Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fasting?


Jaxonthehuman

Recommended Posts

Jaxonthehuman Rookie

Has anyone been so frustrated with all the food restrictions and possible sensitivities that they stopped eating?

Last summer I went 18 days without food, drinking only juice that I juiced at home in my own juicer. Nothing added, ever.

That was before I was DH diagnosed and I had a feeling it was some sort of food allergy and figured I'd eliminate the most common culprits all at once, leaving me with.... Just fresh juice.

The result? I lost 15 pounds but did not lose my rash. Now I know it's DH and I've been gluten-free since October and I'm still rashy, I am considering another juice fast as oppose to the thyca diet. Avoiding iodine has been challenging for me and I haven't made it beyond a few days. I always break at a desperate time, like at work or school with a hungry tummy.

Has anyone had a positive or negative experience with juice only? It was mostly positive for me, even though it didn't help my skin.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Metoo Enthusiast

Has anyone been so frustrated with all the food restrictions and possible sensitivities that they stopped eating?

Last summer I went 18 days without food, drinking only juice that I juiced at home in my own juicer. Nothing added, ever.

That was before I was DH diagnosed and I had a feeling it was some sort of food allergy and figured I'd eliminate the most common culprits all at once, leaving me with.... Just fresh juice.

The result? I lost 15 pounds but did not lose my rash. Now I know it's DH and I've been gluten-free since October and I'm still rashy, I am considering another juice fast as oppose to the thyca diet. Avoiding iodine has been challenging for me and I haven't made it beyond a few days. I always break at a desperate time, like at work or school with a hungry tummy.

Has anyone had a positive or negative experience with juice only? It was mostly positive for me, even though it didn't help my skin.

Out of desperation thats what I did this morning. I haven't had problems with my rash, but because of my stomach and I am finding its dairy thats the problem. I dropped eggs due to my rash, and instead increased my dairy without really thinking about it and I have been having more stomach problems.

Do you have gluten in shampoos, soaps, moisturizers? I also have stopped touching gluten, I think it was affecting my hand. Then I stopped eating eggs, for the iodine connection.

Jaxonthehuman Rookie

Out of desperation thats what I did this morning. I haven't had problems with my rash, but because of my stomach and I am finding its dairy thats the problem. I dropped eggs due to my rash, and instead increased my dairy without really thinking about it and I have been having more stomach problems.

Do you have gluten in shampoos, soaps, moisturizers? I also have stopped touching gluten, I think it was affecting my hand. Then I stopped eating eggs, for the iodine connection.

All my toiletries and meds are gluten-free. My house and girlfriend are gluten-free.

One cool thing.... As far as I know, the egg iodine is in the yolk. I've been eating scrambled egg whites, it's nice to have them. As far as being around gluten, I work at Starbucks. I don't ever touch the pastries, as it is against health code. . . But I know i must come into contact with a few stray crumbs. I don't eat anything (except fresh bananas) from work and always bring my own lunch so I dont think I could be accidentally CCing myself.

Fasting makes me cold, and it's winter in Portland, Or, so I don't want to be any colder than I already am, but come spring time I think I'll fast again. It makes me feel clean, knowing a get everything out of my system. It's nice to reset your body, maybe this time, Ill food journal as I reintroduce foods.

eatmeat4good Enthusiast

During the height of my illness I became so depressed that I stopped eating altogether for 3 weeks. I only took vitamins, drank water and took collagen tablets. Miraculously and against all reason, I started to feel like I was getting well, I started to gain energy and to feel normal again and I lost all the excess swelling that was inflaming my whole body. Mentally I cleared up and my migraines went away. The depression lifted. I knew I was on to something but I didn't know what. Eventually I had to eat. Then I got sick again for many months, gained weight, got headaches, sunk into depression. Now I know it was Celiac but it took another year to figure that out.

Now I am Paleo and use Mark's Daily Apple.com as a resource. He describes using intermittent fasting to re-set your body metabolism and it makes perfect sense to me. Paleo is perfect for Celiacs. Nothing against juice fasting if it works for you. My DH is sensitive to salicylates so that will not work for me. But fasting in itself is good for the body and the mind I believe. Even though my initial "fast" was not really by choice, now I do fast occasionally for the benefit of it. My weight and moods have stabilized and I am gaining muscle rapidly...even without exercise. My sores are almost healed unless I get into trace gluten or preservatives or salicylates too much.Then I react.

weaselfish Rookie

Scheduled food - type consumption Vs. listening to the body . . .

I think the above covers it. Regular scheduled meals is just part of the matrix we've been indoctrinated into. See, you don't listen to your body then, you watch the synthetic clock . . . The machine world has you . . . Your body knows what it needs, and tells you . . . IF, you listen . . .

The clock tells you when to eat, NOT your body. Not happy, out of balance, out of sync . . .

Fasting is a natural way to purge impurities, BUT, like all good things, too much of one usually ends up in harm . . . Allow the body to dictate and see.

Each of us MUST experiment and determine for ourselves and utilize shared data but NEVER make it gospel. This affliction is too individualized and requires astute observation in my view for one to heal oneself.

I've fasted for over 30 years, randomly and off-and-on, . . . ya, I'm an old fart at 54, however, we don't need to have our colons packed solid yet DH nailed me tail at this late year in my journey. No pun intended . . .

My bread / wheat programmed fetish was my nemesis . . . Imagine that ???

My advice ?: Utilize everything available as a tool, but let your BODY tell you what works and what doesn't !!!!!\

Listen to the body and find peace,

WF

squirmingitch Veteran

Absolutely weaselfish!

  • 3 months later...
cavernio Enthusiast

I plan on fasting once I get my biopsy done. I fasted for 4 days a month or so before dx with celiac out of desperation. Didn't help, but I broke it out of habit of snacking at night while watching tv, not from hunger. I read a ton of stuff about fasting before doing it.

Now that I know I'm a celiac, I think fasting might be even more helpful than I thought. Proponents of fasting specifically say it helps to heal your intestines. Also said to help out other auto-immune problems like arthritis a lot. My mom often fasts once a week and it helps her joint pain.

I'll be doing water only though, no juice unless my heart feels funny.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



weaselfish Rookie

I plan on fasting once I get my biopsy done. I fasted for 4 days a month or so before dx with celiac out of desperation. Didn't help, but I broke it out of habit of snacking at night while watching tv, not from hunger. I read a ton of stuff about fasting before doing it.

Now that I know I'm a celiac, I think fasting might be even more helpful than I thought. Proponents of fasting specifically say it helps to heal your intestines. Also said to help out other auto-immune problems like arthritis a lot. My mom often fasts once a week and it helps her joint pain.

I'll be doing water only though, no juice unless my heart feels funny.

Hey cavernio ,

When you wrote " I'll be doing water only though, no juice unless my heart feels funny. ", my first thought was; " If you deprive your body to the point of heart strain, what possible good could that serve ?" To deprive your physical vehicle of essential nutrients for too long, it could well lead to unintended self-extinction.

Just please consider my observation . . .

Peace,

WF

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748

    Blough
    Newest Member
    Blough
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.