Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can You Eat Gluten-Free Oats?


Skylark

  

52 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

Skylark Collaborator

With the 2007 FDA Gluten-free proposal open for comments, I got curious about how many of us can eat oats. This isn't a scientific survey, but I thought other people on the board might be curious as well. Please don't answer if you've only tried Quaker, McCann's or any other mass market brand because they are known to be CC with wheat. I'm curious if you can eat certified gluten-free oats like Bob's.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 54
  • Created
  • Last Reply
lynnelise Apprentice

I picked I might have reacted. I was eating Bob's for awhile and kept getting stomach aches so eliminated oats. Recently I was tempted by the Udi's granola and have been eating it for over two weeks without issue! So basically either just the Bob's didn't agree, the stomach aches were random or caused by something else (very likely), or I wasn't healed enough and still sensitive.

Funny thing is I never really liked oatmeal and lately I've been craving cinammon raisin oatmeal like crazy!!! The Quaker kind I used to get as a kid. I may breakdown and buy the Glutenfreeda flavored instant packs!

cahill Collaborator

I selected Might have reacted .

The last time I tried them was last fall. I had so many other issues (soy ,nightshades,eggs,gallbladder ect..)going on at that time I am just not sure.

I am considering trying them again when the weather turns colder ,,apple and cinnamon sound yummy :)

love2travel Mentor

As I mentioned on another thread I was told not to have even certified gluten-free oats for two years post my celiac diagnosis (must give my gut time to heal - not a gluten issue). Still unsure of that one. Anyway, previously I had been having oats regularly without any problems whatsoever. But then I have never had any obvious reactions even from gluten so how can I even tell??!!

zus888 Contributor

I was also told to eliminate all oats, including gluten-free for six months. I haven't been on the gluten-free diet for that long yet. But I'll be free to start them just in time for apple cobbler!

butterfl8 Rookie

I haven't tried any yet. But I'm so sensitive that I'm very scared to try! I'm two years past diagnosis, so I'm 'technically' allowed to try, but I can't afford the reaction if I do react (in grad school, not the best time to be hit by brain fog...!).

-Daisy

come dance with me Enthusiast

There are none available in Australia. Our health people are of the belief that even if America believes there are oats that are 99% gluten free it's not good enough to be available on our strict market. They may be labelled as low gluten (although we still don't have any) but not gluten free unless there's no trace of gluten at all.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Coleslawcat Contributor

I was told to wait 6 months before trying them. By then I was pregnant and I didn't want to chance a reaction so I waied until after I had the baby. I tried them about a year after going gluten-free without any trouble. I've been enjoying them since on a regular basis. I had a biopsy done a month ago to verify my damage was healed and I had a 100% normal biopsy so I can safely say the gluten-free oats are not causing me any sort of reaction at all.

Skylark Collaborator

Thanks for all the answers. Keep 'em coming! I totally understand people's reluctance to try. It took me two years to get up the courage. :lol:

kellynolan82 Explorer

Does oat intolerance have something to do with the DQ8 Coeliac gene? According to the Coeliac Vaccine being developed for DQ2 patients, it applies to the three peptides (1 (in wheat), 2 (in rye) and 3 (in barley))... :unsure:

Takala Enthusiast

I tried them accidentally in a chip that was not marked as having them, and I reacted. I was surprised. I haven't deliberately eaten them for .... I dunno, maybe 7 or 8 years ? I buy the certified gluten free ones for my husband, because he eats gluten free at home. I haven't really been that curious to re- test them on myself.

Re the proposed gluten free rule label FDA proposal-

It's like soy, or tapioca, or other common things that other people react to, when you hear about enough instances, you think, hmmm, maybe having the stuff labeled as to content is a good idea.

alex11602 Collaborator

I keep saying that I am going to try them, but I'm too chicken to actually do it. Before I went gluten free I loved oatmeal though so hopefully I wouldn't react to them (fingers crossed for whenever I get up the nerve to try them).

