Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hypoglycemia And Gluten Free Anyone?


maelenebaby

Recommended Posts

maelenebaby Newbie

Id like to find out if there are other members who are hypoglycemic and gluten free as well? im finding it a struggle to eat every 1.5 hours and finding foods to eat while im limited.

what snacks or foods do you eat?

can you share meal plans?

are there members who eat rice and potatoes or doing low carb?

i feel overwhelmed and tired all the time any help i would appreciate!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

It's hard isn't it. I am hypoglycemic as well. The hardest for me is in the morning.

For snacks, I eat an insane amount of rice and corn chex. I make up a little trail mix with nestle milk choc. chips, the chex, marshmallows, raisins. I usually take a bag of that with me in my purse. Fruit is good or Jello or pudding, Lays Stax or popcorn or Mission Corn chips and Pace salsa. Cheese and an apple or cream cheese on a Mission corn tortilla.....etc...etc.

I always have something with me and if I need something else, I will stop and buy an orange juice.

It's very overwhelming at first but you will get the hang of it and it will become second nature

maelenebaby Newbie

It's hard isn't it. I am hypoglycemic as well. The hardest for me is in the morning.

For snacks, I eat an insane amount of rice and corn chex. I make up a little trail mix with nestle milk choc. chips, the chex, marshmallows, raisins. I usually take a bag of that with me in my purse. Fruit is good or Jello or pudding, Lays Stax or popcorn or Mission Corn chips and Pace salsa. Cheese and an apple or cream cheese on a Mission corn tortilla.....etc...etc.

I always have something with me and if I need something else, I will stop and buy an orange juice.

It's very overwhelming at first but you will get the hang of it and it will become second nature

Totally hard Im glad I found someone who can relate! Yes its hard for me too in the morning I have no appetite and have to force myself to eat. I also eat the rice chex, I get tired of eating plain rice and potatoes as my carb source how about u? Do you have to eat every 2 hours also?

GFreeMO Proficient

Yes, plain rice and potatoes gets old! Cream of Rice cereal is gluten free. It's pretty good. I add brown sugar and raisins to mine. Rice chex is good with cinnamon and sugar sprinkled on it and it makes the best marshmallow treats. I usually eat something every 3 hours. But in between that, I am always drinking something.

Judy3 Contributor

I am in the same category. I've had hypoglycemia since I was 6 yrs old. It went the other way for a few years to Diabetes and the doctors think it was from my body fighting the Celiac. Now that I'm gluten free for almost 4 months, the hypoglycemia is back. Have to be careful when I exercise as my blood sugar drops into the 50's sometimes and I can hardly navigate. I eat every couple hours too. 5-6 small meals a day just to keep my sugars level. I found too that if I eat sweets or candy, it drops lower faster. Reactive hypoglycemia they call that. So I 'try' to not eat too much sugar but of course I'm only human and I eat it anyway... It's a pain in the xxx being hypo half the time. Do you get really sleepy and groggy after a low? If mine drops into the 50's I can hardly move the rest of the day.

Corn and Rice Chex with choc chips and peanuts is my bag o goodies to carry with me and an endless supply of glucose tablets. sigh

Fix one thing, bring on another... there is no rest for the wicked..!!! :)

ravenwoodglass Mentor

One thing that may help is making sure you are getting some protein when you eat a carb or a sugary food. A nut butter, cheese if you tolerate it, nuts or meat of some kind. The carbs will raise your blood sugar fairly quickly but without a protein it will also crash it back down pretty quick.

twe0708 Community Regular

I agree with the post before mine. As long as I have protein with my carbs I do fine. I always carry almond with me and it helps. I also have a tendency to over do it on sugar, but as soon as I eat some almonds it helps balance me out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I have to say, most of what's been posted here would make my blood sugar swing around like a roller coaster. Rice chex with sugar?! Ugh, I get a headache just reading that.

**Caveat - what I am posting below assumes reactive hypoglycemia as the topic, NOT diabetic hypoglycemia. While there is a lot of overlap, there are some significant differences.

