,544
    • Most Online (within 30 mins)
      7,748
    PatientOne
    Newest Member
    PatientOne
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.