Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Few Things I Have Learned While Dining Out


Rowena

Recommended Posts

Rowena Rising Star

So a few weeks ago, I went to Winger's, a western US restaurant chain, that has gluten free items. This was the second time going there, and the first time we had an excellent experience. The second time, I learned some very valuable lessons.

1. Tell them right as you enter that you are a gluten free diner.

2. Make sure you have a gluten free menu (duh)

3. Ask your server a million times if something they bring you is gluten free

4. Don't be shy or ashamed to ask

5. Double check BEFORE you taste your food

6. If your server doesn't know what gluten free is, explain a million times that you can only have certain things and they can't be touching anything that would possibly contain wheat/gluten

7. Don't go if you have important things the next few days....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



etta694 Explorer

Isn't eating out fun... ;) and full of surprises.. :o sigh..

I tend to just not go out. I haven't been out since January. (thank you for that reminder of how to do it.. I haven't actually done that yet.)

Meatballman Rookie

I used to love eating out.Diagnosed with Celiac last October.I hate eating out now I don't trust anyone even if they have a gluten free menu.My wife cooks everything I need at home now.We do go to P.F.Changs however they seem to be on the ball and I feel ok after eating there.I really miss being out and just popping in to any old place to get a bite to eat.

brendygirl Community Regular

Yes, I must say that I have had MANY safe and tasty gluten free dining out experiences, but I am all too aware that all it takes is one careless or unaware person...

Yesterday at Chadwick's, a restaurant in Alexandria, VA, (also in Georgetown) that I frequent, my cobb salad came to the table loaded on a tray where the plates were overlapping! And my bf's buddy's (whose meal came with toast)-the bread was tilted at the edge of the plate! And whose salad do you think was underneath? Mine, of course! What a sinking feeling... after thinking I did my best to prevent what I could.

I took care of it and got a nice salad without a problem, but it's like there are always new methods of cc popping up, even in the most tried-and-true places.

ndw3363 Contributor

I hate the look of pity I get from the server when I ask for the gluten free menu. Some places are very good about it (i.e. Stircrazy, Scotty's Brewhouse), but others just look at you like you're an alien. I hate not being able to go "just anywhere". I used to be very low maintenence....not anymore!! Bf has been great about it, but I'm SO frustrated (gluten-free for 3 weeks now). We used to love going out to eat a couple times per month. Now I dread it.

NateJ Contributor

if there is a phobia from eating out I for sure have it. I traveled for the last five years and I can't tell you how many times I would get sick from meals when no one else did. I always ordered safe stuff too, like red meet well done or salads. It took me a while to figure out that they were probably preparing the meals in pans or on counters that had been contaminated.

I remember in Maine I ate a famous diner called Governor's. It was in Presque Isle. Great food, fantastic service

but boy did they get me with something. No one else I ate with got sick, but the next day I had to fly home

and I must have stopped 6 times driving to find a bathroom and then i had to take like 4 imodium for the plane ride. After that I haven't eaten out but maybe once or twice since then. Its to nerve raking wondering what

those people in the kitchen are doing? are they wearing gloves? did they wash their hands? did they drop a spoon on the floor and not get another? did the teenager who brought my food touch it or sneeze on it?

ugh no thanks, i'll eat at home.

cap6 Enthusiast

if there is a phobia from eating out I for sure have it. I traveled for the last five years and I can't tell you how many times I would get sick from meals when no one else did. I always ordered safe stuff too, like red meet well done or salads. It took me a while to figure out that they were probably preparing the meals in pans or on counters that had been contaminated.

I remember in Maine I ate a famous diner called Governor's. It was in Presque Isle. Great food, fantastic service

but boy did they get me with something. No one else I ate with got sick, but the next day I had to fly home

and I must have stopped 6 times driving to find a bathroom and then i had to take like 4 imodium for the plane ride. After that I haven't eaten out but maybe once or twice since then. Its to nerve raking wondering what

those people in the kitchen are doing? are they wearing gloves? did they wash their hands? did they drop a spoon on the floor and not get another? did the teenager who brought my food touch it or sneeze on it?

ugh no thanks, i'll eat at home.