FooGirlsMom Rookie

At first oats bothered me, even Bob's Red Mill. About 6 months into being gluten-free, I was able to add them back on. I mostly use them to make treats (Cookies). I make the no-bake type with the peanut butter, added nuts, coconut, etc. Quite good. Kids love them and it slows the absorption of all the sugars because of the proteins & oats.

love2travel Mentor

There are none available in Australia. Our health people are of the belief that even if America believes there are oats that are 99% gluten free it's not good enough to be available on our strict market. They may be labelled as low gluten (although we still don't have any) but not gluten free unless there's no trace of gluten at all.

I find that very compelling and telling.

Skylark Collaborator

When I wrote Bob's about their oats, here is what they sent.

"Thank you for your inquiry. Our R5 ELISA Test allows for up to 20 parts per million, however, the majority of our products, including our oats, test below 5. Because the marker below five doesn’t specify where exactly any given batch falls, we simply consider it a trace amount (which is basically what 20 parts per million is, anyway). I must say, however, that even though our products generally test below 5, there is always a chance that they will test higher in different batches and we only guarantee that our Gluten Free Products test below 20 ppm."

They say below 5 doesn't specify how much gluten becasue 5 ppm is below the sensitivity of the R5 ELISA. In other words, most of their oats would be legal even under Australian standards.

Skylark Collaborator

Does oat intolerance have something to do with the DQ8 Coeliac gene? According to the Coeliac Vaccine being developed for DQ2 patients, it applies to the three peptides (1 (in wheat), 2 (in rye) and 3 (in barley))... :unsure:

Nope. I put the DQ2/oat research in your other thread.

eatmeat4good Enthusiast

I dutifully bought a bag of Bob's Red Mill Certified Gluten Free Oats.

That was 10 months ago.

They still sit on the shelf waiting for me to work up the courage to try them.

But it's kinda like planning a vacation only in reverse...

I have to plan for whole sick week to be able to try them.

They may stay there for a number of years but at least I have them.

One check off the gluten free bucket list!

Roda Rising Star

Well here is the thing with me. I can not eat certified gluten free oats at all! I reacted horribly to BRM. I also discovered that I can not eat any product that may have gluten free oat contamination in them. So that means all BRM products and anything else that may contain traces of them are out. I don't believe in my case that it is a matter of those oats containing traces of gluten. I truely believe that I have an avenin sensitivity (the protein in oats) and it causes me the same if not worse symptoms as gluten. The tests that test for gluten do not test for avenin so you have to go with your gut instinct. (I know bad pun :P:lol:) I'm convinced that this was the cause of my symptoms that lasted 8 months last year and caused me to develope a peptic ulcer. Luckily I figured it out and I'm all better now and avoided having to take steroids.

kellynolan82 Explorer

There are none available in Australia. Our health people are of the belief that even if America believes there are oats that are 99% gluten free it's not good enough to be available on our strict market. They may be labelled as low gluten (although we still don't have any) but not gluten free unless there's no trace of gluten at all.

Just to clear things up a little bit. In Australia, it is ILLEGAL to label anything as "GLUTEN FREE" unless the following conditions are met:

NO Detectable Gluten (i.e. currently <3ppm detectable gluten)

NO Oats

NO Malted Cereals that contain Gluten (i.e. Wheat, Rye, Barley, Oats, Spelt, Triticale).

It is ILLEGAL to label anything in Australia as "LOW GLUTEN" unless the following conditions are met:

NO more than 200ppm Gluten

NO Oats

NO Malted Cereals that contain Gluten (i.e. Wheat, Rye, Barley, Oats, Spelt, Triticale).

Manufacturers may claim that their foods contain gluten, are high in gluten, or are a source of gluten.

All other claims in relation to gluten content of food are illegal (some examples of this include "gluten friendly", "gluten-less", "not gluten free", etc.)

