Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten-Free But Still Reacting Bad

Gimpwithacause

Recommended Posts

Gimpwithacause Newbie
Gimpwithacause
Posted

Hey guys, So I've been really trying to stay gluten free for the past year, and my stomach has become unpredictable on whether it will have a bad reaction or not. It could be totally gluten free and my stomach will still react as if I just ate a roll or doughnut...I don't know what to eat and not eat when it IS gluten-free....I keep getting terrible gas that is terrible to get rid of and have not found a fix for it yet. PLEASE HELP ME! My last stomach ache lasted for 7 hours when I was eating regular food. If you have an answer for this delima that would be awesome! Thanks again
:D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

Are you still eating dairy? That's the first thing to cut out and if that doesn't work try cutting out soy.

Wenmin Enthusiast
Wenmin
Posted

Try a probiotic like Align for a couple of months. I was having problems for a while when I decided to get on Align. I've been on Align for 2 months now and feel much better. Got rid of the terrible gas bouts. I could no longer have any dairy due to severe stomach cramps. After a month on Align, I can now eat frozen yogourt. Give it a try, it might help.

Wenmin

Coolclimates Collaborator
Coolclimates
Posted

so sorry to hear what you're going through. I've been gluten free for 1 1/2 years and my antibodies are still sky high. Fortunately, I don't have GI issues (other than acid reflux which has improved) but am so tired all the time. It's so frustrating!

GlutenDude Newbie
GlutenDude
Posted

Are you still eating dairy? That's the first thing to cut out and if that doesn't work try cutting out soy.

I agree! I've been with celiac for five years and in the last month I've given up both dairy and soy. Definitely feel a bounce back in my step.

dilettantesteph Collaborator
dilettantesteph
Posted

Some of us, super sensitive celiacs, react to lower levels of gluten than the rest. There is a section on this forum about that. You could try a diet of meat and produce for a week or so to see if that helps.

Gimpwithacause Newbie
Gimpwithacause
Posted
  • Author

I agree! I've been with celiac for five years and in the last month I've given up both dairy and soy. Definitely feel a bounce back in my step.

I am deffinately going to have to try that! I do remember something about I have the milk thing too, and I hadn't though much about the soy. Thanks :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MJ-S Contributor
MJ-S
Posted

Try a probiotic like Align for a couple of months.

Last time I checked Align contains dairy. I use a dairy, soy, gluten (obviously) free probiotic. Works for me.

ravenwoodglass Mentor
ravenwoodglass
Posted

Hey guys, So I've been really trying to stay gluten free for the past year, and my stomach has become unpredictable on whether it will have a bad reaction or not. It could be totally gluten free and my stomach will still react as if I just ate a roll or doughnut...I don't know what to eat and not eat when it IS gluten-free....I keep getting terrible gas that is terrible to get rid of and have not found a fix for it yet. PLEASE HELP ME! My last stomach ache lasted for 7 hours when I was eating regular food. If you have an answer for this delima that would be awesome! Thanks again
:D

When you say you have "been really trying to stay gluten free for the past year" does that mean that you have been having some slip ups? If you have you could be having delayed reactions to those rather than to what you just ate. It is a good idea to delete soy and dairy for now to see if those are an issue. Also make sure you are doing all you can at home to be safe. Dedicated gluten-free toaster, strainer, condiments, nut butters etc if you share a home with gluten eaters. Avoid restaurants and processed food for a while also to make sure you are not getting cross contamination from those and so that you have the most control you can about how processed your food is. If you go with mostly whole unprocessed foods that will help you heat the fastest.

heidi g. Contributor
heidi g.
Posted

sounds like you have a pinch of leaky gut syndrome. your stomach is not fully healed. imagine an inflamed belly you need to soothe it. certain foods even in the gluten free diet can be irritating. avoid salt, refined sugar, carbonating drinks, heavy meats, raw vegetables. you need to heal your gut. take L- glutamine 1 hour before breakfast and 1 hour before dinner. after eating take 3 papaya tablets. take a multivitamin (i would recommend childrens gummy gluten free vitamins because adult vitamins have a higher dosage of iron which can make you constipated and were trying to f lush your system out faster) after two weeks take a probiotic (in a capsule not yogurt stay away from dairy for now) for 2 weeks. if the probiotic makes you feel sick (a definite sign of an inflamed gut) and wait another two weeks before trying it again. your body needs to heal. this sounds silly but take a hot bath. its like putting ice on a wound it will soothe your digestive system and will soothe the stress of daily life and the disease. drink hot tea at least once a day i recommend chamomile and ginger herbal tea. eat plain for 2 weeks. plain rice with steamed vegetables, eat rice chex like their chips for a snack, eat only cooked vegetable, stay away from refined sugar. this is only the healing diet. after 2 weeks introduce heavier (make sure their gluten free) foods and make sure the meats do not have antibiotics in them because that destroys your gut it doesn't heal it. sip on cold water. they put ice on swollen wounds correct? well stomach is inflamed so i would believe on sipping on cold water but not drinking large quantities of cold water for its bad for digestion. when drinking with or after meals drink room temperature water. its time to take your life back. i hope this helped

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    2. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      Food and environmental allergies involve IgE antibodies. IgE antibodies provoke histamine release from mast cells. Celiac disease is not always visible to the naked eye during endoscopy. Much of the damage is microscopic and patchy or out of reach of the scope. Did they take any biopsies of your small intestine for a pathologist to examine? Were...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting! The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac...
    4. trents
      - trents replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Finding gluten free ingredients

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes.
    5. knitty kitty
      - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      6

      Gluten related ??

      @Colleen H, I have had similar reactions and symptoms like yours. I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. Her book, The Paleo Approach, is very helpful in understanding what's going on in the body. Not only do you have antibodies attacking the body...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
    • knitty kitty
      Gluten related ??

      By knitty kitty · Posted

      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.