I agree! It they don't have a gluten-free menu and/or I don't feel 100% comfortable i won't eat there. Too much to worry about. At 1 year gluten-free I just feel like I don't have the time or energy to have a reaction and feel bad any more.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chili Apprentice

if there is a phobia from eating out I for sure have it. I traveled for the last five years and I can't tell you how many times I would get sick from meals when no one else did. I always ordered safe stuff too, like red meet well done or salads. It took me a while to figure out that they were probably preparing the meals in pans or on counters that had been contaminated.

I remember in Maine I ate a famous diner called Governor's. It was in Presque Isle. Great food, fantastic service

but boy did they get me with something. No one else I ate with got sick, but the next day I had to fly home

and I must have stopped 6 times driving to find a bathroom and then i had to take like 4 imodium for the plane ride. After that I haven't eaten out but maybe once or twice since then. Its to nerve raking wondering what

those people in the kitchen are doing? are they wearing gloves? did they wash their hands? did they drop a spoon on the floor and not get another? did the teenager who brought my food touch it or sneeze on it?

ugh no thanks, i'll eat at home.

hahaha I totally agree with you!! I dread going out to eat, I am too paranoid!!!

TSA Rookie

Eating out is tough! Even though you try to get a meal thats gluten free, things happen! I tend not to go out. I do want to try P F Changs though! I've had several people say that their gluten free food is right on a "normal" menu. My husband always makes a point of telling the host, waitress, waiter, manager or anyone there about needing a gluten meal. I try and not make a big deal out of it. Not easy!

NateJ Contributor

hahaha I totally agree with you!! I dread going out to eat, I am too paranoid!!!

well I ate out last night and not sure if I got gluttened mainly because my stomach has hurt everyday for

3 months now. I had D but thats not abnormal for me. It was my wedding anniversary and I wanted to take my wife out. oh well, i guess sometimes its going to happen no matter what you do.

RebeccaLynn Rookie

well I ate out last night and not sure if I got gluttened mainly because my stomach has hurt everyday for

3 months now. I had D but thats not abnormal for me. It was my wedding anniversary and I wanted to take my wife out. oh well, i guess sometimes its going to happen no matter what you do.

Went on vacation to Southern Utah with my hubby (not gluten-free) and just about cried after we went to 4 restaurants that wouldn't cater to gluten free. I even peeked in one of the kitchens to talk to the chef, and it was SO dirty, we walked out regardless of gluten-free or not. So we ended up trying Cafe Rio, hoping for a salad or corn tacos for me - but when I saw the grill, toaster oven and countertops COVERED in cheese & flour dust (I am severely lactose-intolerant as well), we got hubby a burrito & I went back to the condo for my homemade Gluten-free Casein-free enchilada I brought from home, feeling really depressed, deprived and frustrated.

I am struggling so much with trusting anyone else to touch my food.I guess I am glad to hear that others are feeling this as well.

NateJ Contributor

Went on vacation to Southern Utah with my hubby (not gluten-free) and just about cried after we went to 4 restaurants that wouldn't cater to gluten free. I even peeked in one of the kitchens to talk to the chef, and it was SO dirty, we walked out regardless of gluten-free or not. So we ended up trying Cafe Rio, hoping for a salad or corn tacos for me - but when I saw the grill, toaster oven and countertops COVERED in cheese & flour dust (I am severely lactose-intolerant as well), we got hubby a burrito & I went back to the condo for my homemade Gluten-free Casein-free enchilada I brought from home, feeling really depressed, deprived and frustrated.

I am struggling so much with trusting anyone else to touch my food.I guess I am glad to hear that others are feeling this as well.

Yes you are for sure not the only one. I get near panic attack at just the thought of eating out. Luckily my new job I can bring my lunch every day and eat it here. I think i've just been poinsoned to many times from all the traveling I did.

Some people i worked with could eat anything. Off the back of those cards or trucks in NYC, any airport restaraunt, fast food at all hours. Not me, If i even looked at a TAco Bell or Chillis, or buffet. I was bed ridden for 2 days.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.