Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am So Mad!


ACopsWife

Recommended Posts

ACopsWife Rookie

I am from the Quad Cities (IA/IL border) I was in Madison, WI yesterday for work and we ate at Clauddaugh Irish Pub. I ordered a Steak Sandwich, no bread and I told the waitress it was for dietary needs perscribed by the doctor. She comes back and says they can not do it because it is a new menu item and it has to be prepared the same way for 30 days. We asked if this came from the manager and she said YES. I was so upset I was almost in tears. So I got a burger plain (HOW BORING!) So after my meal I asked to speak with the manager to express my frustration. We explained we are in the restaurant business (Corporate Side) and understand the need for consistency but you need to be accomodating to guests needs. He was very non-apologetic and said they do make exceptions for special dietary needs but he didn't know that was why I couldn't have the bread! He made it seem like it was my fault. I cleary stated it was doctor perscribed.

UGH!! I just needed to vent. This has been hard for me as it is and then this...How frustrating. I think I need to get a dining card, do you know where I can get one!

Thanks

Heather


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Here are some restaurant cards you can get:

Open Original Shared Link

I understand it is frustrating and there are encounters like that we will get.

Ordering something with no bread you have to make sure that the bread never touches what you eat because if they just take it off of the burger then it will be contaminated. It will always be a risk to eat out if the place serves gluten so just be prepared of that too.

Guest nini

Open Original Shared Link

has .pdf files of printable dining cards in both English and Spanish for free.

elonwy Enthusiast

I got my dining card from the celiac sprue association's intro packet.

Its more in depth than the other ones, and makes recommendations for what you CAN have too, which i like.

www.csaceliacs.org

hth

Elonwy

macman Rookie
I am from the Quad Cities (IA/IL border) I was in Madison, WI yesterday for work and we ate at Clauddaugh Irish Pub.  I ordered a Steak Sandwich, no bread and I told the waitress it was for dietary needs perscribed by the doctor.  She comes back and says they can not do it because it is a new menu item and it has to be prepared the same way for 30 days.  We asked if this came from the manager and she said YES.  I was so upset I was almost in tears.  So I got a burger plain (HOW BORING!)  So after my meal I asked to speak with the manager to express my frustration.  We explained we are in the restaurant business (Corporate Side) and understand the need for consistency but you need to be accomodating to guests needs.  He was very non-apologetic and said they do make exceptions for special dietary needs but he didn't know that was why I couldn't have the bread! He made it seem like it was my fault.  I cleary stated it was doctor perscribed.

UGH!! I just needed to vent.  This has been hard for me as it is and then this...How frustrating.  I think I need to get a dining card, do you know where I can get one!

Thanks

Heather

<{POST_SNAPBACK}>

I am surprised you stayed there and gave them any of your money. I had a frustrating experience at a Tony Roma's in NV. Their website say they are gluten-free. The restaurant said no-so I said bye-bye and told them I was headed to Outback.

Sorry you had that experience....

pixiegirl Enthusiast

I've read about similar experiences on these boards, I'm very thankful they have never happened to me. But I do agree with the poster that said, why did you stay? Probably you had other people in your party that wanted to stay but even so... there had to be other places that you'd all like that would be more accomodating. I make it a point to never go to places that won't work with me and to frequently visit the places that do. I'd never pass my money out to a restaurant like that.

Lastly, I think when the server told you that you should have politely said, Could you ask the manager to come to our table for a minute? However I'd be afraid in a place like that, that they would make it in the normal way and then take the bun off.

Oh well, I'm sorry you had such a rotten experience.

Susan

Canadian Karen Community Regular

I would have pointed out to the manager that they had better wake up and smell the gluten free coffee. I would have pointed out the high incidence of celiac disease in the Irish population and if they want to stay competitive in the restaurant business during the "celiac disease diagnosis revolution", they better be more accomodating......

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I would have just said "It doesn't matter if YOU don't know why I can't have it - my doctor knows. As you've just stated you have a policy allowing the chef to make dietary accomodations, why are you discriminating against me in particular in applying that policy?"

  • 2 weeks later...
Dittenheim Newbie

Hi "Cop's Wife"

I had a very similiar situation last summer in Rhode Island (see the string I started "Discrimination").

I wrote a letter to the restaurant and never got a reply, so I wrote to the RI Commission of Human Rights who felt it was an important issue and instigated a suit on my behalf against the restaurant. Unfortunately, according to the ADA regulations no special accommodations or considerations need to be made for dietary restrictions, so the suit was denied.

