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Celiac Vaccine Anyone?

Tigercat17

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Tigercat17 Enthusiast
Tigercat17
Posted

HI everyone,

I've been hearing a lot about the recent trails of the new celiac vaccine lately. It's sounds almost too good to be true. If it was approved by the FDA would anyone try it or would you just stick with the gluten free diet?

Myself, I'm a little skeptical. I was wondering what are the risks? And would it also cure an allergy to wheat? Since's it's so new - they are so many unanswered questions.... I would really have to think about it. Eating gluten free isn't so bad at all. It's a very healthy diet especially when you eat mainly fresh meats, fruits and veggies. It's just the cross contamination that gets me. :P

Ohhhhhhhh- but just thinking about going to my old favorite pizza shop makes me have second thoughts and eating without reading any label sounds like a dream come true.... :D

What do you all think?

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IrishHeart Veteran
IrishHeart
Posted

Personally, I'd wait until it was PROVEN in hundreds of celiac patients for MANY years before believing it would work. I am skeptical, too.

It's intriguing, but ....I could never be sick the way I was again.....not even for a taste of a gluteny bagel or pizza.

Actually, the ONLY thing I cry over is....my Mom's apple pie. That IS the BEST damn thing I ever ate in my life. I was born on Thanksgiving, and it was always my "birthday cake". And NO pie crust is like hers. It is orgasmic!! hehehe

If the vaccine REALLY works, I would get it and then, eat a whole apple pie made by Mom! :lol:

Mack the Knife Explorer
Mack the Knife
Posted

Because I don't have the DQ2 gene I'm feeling a little ambivalent about the whole vaccine thing... but that is a little selfish of me.

I do think it is fantastic that all their research is paying off and that they are actually getting somewhere with a treatment for Coeliac disease. Kudos to them and all their hard work!

I think that by the time it is ready to be released to the public the vaccine will be very proven. They're saying that the vaccine is at least seven years away from being made available so I'm sure that a hell of a lot more work will be going into it before then.

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ravenwoodglass Mentor
ravenwoodglass
Posted

No thanks. I'll stick to the diet that has no side effects and that I know is working. I've taken enough drugs in my lifetime already and had a few that were pulled off the market because it was discovered after folks had been on them for years that they were not safe.

shadowicewolf Proficient
shadowicewolf
Posted

no thank you, i've seen first hand what some vaccines do to people.

adab8ca Enthusiast
adab8ca
Posted

in a heartbeat, sign me up, first in line.

i am so sick of being sick

kellynolan82 Explorer
kellynolan82
Posted

Because I don't have the DQ2 gene I'm feeling a little ambivalent about the whole vaccine thing... but that is a little selfish of me.

I do think it is fantastic that all their research is paying off and that they are actually getting somewhere with a treatment for Coeliac disease. Kudos to them and all their hard work!

I think that by the time it is ready to be released to the public the vaccine will be very proven. They're saying that the vaccine is at least seven years away from being made available so I'm sure that a hell of a lot more work will be going into it before then.

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I don't have the DQ2 gene either. So it won't work for me :(

It will only work for 90% of the coeliac population (i.e. the people who have the DQ2 gene who are affected by the disease).

Do you possess the DQ8 gene by itself by any chance?

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Mack the Knife Explorer
Mack the Knife
Posted

I don't have the DQ2 gene either. So it won't work for me :(

It will only work for 90% of the coeliac population (i.e. the people who have the DQ2 gene who are affected by the disease).

Do you possess the DQ8 gene by itself by any chance?

No. I don't even have the DQ8 gene. I'm one of the 0.4% of Coeliacs who don't have either gene.

They'll probably come up with A DQ8 variant if the DQ2 vaccine is successful... but I suspect they won't bother for the very small minority that's leftover.... and that kind of sucks.

cassP Contributor
cassP
Posted

No. I don't even have the DQ8 gene. I'm one of the 0.4% of Coeliacs who don't have either gene.

They'll probably come up with A DQ8 variant if the DQ2 vaccine is successful... but I suspect they won't bother for the very small minority that's leftover.... and that kind of sucks.

i would imagine with the way the Big Pharma works- they'll just adapt it into the childhood vaccine schedule across the board- regardless of your genes.

ya, with 3 Autoimmune diseases- i'll forgo the vaccine.. really dont want another jolt to my immune system

Takala Enthusiast
Takala
Posted

This is under the same FDA that can't give this country a gluten free labeling standard, and under the same United States medical - industrial complex that can't diagnose people and if they do, they are still allowed to discriminate against them, right ?