Blood sugar goes up in response to carbs that are digested in the stomach/intestines and released into the blood stream, right? Well then:

* Very quickly digested carbs (sugars, simple starches) = Very quick rise in blood sugar

* More slowly digested carbs (complex carbs like beans, some whole grains) = Medium speed rise in blood sugar

* Fats, protein, fiber = Slow rise in blood sugar

* Larger quantities of either of these categories = larger total rise in blood sugar (obvious, I know)

Speed of the blood sugar rise (and, subsequent fall when insulin starts sequestering glucose in the cells) makes a difference in symptoms.

I would *highly* recommend balancing EACH AND EVERY meal with carbs, protein, fat, and fiber. Do this over a long period of time (days, weeks, months) and the body can gradually (sometimes) go longer and longer between eating, because you're balancing out your blood sugar levels. So, that may mean that rice chex is off the menu. These days, if the rest of my eating is good, I can sometimes get away with a bowl of rice kix, but I have to use coconut milk (for the fat) to help balance out its effect. (And it's before I teach a morning yoga class, where I'm about to use a good portion of that blood sugar increase anyway.)

Breakfast might still be toast (mmmm... Udi's!), but with generous amounts of peanut butter. Or a banana, but paired with an egg. Yesterday was fried rice (leftover rice, scrambled egg, frozen veggies) for me. Sometimes it's hot cereal - but millet grits (more protein/fiber than cream of rice) with flax meal (for more fat/fiber).

It takes some time thinking about how to balance ALL your meals, but the more balanced they are, the more space there is for *small* excursions out of balance.

maelenebaby Newbie

I am in the same category. I've had hypoglycemia since I was 6 yrs old. It went the other way for a few years to Diabetes and the doctors think it was from my body fighting the Celiac. Now that I'm gluten free for almost 4 months, the hypoglycemia is back. Have to be careful when I exercise as my blood sugar drops into the 50's sometimes and I can hardly navigate. I eat every couple hours too. 5-6 small meals a day just to keep my sugars level. I found too that if I eat sweets or candy, it drops lower faster. Reactive hypoglycemia they call that. So I 'try' to not eat too much sugar but of course I'm only human and I eat it anyway... It's a pain in the xxx being hypo half the time. Do you get really sleepy and groggy after a low? If mine drops into the 50's I can hardly move the rest of the day.

Corn and Rice Chex with choc chips and peanuts is my bag o goodies to carry with me and an endless supply of glucose tablets. sigh

Fix one thing, bring on another... there is no rest for the wicked..!!! :)

hi Jud3 yes I find I cant exercise either I get real shakey around the 70s. Im surprised you can let it drop that low I get real anxious If I did. Do you carry a meter? Glucose tabs are good but I think you need to eat a carb and protein afterwards. I do eat the rice chex thats pretty good for the morning it gets me by for an hour and a half. I talked to my dr today and she said with gluten we all have malabsorption and because of that it makes our blood sugar worse. She said once we heal, we will have better blood sugar control! that was awesome news to hear very promising what do you think?

maelenebaby Newbie

One thing that may help is making sure you are getting some protein when you eat a carb or a sugary food. A nut butter, cheese if you tolerate it, nuts or meat of some kind. The carbs will raise your blood sugar fairly quickly but without a protein it will also crash it back down pretty quick.

thank you ravenwoodglass, yes I eat a carb and protein at each meal but still find I have to eat every 1.5 hrs it sucks.

maelenebaby Newbie

I have to say, most of what's been posted here would make my blood sugar swing around like a roller coaster. Rice chex with sugar?! Ugh, I get a headache just reading that.

**Caveat - what I am posting below assumes reactive hypoglycemia as the topic, NOT diabetic hypoglycemia. While there is a lot of overlap, there are some significant differences.