Oats can be labelled as wheat free and if this is the case, they are most likely pure. Many Australian oats are pure and many bare the "wheat free" label. Freedom Foods and a couple of other companies sell them in the health food aisle of Woolworths and Coles supermarkets.

Thought I'd clear up the LAW for you all. :rolleyes:

love2travel Mentor

Just to clear things up a little bit. In Australia, it is ILLEGAL to label anything as "GLUTEN FREE" unless the following conditions are met:

NO Detectable Gluten (i.e. currently <3ppm detectable gluten)

NO Oats

NO Malted Cereals that contain Gluten (i.e. Wheat, Rye, Barley, Oats, Spelt, Triticale).

It is ILLEGAL to label anything in Australia as "LOW GLUTEN" unless the following conditions are met:

NO more than 200ppm Gluten

NO Oats

NO Malted Cereals that contain Gluten (i.e. Wheat, Rye, Barley, Oats, Spelt, Triticale).

Manufacturers may claim that their foods contain gluten, are high in gluten, or are a source of gluten.

All other claims in relation to gluten content of food are illegal (some examples of this include "gluten friendly", "gluten-less", "not gluten free", etc.)

Oats can be labelled as wheat free and if this is the case, they are most likely pure. Many Australian oats are pure and many bare the "wheat free" label. Freedom Foods and a couple of other companies sell them in the health food aisle of Woolworths and Coles supermarkets.

Thought I'd clear up the LAW for you all. :rolleyes:

That is absolutely wonderful. I cannot wait until Canada's labeling laws change next summer! They are pretty darned vague at the moment. Some companies are better than others, of course, but we need it to be standardized! No gluten at >3 ppm is certainly better than 10-20 ppm. They obviously know what they are talking about there. :)

Ahorsesoul Enthusiast

I've tried the gluten free oats. I know they were not Bob's (hate Bob's anything) and they were not Quacker's. I'd have to go to the store to see the brand name. They were about $8 for a little package. The oats bother me just like it had gluten. No to oats here.

BethJ Rookie

I admit I'm afraid to try them. I was getting sick from steel-cut oats months before I found out I had a problem with wheat. I couldn't figure out why something so "healthy" was making me spend the rest of the day in the bathroom.

I realize the certified gluten-free oats should be okay but I can't bring myself to take a chance on them.

sb2178 Enthusiast

I react. Not as badly, but I tried them several times thinking it might be something else. This was post-normal bloodwork, after 6 months.

Bubba's Mom Enthusiast

i'm so new to gluten-free that I'm afraid to try oats of any kind! :blink:

Skylark Collaborator

Thought I'd clear up the LAW for you all. :rolleyes:

Thanks, Kelly!

It's nice that no oats can ever be labeled gluten-free, but a wheat-free label is allowed. I wish the proposed US laws were as sophisticated as you have in Australia.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    4. - Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    5. - Florence Lillian replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fermented foods, Kefir, Kombucha?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,911
    • Most Online (within 30 mins)
      7,748

    AngieMcK24
    Newest Member
    AngieMcK24
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
    • Florence Lillian
      I have had celiac for many years and still had terrible digestion. I cook from scratch, never eat anything with gluten ( A Gut that needs special attention seems to affect many who suffer from celiac) .  I made my own Kombucha, it helped my Gut much more than the yogurt I made but I still had issues. Water Kefir did nothing. As a last resort I made MILK Kefir and it has really started healing my Gut. It has been about 2 months now and I am doing so much better. It was trial and error getting the right PH in the Kefir ferment that agreed with my stomach, too little ferment, too much, I finally hit the right one for me. Milk Kefir has the most probiotics than any of the other. I can't find my notes right now but there are at least 30 probiotics in Kefir, Kombucha has about 5-7 and yogurt around 3 if I recall correctly.  I wish you all the best, I know how frustrating this condition can be. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.