If there is any way to screw this up so it would not work for me and cause dreadful side effects, they'll do it.

Then I'll have to take **** from "experts" on how irresponsible I'm being.

They know what they can do with themselves.

kellynolan82 Explorer
kellynolan82
Posted

No. I don't even have the DQ8 gene. I'm one of the 0.4% of Coeliacs who don't have either gene.

They'll probably come up with A DQ8 variant if the DQ2 vaccine is successful... but I suspect they won't bother for the very small minority that's leftover.... and that kind of sucks.

I have the DQ8 gene but not the DQ2. I wonder if gluten free options will decrease in shops as a result? :(

I also think people will go back to eating all the breads in the shop (which contain a multitude of other stuff such as soy flour, preservative E282, etc. and more.

People won't even think about food. It will all be about the EASE!

EASE EASE EASE!!!

I believe many may inflict themselves with an array of other food problems shortly afterwards.

rgarton Contributor
rgarton
Posted

It seems odd that they would create a vaccine when its so easy to not use wheat and gluten, considering the diagnosis is on the rise every year, (its more than 1/100 people now!) why would they invent a drug to stop your body telling you that it really doesn't like what your giving it. I always say go with your instincts if your body is telling you something is wrong listen to it. I wouldn't take the vaccine.

ravenwoodglass Mentor
ravenwoodglass
Posted

"The study found that the Nexvax2 vaccine was well-tolerated, although people who received larger doses experienced problems more often with nausea and vomiting; seven of the 19 subjects receiving medium and large doses of the vaccine reported nausea, including two who took anti-emetics and two who vomited after the first dose, and one subject receiving the largest possible dose of the vaccine withdrew from the study because of severe gastrointestinal symptoms.

However, Nexvax2 didn't appear to cause abdominal pain, diarrhea or abnormal bowel movements, since the incidence of those potential side effects was similar between the vaccine-treated and placebo groups, the study said."

Well I had a little more time today to look at the article. First off they only used 34 people for the study and a fairly high percentage of those had side effects. Also they appear to only be looking at GI symptoms so who knows what is going on in the rest of the body systems. What exactly are they vaccinating against? Celiac is autoimmune it is not like smallpox or polio it is a genetic difference. I think they are misusing the term vaccine it seems to me this is more of a treatment that they will look to sell to folks with celiac associated genes before symptoms arise. Since not everyone who has celiac associated genes will develop celiac in their lifetimes will they sell this as a wonderful product if given to young children because only X number of them later develop celiac when many of the children might never have developed celiac anyway?

I would imagine this is also going to be a very, very expensive vaccine and personally I won't touch it.

modiddly16 Enthusiast
modiddly16
Posted

I'd get the vaccine but only to help with getting sick when I was cross contaminated or accidentally glutened. I definitely wouldn't go back to eating gluten at this point in my life, I think my body would probably just reject it anyway BUT if getting the vaccine helped me feel better on those off days.....I'd be open to it!

IrishHeart Veteran
IrishHeart
Posted

No thanks. I'll stick to the diet that has no side effects and that I know is working. I've taken enough drugs in my lifetime already and had a few that were pulled off the market because it was discovered after folks had been on them for years that they were not safe.

I was not serious about taking the vaccine to eat Mom's apple pie. <_< Honestly, I have had the same experiences with drugs that Ravenwood has had...there's NO WAY IN HELL I would "TRUST" the FDA approval for Big Pharma drugs again. :angry:

It's the "symptom-treating", drug-loving medical profession that left me out to dry for 25 years. :unsure:

The ONLY relief I have had from all this madness has come from excluding gluten. Period. Someone on here said the coolest thing...to us, "gluten is like kryptonite'....and as far as I am concerned, This Supergirl can't fly when kryptonite is around.

I don't believe anyone's "promises" about medications anymore.

IrishHeart Veteran
IrishHeart
Posted

This is under the same FDA that can't give this country a gluten free labeling standard, and under the same United States medical - industrial complex that can't diagnose people and if they do, they are still allowed to discriminate against them, right ?

If there is any way to screw this up so it would not work for me and cause dreadful side effects, they'll do it.

Then I'll have to take **** from "experts" on how irresponsible I'm being.

They know what they can do with themselves.