Blood sugar goes up in response to carbs that are digested in the stomach/intestines and released into the blood stream, right? Well then:

* Very quickly digested carbs (sugars, simple starches) = Very quick rise in blood sugar

* More slowly digested carbs (complex carbs like beans, some whole grains) = Medium speed rise in blood sugar

* Fats, protein, fiber = Slow rise in blood sugar

* Larger quantities of either of these categories = larger total rise in blood sugar (obvious, I know)

Speed of the blood sugar rise (and, subsequent fall when insulin starts sequestering glucose in the cells) makes a difference in symptoms.

I would *highly* recommend balancing EACH AND EVERY meal with carbs, protein, fat, and fiber. Do this over a long period of time (days, weeks, months) and the body can gradually (sometimes) go longer and longer between eating, because you're balancing out your blood sugar levels. So, that may mean that rice chex is off the menu. These days, if the rest of my eating is good, I can sometimes get away with a bowl of rice kix, but I have to use coconut milk (for the fat) to help balance out its effect. (And it's before I teach a morning yoga class, where I'm about to use a good portion of that blood sugar increase anyway.)

Breakfast might still be toast (mmmm... Udi's!), but with generous amounts of peanut butter. Or a banana, but paired with an egg. Yesterday was fried rice (leftover rice, scrambled egg, frozen veggies) for me. Sometimes it's hot cereal - but millet grits (more protein/fiber than cream of rice) with flax meal (for more fat/fiber).

It takes some time thinking about how to balance ALL your meals, but the more balanced they are, the more space there is for *small* excursions out of balance.

Hi there ur post makes a lot of sense, So since I eat rice as my carb and meat, what should I add for my fat? I try to add avacados but they get expensive. Since I have rice chex for breakfast should I add coconut milk as well? I also make fried rice but cant have eggs what should I add for fats?

maelenebaby Newbie

Yes, plain rice and potatoes gets old! Cream of Rice cereal is gluten free. It's pretty good. I add brown sugar and raisins to mine. Rice chex is good with cinnamon and sugar sprinkled on it and it makes the best marshmallow treats. I usually eat something every 3 hours. But in between that, I am always drinking something.

3 hours? thats awesome you are very blessed! that is my goal to go 3 hours without eating maybe in time...

Happyw5 Explorer

I don't know if I am hypoglycemic or not, however, if I don't eat the right foods I get super shaky and sick. My morning are the worst-I actually eat more then half of my calories for the whole day in the morning. I usually eat left over supper for breakfast, or I have udis toast with a can of white meat chicken and cheese. Then about 30 minutes later I have to eat something again so I don't get shaky. By afternoon and night I am fine to not eat much at all. Is this what hypoglycemia is like?

missy'smom Collaborator

I don't know if I am hypoglycemic or not, however, if I don't eat the right foods I get super shaky and sick. My morning are the worst-I actually eat more then half of my calories for the whole day in the morning. I usually eat left over supper for breakfast, or I have udis toast with a can of white meat chicken and cheese. Then about 30 minutes later I have to eat something again so I don't get shaky. By afternoon and night I am fine to not eat much at all. Is this what hypoglycemia is like?

You really should go in and get tested and not just accept this and hope it will go away as you heal. If you get tested and find out you will have the info. and tools to better manage it and feel better. It may go away as you heal but better to know so you can better manage it 'till then.

Happyw5 Explorer

I don't know if I am hypoglycemic or not, however, if I don't eat the right foods I get super shaky and sick. My morning are the worst-I actually eat more then half of my calories for the whole day in the morning. I usually eat left over supper for breakfast, or I have udis toast with a can of white meat chicken and cheese. Then about 30 minutes later I have to eat something again so I don't get shaky. By afternoon and night I am fine to not eat much at all. Is this what hypoglycemia is like?

Thanks, I know I should get it checked. But doctors think I am crazy at this point so I think I will hold off. They just put me on anxiety medicine-they think I am over stressed and my symptoms aren't "real"

maelenebaby Newbie

Thanks, I know I should get it checked. But doctors think I am crazy at this point so I think I will hold off. They just put me on anxiety medicine-they think I am over stressed and my symptoms aren't "real"

hey there i never got tested i went to an herbalist and she told me i had it. U dont have to go through that terrible fasting test to find out. u can just get a meter and randomly test when you feel shaky and if its below 70 then you are hypo. thats how i know i am. trust me i used to get anxiety real bad and they tried to put me on antidepressants. im glad i found out what was causing it. dont give up just eat when u feel anxious and youll be fine=)

bolddog Newbie

I find a low GI / GL diet helps greatly in avoiding hypos.

