Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dry Mouth A Side Effect?


Terri O

Recommended Posts

Terri O Rookie

I have been gluten-free for 3 weeks or so and the other day I had the worst thirst ever! I usually drink a fair amount of water but now am finding myself drinking water ALL day long! This is fine with me, but I am just wondering if others have had this "cotton mouth" as a side effect of going gluten-free...and does it stop? Thanks! Terri O


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I have never heard of this as a side effect to going gluten free. Do you take any medications? Some can give this effect. Have you greatly increased your intake of carbs or sugar to 'replace' the gluten foods that you have given up? Are you getting up at night to pee? I know this answer was more question than answer but if it doesn't resolve soon and the need to pee is waking you up at night you may want to bring this up with your doctor.

IrishHeart Veteran

I have been gluten-free for 3 weeks or so and the other day I had the worst thirst ever! I usually drink a fair amount of water but now am finding myself drinking water ALL day long! This is fine with me, but I am just wondering if others have had this "cotton mouth" as a side effect of going gluten-free...and does it stop? Thanks! Terri O

Actually, I had a dry mouth BEFORE going gluten-free. :) It is much better now. I understand it can occur for a number of reasons: hormonal shifts, diabetes or sugar imbalances, bacterial infection in the mouth, some autoimmune diseases, yadda yadda yadda....I just found out I need periodontal work (ugh) and that can also accompany a dry mouth...Oh goody! just another thing with this disease. :angry:

It may just be that you require more hydration since your body is undergoing an enormous shift? Did you always drink a lot of water?

I drink water all day long because NOW my body is used to it, I guess. So, naturally, I also pee a lot :D the "thirsty feeling" subsided quite a bit and I think maybe my body is just used to being hydrated? See how you do in the coming days, but as Raven suggests, if the dry mouth gets to be ridiculous, causing burning mouth or tongue as I have (not fun at all) , it's worth talking to your doctor about it.

Terri O Rookie

Thanks for the replies! I actually seem a little better today...not quite so dry. Maybe the 500 glasses of water helped me? LOL! T

RiceGuy Collaborator

I used to get a super-dry mouth from gluten. Then once gluten-free for awhile, it started again. I eventually determined I had an electrolyte imbalance. A potassium supplement resolved it in about two weeks.

  • 8 months later...
aussiechick4jc Rookie

Hi there,

I'm wondering if someone might be able to give me some direction. I have uncomfortable dry mouth, although there is still saliva. At times it can be thick and other times very running. There have also been periods when all seems well. I have been gluten free for neally two weeks now, have noticed a huge difference in a few things. Still have a long way to go. I have been tested for Sjogrens Syndrome twice, both times normal to negative. I was experiencing issues with eyes but that seems to have fixed itself with going off gluten. I have also had my eyes tested and it appears there are no dry spots and tears ducks seem OK. The fact that it's happening is extremely annoying.

Anyone else had issues, what steps did you take and did it go away, if so, how long did it take.

Thanks everyone for you advise, it is much appreciated.

God Bless

Karen from Newcastle - Australia

  • 1 year later...
funkflex Rookie

I am also thirsty and suffering from dry mouth. How's yours now? Any answers?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Opa3 Apprentice

I have a dry mouth for years. A GFD didn't fix either. Doc suggested chewing gum. It would help saliva flow for better digestion after meals and keep mouth wet inbetween.

Do be careful with any intolerance to sugar alcohols( ie: sorbitol). Can give one GI symptoms (stomach pain, gas, diarrhea).

TRIDENT sugar free gums contain natural and artifical flavors- hidden gluten. To use 1 stick/day, could depend on your "sensitivity" to gluten. The stick is so small so how much gluten can be in them? Don't know.

I try a stick infrequently( I believe I can tolerate <20 ppm without villi damage, yet TBD) but need to err on the side of caution for any long term useage.

shadowicewolf Proficient

In the U.S., natural flavors do not normally contain gluten.

Trident states on their website that they do not have gluten.

1desperateladysaved Proficient

Last time I had dry mouth, coconut water resolved it. I buy 100% coconut water in a can. It contains both potassium and magnesium, and probably other nutrients. It is in naturally occuring amounts; it is not added. It is like sport water in its hydration ability, but without all that added sugar. You may want to try some. Expect it to taste about like water, but quench thirst better. If you expect it to taste like water, you may be pleasantly surprised. If you want it to taste like soda....forget it.

I am starting to wonder if there are any other coconut water fans out there, since I seem to talk about it each day recently.

Opa3 Apprentice

In the U.S., natural flavors do not normally contain gluten.

Trident states on their website that they do not have gluten.

You are a Life Saver. They too will keep the juices flowing. :)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.