A substitution of something else that is also on the menu and/or a willingness to leave something off the serving to protect our health is a very small concession for any restaurant to make. It's the difference between being dietary friendly and dietary hostile.

Anyway, give us the address of the restaurant you had your problem with and I will write a letter of complaint, as, I'm sure, many others will.

Restaurants that are so unaccommodating need to be publicized. There are enough of us (especially when you add in our non gluten-free family members who eat out with us) to make an impact on a restaurant's bottom line.

We need to share the replies (or lack thereof) we get back from the restaurants to see what effect our correspondence has on them. Not too many will be as dietary friendly as Outback, but some, I'm sure, will realize they need to be less dietary hostile and will change their policies - if only to allow substitutions when necessary.

Those which refuse to allow any concessions should be placed in a "Hostile Restaurants" list and we should boycott them.

- Dittenheim

PreOptMegs Explorer

It is situations like these that scare me away from eating out... I ate at Outback for the first time since my diagnosis. I was so scared of cross-contamination, I almost forgot to enjoy the food, but today I feel great and the waitress was so nice and considerate. I am not going to make it a habit, but it was nice to have a gluten-free meal outside of home....

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,099
    • Most Online (within 30 mins)
      7,748

    BothySmithy
    Newest Member
    BothySmithy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • hjayne19
      Hi @knitty kitty  Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else. 
    • xxnonamexx
      I have taken the vitamins for a week. Haven't noticed any major changes but I will give it more time to see.
    • knitty kitty
      @Charlie1946,  Sorry I sidetracked your thread a bit.  Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over.  Have you been checked for SIBO?  There's a significant link between length of Omeprazole use and SIBO.  I had SIBO, thrush (Candida) and lichen planus and other problems while I was on Omeprazole.  I had to stop taking it.  It was a horrible time, so I understand how painful and frustrating it is.   You change your microbiome (the bacteria and microbes living inside you) by changing what you eat.  They eat what you eat.  Change the menu and you get different customers.   I changed my diet.  I cut out dairy because I was reacting to the casein and lactose.  I cut out all processed foods and most carbohydrates. I ate meat and veggies mostly, some fruit like apples and mandarin oranges.  By cutting out all the excess carbohydrates, lactose, and empty carbs in processed gluten-free foods, the opportunistic microbes get starved out.  SIBO bacteria send chemical messages to our brains demanding more carbs, so be prepared for carb cravings, but don't let the microbiome control you!   The skin and digestive system is continuous.  The health of our outside skin reflects the health of our gastrointestinal system.  Essential B vitamins, like Thiamine B 1 and especially Niacin B 3, are needed to repair intestinal damage and keep bad bacteria in check.  Niacin helps improve not only the intestinal tract, but also the skin.  Sebaceous Hyperplasia is linked to being low in Niacin B 3.  Lichen Planus is treated with Niacinamide, a form of Niacin B 3.   Vitamins are chemical compounds that our bodies cannot make.  We must get them from our food.  If our food isn't digested well (low stomach acid from Omeprazole causes poor digestion), then vitamins aren't released well.  Plus there's a layer of SIBO bacteria absorbing our vitamins first between the food we've eaten and our inflamed and damaged villi that may have difficulty absorbing the vitamins.  So, taking vitamin supplements is a way to boost absorption of essential nutrients that will allow the body to fight off the microbes, repair and heal.   Doctors are taught in medical learning institutions funded by pharmaceutical companies.  The importance of nutrition is downplayed and called old fashioned.  Doctors are taught we have plenty to eat, so no one gets nutritional deficiency diseases anymore.  But we do, as people with Celiac disease, with impaired absorption.  Nutritional needs need to be addressed first with us.  Vitamins cannot be patented because they are natural substances.  But pharmaceutical drugs can be.  There's more money to be made selling pharmaceutical drugs than vitamins.   Makes me wonder how much illness could be prevented if people were screened for Celiac disease much earlier in life, instead of after they've been ill and medicated for years.   Talk to your doctor and dietician about supplementing essential vitamins and minerals.   Interesting Reading: The Duration of Proton Pump Inhibitor Therapy and the Risk of Small Intestinal Bacterial Overgrowth: A Systematic Review and Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC12250812/#:~:text=The long-term use of,overgrowth dynamics is less clear. Lichenoid drug eruption with proton pump inhibitors https://pmc.ncbi.nlm.nih.gov/articles/PMC27275/ Nicotinamide: A Multifaceted Molecule in Skin Health and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC11857428/
    • Lkg5
      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.