Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Official

Poppi

By Poppi
in Coping with Celiac Disease

Recommended Posts

Poppi Enthusiast
Poppi
Posted

What the heck? I love coffee. Love is in fact not a strong enough word to describe how I feel about coffee. Sweet brown nectar of the gods.

But I get this weird mini-gluten reaction to it. I'm fine, I drink a cup of coffee and about half way through I feel super sleepy, my stomach just get unsettled and nauseous and my back pain starts to flare up. It only lasts a couple of hours and luckily it passes and I don't deal with 5-10 days of inflammatory symptoms like I do with gluten but it still makes me sad.

I just went a full month with no coffee and then got my son to grab a cup from the shop across the street. Same reaction. :(

Oh well. Now I know, right?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

What the heck? I love coffee. Love is in fact not a strong enough word to describe how I feel about coffee. Sweet brown nectar of the gods.

But I get this weird mini-gluten reaction to it. I'm fine, I drink a cup of coffee and about half way through I feel super sleepy, my stomach just get unsettled and nauseous and my back pain starts to flare up. It only lasts a couple of hours and luckily it passes and I don't deal with 5-10 days of inflammatory symptoms like I do with gluten but it still makes me sad.

I just went a full month with no coffee and then got my son to grab a cup from the shop across the street. Same reaction. :(

Oh well. Now I know, right?

Sounds like the trial separation is going to end in a divorce. No more coffee for Sara! :(

kiwibird75 Newbie
kiwibird75
Posted

Oh Poppi! I feel your pain :( I go from a normal tummy to massive D with coffee, especially if it has milk in it (I know, duh, lactose...) but the coffee had to go. My coffee guy is probably noticing the lack of funds!

Tea is better for me, but not nearly as satisfying at the moment, but hopefully with time... right???

Chin up chicky - There are worse things in the world.

xx

K

txplowgirl Enthusiast
txplowgirl
Posted

Hi poppi, I have never been able to drink coffee because it also made me sleepy and sick to my stomach. I found that it has something called tannins in it as well as in cigarettes too. Anything with tannins in it does that to me.

adab8ca Enthusiast
adab8ca
Posted

crap crap crap

that is too bad...but at least you know (small teeny consolation)

Darn210 Enthusiast
Darn210
Posted

Poppi, just wanted to let you know that you are not alone as I have seen this on the board before (I'm not actually a coffee drinker, I prefer tea). I have seen that some people have successfully reintroduced coffee after giving their guts a chance to heal. Also, some have successfully switched to decaf instead as caffiene was the problem. You might want to try a milder roast or even just go with 1/2 a cup . . . but you might want to wait until you've been gluten free a little longer. I don't want to get your hopes up, just wanted to list a couple of possibilites.

Lisa Mentor
Lisa
Posted

\

I just went a full month with no coffee and then got my son to grab a cup from the shop across the street. Same reaction. :(

Oh well. Now I know, right?

What's the shop across the street? Does home brewed bother you also?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jungle Rookie
Jungle
Posted

Some coffee shops put msg in their coffee.

ElseB Contributor
ElseB
Posted

I've been gluten free for 3 years, very strict adherence to the diet, and now I'm suddenly having problems with coffee. It started last week. I get bad gas before I"m even halfway through the cup. I don't drink a lot of coffee, at most 4 cups a week, but I ENJOY those 4 cups!!! I like tea too, but I WANT MY COFFEE!!! I think I'll try a trial separation...maybe my gut is just cranky at the moment.

Poppi Enthusiast
Poppi
Posted
  • Author

What's the shop across the street? Does home brewed bother you also?

It's a Tim Horton's. I've also tried a local shop that roasts their own beans and a couple varieties of the Starbucks Via packets. Same reaction every time.

I haven't made any coffee at home since a month before I went gluten free because I was hooked on the Caramel Starbucks Via.

mushroom Proficient
mushroom
Posted

I haven't had any caffeine since 1972 :o but I drink decaf capucchinos all the time :lol: For me, it's the caffeine, so I drink herbal teas also, no coke!!

kareng Grand Master
kareng
Posted

It's a Tim Horton's. I've also tried a local shop that roasts their own beans and a couple varieties of the Starbucks Via packets. Same reaction every time.

I haven't made any coffee at home since a month before I went gluten free because I was hooked on the Caramel Starbucks Via.

You have a Tim Hortons across the street? Does that greasy donut smell drive you nuts? Not in a " I want donut" way. We loved them when we have been in Canada & not gluten-free, but they smell greasy.

Maybe give it a couple of months and try some plain home made coffee?

kareng Grand Master
kareng
Posted

Some coffee shops put msg in their coffee.

Who puts msg in coffee? What? Aghhhh!

But really, who does that?

Poppi Enthusiast
Poppi
Posted
  • Author

You have a Tim Hortons across the street? Does that greasy donut smell drive you nuts? Not in a " I want donut" way. We loved them when we have been in Canada & not gluten-free, but they smell greasy.

Maybe give it a couple of months and try some plain home made coffee?

Well it's not exactly across the street more like kitty corner from our back yard and there is an Earl's in between the Tim's and our house so we mostly smell their wood burning ovens which is quite nice.

