Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Worse Reaction With Certain Foods?


espresso261

Recommended Posts

espresso261 Rookie

Does anyone seem to have worse reactions to gluten in certain foods vs others? I seem to react a lot worse to pasta, soy sauce, savory or fried foods than i do to cake or cookies. Is this possible or could it be my imagination? My symptoms with cookies and cake seem to be nearly nonexistant, while my reactions to the others leave me incredibly bloated, exhausted, body aches etc. I thought maybe its from the oil, but i can have oil without gluten (cooking foods in oil or as salad dressing) and be perfectly fine.

Does this happen to anybody else?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

Yup, I most definitely did. Reasons for my issues, best I can tell:

1. Some of my gluten-free foods actually contained foods I turned out to be allergic/intolerant to. It often gave me gastro, which I would think was gluten, but turned out to be this. No hives or anything. Only really showed up after I went gluten free. I had no trouble with it before. gluten-free soy sauce was one of those with me.

2. Some brands I had trouble with vs. other brands.

When you've been trying the oil, did you eat it in the same amounts as you'd get with your fried foods, by any chance?

Skylark Collaborator

I used to be that way too. Rich foods were far worse than bread for a quick IBS style reaction.

rosetapper23 Explorer

Some of us suffer the worst destruction to our intestinal lining from gluten combined with hot or spicy peppers. I'm still recovering from such a glutening that happened in April 2010. I'm beginning to think that the lining will never regenerate...and I'll be left having certain nutritional deficiencies for life.

CR5442 Contributor

Yes, I had really bad reactions from things like Pizza, where flour dough is only just cooked. I seemed okay GI wise with things like shop bought cakes and croissants. However, I would always have the upper intestinal bloat and swing from D to C and back again no matter what I ate. Also things like Lasagne would always make me feel worse. I think it might be combining the gluten with lactose based cheese/bechamel etc. I always felt like the lasagne was going to come back up again. I think with shop bought cakes the temps they heat them to must somewhat degrade the proteins in the gluten...

Skylark Collaborator

Nah, you pretty much have burn gluten into soot to get rid of the peptides that give us trouble. Baking temps won't do it.

You have a great point about gluten and diary together. Pasta with a cream sauce would always kill me worse than tomato sauce, McDonalds burgers with cheese were bad, and things like pizza and lasagna were also iffy. I was dairy intolerant when I first went off gluten so that makes a lot of sense.

Jenniferxgfx Contributor

I haven't been able to eat fried foods for years! Fried foods would give me such violent D and GI pain that I thought it was a fatty food intolerance. I ate a very low fat diet (much too low, I'm learning now, as the brain needs fats!) and avoided fried foods except an occasional French fry from my husbands plate ate a restaurant. My gall bladder wasnt diseased, but it hurt often. I never had trouble with cakes or breads like I had with fatty food.

I go gluten free, and one of my first symptoms includes gall bladder pain when I'm glutened. But now that I'm gluten free, I can eat fat! I can eat fried potatoes! No reaction! ...and when I tried to trust a restaurant's "gluten free" fries, I had a terrible reaction. To date, my worst reactions from cc are from fatty foods with cc. I'm convinced it's just the way my body responds-- maybe my leaky gut is specifically leaky with fat carrying the gluten, but I didn't have the same reaction to bread or cheeseless pizza (long time vegan here), as long as it wasn't greasy. Throw some grease in there and I'm down for the count.

It turns out I'm pretty sensitive to cc, but I can eat normal food, as Long as it's gluten-free. it's so nice to eat peanut butter again, too!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



srall Contributor

Yes...that's weird that you mention it. Since I've been gluten free, one time I was glutened from a soup (clam chowder which would have had two of my culprits: dairy and gluten) and ended up in bed for 3 weeks, with joint pain and a DH rash.

And soy sauce made me extremely sick when I ate it (before I went gluten free). I had a hard time figuring that one out, and figured it must be the sushi that made me sick.

After I decided I could never ever eat gluten again, I somehow thought I could eat one bite of cake at a party and as far as I know, no reaction at all. I guess it was a pretty tiny bite.

But after that I have never cheated. It's just not worth it.

rainer83 Newbie

For me, towards the end of my gluten days, everything was causing the worst reactions ever. Before that though, it was mainly cereals, pasta, breads. Cookies or cakes, not so much, I could get away with it. By the end, everything was doing it. I remember my last thing to eat with gluten purposely was a shortbread cookie, and I was so sick from it, I really thought I was going to die, the pain was terrible.

saintmaybe Collaborator

The fastest reactions I have are from things like mexican food, where the combination is flour + grease. I had On the Border a few weeks ago, and ordered from their gluten free menu. Still got sick as a dog, because I believe they forgot to switch out the flour tortilla for a corn one. That, or they cooked all the fixins' in the same oil as everyone else's food, which would do it, too.

McDonalds cheeseburgers usually without fail gave me a reaction pre-diagnosis. For the longest time, I thought it was the CHEESE, and took dairy pills when I went. Now I think there's something about the composition of the burger bun that's deadly for me.

Scones are also bad- I used to order them all the time from starbucks. They're basically just flour and water. *Ouch* I thought I was lactose intolerant from all of my lattes I was drinking. Not ONCE did it occur to me it was the scone. Who thinks about wheat trying to kill you?

Skylark Collaborator

Scones are also bad- I used to order them all the time from starbucks. They're basically just flour and water. *Ouch* I thought I was lactose intolerant from all of my lattes I was drinking. Not ONCE did it occur to me it was the scone. Who thinks about wheat trying to kill you?

Don't you mean flour and butter? :P Butter is the second ingredient in Starbuck's scones. I don't have fond memories of croissants either. They made me bloated and kind of ill-feeling. Naturally my Dr. told me the problem was gastric irritation from coffee, not the croissant.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.