Amen to that, sister!! ;)

chasbari Apprentice
chasbari
Posted

Dietary compliance isn't as difficult as they want us to believe. With all the autoimmune issues resolved for me by switching to SCD paleo based nutrition, I never want to go back. I really don't miss the good old days considering how all those" yummy foods" were making me so ill. It's bad enough that we have been one giant experiment in food modification over the decades and now this. Uh uh. No thanks.

sherrylynn Contributor
sherrylynn
Posted

No, I would not get it. I don't trust anything the FDA puts out or approves. Just look at Darvocet, The FDA said it was safe and had it on the market for years then stated that it was not safe after all and pulled it off the market. After my daughter was diagnosed with Autism, I don't trust anything they approve.

Like someone else said, Celiac is genetic for some people, how can a vaccine help that. Vaccines are for viruses, to build up antibodies to fight against a virus. Celiac, as far as I understand is not caused by a virus. It is an autoimmune disease, So how can they make a VACCINE against an autoimmune disease. I just don't think it is possible.

It scares me too that they might be wanting to play around with genetics. They are going to cause a lot more problems monkeying around with genetics. It almost feels like they are trying to play GOD. That is a dangerous game they are playing.

cassP Contributor
cassP
Posted

It seems odd that they would create a vaccine when its so easy to not use wheat and gluten, considering the diagnosis is on the rise every year, (its more than 1/100 people now!) why would they invent a drug to stop your body telling you that it really doesn't like what your giving it. I always say go with your instincts if your body is telling you something is wrong listen to it. I wouldn't take the vaccine.

its because of the potential profit

IrishHeart Veteran
IrishHeart
Posted

its because of the potential profit

YUP!! Like I said, BIG PHARMA...$$$$$$$$

There is NO money to be made if no one is in doctor's offices with health problems looking for a magic bullet to make the pain go away.

I have come to realize that "symptom- treating" (which is what mainstream medical doctors do in this country) is very lucrative.

Gosh, I have become such a cynic. I guess being misdiagnosed repeatedly for years...or worse, given drugs that created MORE problems for me will do that to a girl....

ravenwoodglass Mentor
ravenwoodglass
Posted

YUP!! Like I said, BIG PHARMA...$$$$$$$$

There is NO money to be made if no one is in doctor's offices with health problems looking for a magic bullet to make the pain go away.

I have come to realize that "symptom- treating" (which is what mainstream medical doctors do in this country) is very lucrative.

Gosh, I have become such a cynic. I guess being misdiagnosed repeatedly for years...or worse, given drugs that created MORE problems for me will do that to a girl....

I agree totally. When I think back about what my life and my childrens would have been like if I had been diagnosed when I developed DH as a child it just makes me so angry and sad.

I am healthier now than ever before in my lifetime and personally I stay as far away from doctors and all their drugs as I can.

Trust a vaccine for celiac, absolutely not.

Debbie B in MD Explorer
Debbie B in MD
Posted

no thank you, i've seen first hand what some vaccines do to people.

Me too. I know autism/Aspergers supposedly doesn't come from vaccines, but I think that is where my son's Aspergers came from.

cahill Collaborator
cahill
Posted

HI everyone,

I've been hearing a lot about the recent trails of the new celiac vaccine lately. It's sounds almost too good to be true. If it was approved by the FDA would anyone try it or would you just stick with the gluten free diet?

What do you all think?

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No thanks , I'm good :)I will stick with my gluten free diet.

GFinDC Veteran
GFinDC
Posted

...

Like someone else said, Celiac is genetic for some people, how can a vaccine help that. Vaccines are for viruses, to build up antibodies to fight against a virus. Celiac, as far as I understand is not caused by a virus. It is an autoimmune disease, So how can they make a VACCINE against an autoimmune disease. I just don't think it is possible.

....

That's what I don't get either. Vaccines stimulate antibodies, they don't suppress them. Now the viral gene modification things they have tried might have potential. We don't have enough zombies around after all!

Oh, no vaccine for me thanks.

The way I read the article on the study, it was mainly a test to see how well people reacted to different levels of the vaccine. It didn't reveal anything about effectiveness at all. Just tolerance to be able to survive different amounts of the vaccine.

Tigercat17 Enthusiast
Tigercat17
Posted
  • Author

YUP!! Like I said, BIG PHARMA...$$$$$$$$

There is NO money to be made if no one is in doctor's offices with health problems looking for a magic bullet to make the pain go away.

I have come to realize that "symptom- treating" (which is what mainstream medical doctors do in this country) is very lucrative.

Gosh, I have become such a cynic. I guess being misdiagnosed repeatedly for years...or worse, given drugs that created MORE problems for me will do that to a girl....

No, you're not a cynic Irishheart. I completely understand where you're coming from - you sound just like me! :D You're just being realistic. ;)

It is all about the BIG BUCK in this country and since celiac disease is on the rise someone wants to make a profit on it. :P

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