  • 4 weeks later...
juj2003 Newbie
juj2003
Posted

Ohh- My first post here, and something I can actually help with (maybe).

If you have access to a Teavanna I would highly recommend their JavaMatte Tea. It is delicious and is reminiscent of coffee (also has the kick).

kareng Grand Master
kareng
Posted

Ohh- My first post here, and something I can actually help with (maybe).

If you have access to a Teavanna I would highly recommend their JavaMatte Tea. It is delicious and is reminiscent of coffee (also has the kick).

You may have the most significant & important post of the year! :D

Tea that tastes like coffee! :blink:

We will be expecting big things from you now! Welcome!

Adrienne2823 Newbie
Adrienne2823
Posted

After a full year I have just been able to tolerate one type of coffee: Folgers Simply Smooth. Every other type of coffee wrecks my gut so bad...

No Starbucks

No super strong coffee brewed at work either :P

But if you are willing, give the simply smooth a try.

kellynolan82 Explorer
kellynolan82
Posted

In terms of gluten free, you can never go wrong with long-black! Then you'll know for sure whether it's the impact of gluten :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. hjayne19
      - hjayne19 replied to hjayne19's topic in Traveling with Celiac Disease
      4

      Mallorca Guide

      This is great thank you very much @Scott Adams
    2. hjayne19
      - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      9

      Insomnia help

      Thank you so much @knitty kitty I really appreciate this information. I’m so thankful to have found this forum and this community. After reading the book “at last a life” that @cristiana recommended, I have been experiencing a lot more anxiety than I thought I was. This book really helped me put things into perspective. In terms of the B com...
    3. Celiac.com Sponsored Post
      4

      Little Northern Bakehouse: Top 5 Tips for Gluten-free Beginners

    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      5

      Help understand results

      "I'm wondering if she just hadn't eaten enough to test positive?" --> Because your daughter is "IGA deficient", the (gliadin IGA) test she was given could not work properly and the result of that particular test was meaningless. The amount of gluten she did/didn't eat would not matter for that part, whether or not she actually has celiac disease....
    5. cristiana
      - cristiana replied to cristiana's topic in Related Issues & Disorders
      6

      Healthy diet leading to terrible bloating

      That sounds very hernia inducing work! You confirm what I have suspected, I get pain just to the right of the umbilical hernia, I am sure there is a connection. If do see my gastroenterologist I'll mention it again. I can't help thinking I've also got an issue in my groin, perhaps a hernia threatening, I guess an ultrasound would be needed to confirm...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,988
    • Most Online (within 30 mins)
      7,748
    Nhlady
    Newest Member
    Nhlady
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • hjayne19
      Mallorca Guide

      By hjayne19 · Posted

      This is great thank you very much @Scott Adams
    • hjayne19
      Insomnia help

      By hjayne19 · Posted

      Thank you so much @knitty kitty I really appreciate this information. I’m so thankful to have found this forum and this community. After reading the book “at last a life” that @cristiana recommended, I have been experiencing a lot more anxiety than I thought I was. This book really helped me put things into perspective.    In terms of the B complex, do you have recommendations for amounts or any B complex should do? I am in Canada if that makes any difference for brands.    Also those articles are very helpful as well, thank you. I know 3 months is still early in the healing period but these tips are very helpful to hopefully feel physically better sooner than later! 
    • Aretaeus Cappadocia
      Help understand results

      By Aretaeus Cappadocia · Posted

      "I'm wondering if she just hadn't eaten enough to test positive?" --> Because your daughter is "IGA deficient", the (gliadin IGA) test she was given could not work properly and the result of that particular test was meaningless. The amount of gluten she did/didn't eat would not matter for that part, whether or not she actually has celiac disease. If instead she had had normal levels of IGA in her blood, then the question of how much gluten she was eating would become relevant.
    • cristiana
      Healthy diet leading to terrible bloating

      By cristiana · Posted

      That sounds very hernia inducing work! You confirm what I have suspected, I get pain just to the right of the umbilical hernia, I am sure there is a connection.  If do see my gastroenterologist I'll mention it again.   I can't help thinking I've also got an issue in my groin, perhaps a hernia threatening, I guess an ultrasound would be needed to confirm it.
    • Scott Adams
      Healthy diet leading to terrible bloating

      By Scott Adams · Posted

      For the Inguinal hernia I could definitely feel it, and it came with an obvious bulge that appeared soon after doing a project where I was drilling holes on concrete using a very old school regular hand drill with mason bit, instead of a hammer drill with mason bit--this left me squatting over the drill putting my weight on it for several hours (the hammer drill would not have required this level of stress, nor the time it took). Bad idea--learn from my mistake in being "lazy" and not renting (or buying) the proper tool for the job. My umbilical hernia was around for many years, and I didn't feel that one at all, so never worried about it. My doctor basically recommended doing both in one surgery, which seemed like wise move.  As far as the possible IBS connection to either, it was definitely apparent after getting the Inguinal hernia, which is why I asked my doctor about that, but after getting both fixed I realize that the umbilical hernia likely also had mild IBS effects over the years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.