Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Hate Celiac Disease

DonnaMM

By DonnaMM
in Coping with Celiac Disease

Recommended Posts

DonnaMM Explorer
DonnaMM
Posted

As relieved as I was to figure out what was wrong with my stomach. I absolutely hate this condition. It makes me realize life really is not fair! I hate that a crumb has me running to the bathroom, it does not seem natural. I hope all this people without food allergies or intolerances understand how lucky they are. Just needed to vent thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFreeMO Proficient
GFreeMO
Posted

I couldn't agree more!

Booghead Contributor
Booghead
Posted

Well good for venting. At first I thought you said "I hope all these people WITH food allergies or intolerances understand how lucky they are". Then I typed up a huge reply scolding you for not thinking allergies are serious (as I am a sufferer of severe seasonal allergies). Thank heaven I read your post again before I yelled at you. LOL B)

gary'sgirl Explorer
gary'sgirl
Posted

It does really feel that way. This health problem has been life altering for my family and I. Not all bad though.

Hope you feel better about things soon. :)

Marilyn R Community Regular
Marilyn R
Posted

I understand the need to vent, and this is a good place to do it. Hopefully you'll find peace with it. I resented it so much at first, turned my life upside down.

I'm really glad I don't have M.S. or Lupus though, because that's what my doctors were testing for, along with other diseases.

Give yourself a while to deal with it, it gets better. Being pissed off about it at first is normal. With time it gets better or you get used to dealing with it better, and for me it has become a game. The "What Can I Eat that is Absolutely Delicious" game, or "What Can I Cook Quickly That Won't Make Me Sick Game"?

I found a recipe for shrimp marinated in Thai red curry sauce mixed with oil today. You broil the shrimp and serve it over rice with some basil. I get a kick out of growing my own herbs and cook rice in big batches to refrigerate or freeze leftovers, so that was a winner recipe!

I agree, it's not fun, you can't be "normal" with friends and family, but it's good to know what ails you with a fairly easy fix and some pre-planning.

sahm-i-am Apprentice
sahm-i-am
Posted

I hear ya Donna! It took a long time to find my new normal and I was all sorts of angry and resentful. Now I am at peace with the whole thing. Of course, as far as problems with Celiac, I've had it easy compared to so many on this forum. I think that if my undiagnosed Celiacs causes future health problems like Diabetes or lymphoma I may cry and be angry at it all over again. Baby steps I guess...

Hugs to you Donna. This place is full of people that know and feel your frustration.

love2travel Mentor
love2travel
Posted

We understand! It took me a good few months to come to terms with my celiac diagnosis. Now it is just second nature. Sure, it can be very difficult in social situations but not on a daily basis. I teach cooking classes so I was not happy making that initial radical change but now have found that more and more people require such classes and information so in a way it is also a blessing. :P

Take the time you need to grieve.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beebs Enthusiast
beebs
Posted

It annoys me sometimes too, although its sort of second nature now, I think after you just get used to it ya know?

Skylark Collaborator
Skylark
Posted

I thought celiac was a pain until my Hashimoto's got bad. Celiac has an off/on switch, and though I don't much like cooking everything that goes into my mouth and hardly ever eating out, at least I can control it. I feel helpless with the thyroid autoimmunity. :(

Sarah P Rookie
Sarah P
Posted

I have been gluten free 100% for a little over a month and I stll have sever pain. Although it isn't consitant like it was, there are still days I feel like I am being stabbed in the back and like I am having a heart attack (although it is on my right side and not the side with my heart :rolleyes: ). Everyone keeps telling me to give it time and I just want to yell at them. I have given up all my favorite goodies and I still feel crappy. So I am their with you!

My docs are still trying to figure out if there are other things going on with me as well. I just wish I could get a complete GI transplant, is that possible???LOL

Thank God for this website right. At least we all understand each other.

Oh by the way I found wonderful Gluten Free cookies in the refrig section of my local health food store. They are the bomb and even my non-gluten family loves them.

ScarlettsMommy Explorer
ScarlettsMommy
Posted

I just got diagnosed today and am so angry with the world. I feel like i cant have my favorite foods no more will destroy me. Im glad I found this site!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748
    ZENken
    Newest Member
    ZENken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.