Things like Beans, Lentils, plain organic yoghurt and, of course, protein ( no I'm not a veggie :D )

With rice, potatoes and such I'll be a trembling wreck within a couple of hours without followup food

There are lots of sites around listing GI / GL for foods for example

Open Original Shared Link

Stellar003 Newbie

Pre-diagnosis I was not hypoglycemic, but I've found that now that I am gluten free...I get shaky in the morning if I don't instantly eat. So, I have to eat some protein quickly and then eat way more regularly than i used to. It's no fun, but that is how my nutritionist said to eat anyway. I live on rice cakes and almond butter. Also Lara bars are always in my purse. It sounds like i need to be tested again for blood sugar issues also....

  • 2 weeks later...
Evangeline Explorer

Thanks, I know I should get it checked. But doctors think I am crazy at this point so I think I will hold off. They just put me on anxiety medicine-they think I am over stressed and my symptoms aren't "real"

For those who are hypoglycemic, I would remove corn and soy from the diet entirely. Remember that corn is in EVERYTHING processed and has over 1000 different names. Type in "Corn allergy" to Google and see the list of different names/products. Many, many Celiacs are corn and soy intolerant and don't even know it. Many are also coffee intolerant. Try this type of diet and see if the hypoglycemia goes away.

  • 3 weeks later...
majones Newbie

Oh my goodness... you don't know how happy I am to find this. I've been so incredibly tired lately... I can barely get through school then come home and nap before work. I eat about five times a day as it is, with protein at every interval, but still I find myself dizzy, tired and completely worn out.

I went to the doctor the other day and she told me I am hypoglycemic. GREAT. I eat so much already, a good balance of fruits, vegetables, protein and good carbs, how am I suppose to eat more?!

It's good to see I'm not alone.

  • 1 year later...
jacobw Newbie

Does anyone get leg pains with either their celiac/wheat allergy and/or hypoglycemia?

  • 4 weeks later...
Em314 Explorer

I have similar issues as well and am in the same boat of having to figure out new "emergency foods." I'm doing the chex thing too (guess we all have the same thought process, lol!), and have also been using candy I know if gluten-free (M&Ms and Starburst)- which isn't ideal but works as a quick rescue, though long-term I suspect it perpetuates the problem. Have also over the years taken to chewing gum (somewhat compulsively) but I may have to switch brands (I'm researching that.) Only suggestion I've not seen yet is dried fruit. Little boxes of raisins are (for example) relatively cheap and portable.

I've in general found keeping a balanced diet helps (durrr) and also have found that knowing when I'm likely to get low blood sugar and eating prophylactically helps. ex. I know I will crash if I don't eat within an hour or two of exercising. As I exercise in the morning, this means I essentially have to have two breakfasts (I either eat again early at work, or if I'm heading out socially have something before going out the door.)

I've been very much hoping that the celiac is at least partly responsible for this and am hoping like heck it gets better or goes away completely, because it's really kind of ridiculous to have to eat this often. I get that small frequent meals are "supposed" to be healthier, but I don't think they're supposed to be medically necessary. :/

Darkfire Ann Newbie

I was dxed with this long before Celiac. Apparently MANY Celiac patients have this issue with blood sugar. I was also told alcohol makes it worse. I was a social drinker at the time. No more. I do not do much sugar and the only real starch I can eat is potatoes but I do not get sick of them ever. It used to make my SO's so sad/upset/scared. I would be starving then get so foggy I couldn't explain what I wanted to eat then I wouldn't be hungry anymore and almost faint. It is scary sometimes. I seem to be more stable these days.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,860
    • Most Online (within 30 mins)
      7,748

    Rena Celiac
    Newest Member
    Rena Celiac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.