Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Photos Of Mild Dh

lizk

By lizk
in Dermatitis Herpetiformis

Recommended Posts

lizk Rookie
lizk
Posted

I found this link of what I would consider "mild" DH (except maybe the back photo, that looks kind of severe) and thought I would post because I've had a hard time finding photos that don't look pretty severe. Most photos of DH don't look like what I have (and I'm still not sure if I have DH), but these look very similar to what I have - especially the first photo. Anyway, just thought I'd post in case it helps anyone.

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

I found this link of what I would consider "mild" DH (except maybe the back photo, that looks kind of severe) and thought I would post because I've had a hard time finding photos that don't look pretty severe. Most photos of DH don't look like what I have (and I'm still not sure if I have DH), but these look very similar to what I have - especially the first photo. Anyway, just thought I'd post in case it helps anyone.

Open Original Shared Link

Excellent link. This will help people. Almost all of the photos you find on the net are so severe that they are quite hard to even look at & people with less severe dh than those photos can be easily confused.

gulfcoastnana Newbie
gulfcoastnana
Posted

Thank you for posting this... I wish that I would have taken photos when my rash was at its worst...

at first i was told i had shingles... then after taking a course of steriods...it came back with a vengence... dr said its a food allergy..

before i made it to a allergy dr i found some photos of wheat rash...(DH) and it looked like what i had went gluten free... started clearing up...

so now while the dr's may not agree with me i know the only way to keep the itchy skin away is staying gluten free

Di2011 Enthusiast
Di2011
Posted

I think the definition of "mild" DH is so much up for debate.

I've been watching my 9 year olds DH develop over the past year.

My DH went full blown a year ago.. when I went to work in a bakery. I'd always been gluten lite without a thought. Didn't like breakfast, pasta, pizza etc. Was always itchy/scratchy and had "ingrown hairs" and 'adult pimples' etc etc. I think there is definitely 'mild' DH which in my definition is just itchy. Medium is definitive lesions ("mosquito bites"). This is where my son is at.

The full blown DH though is extreme, ugly, and mentally challenging. Just ask me what I've been through.

DH needs to be scientifically researched as a skin condition with a range of presentations.

It presents differently in different areas of my body. There is no 'normal'.

If you feel like mosquitos are biting (in winter) or acid is being sprayed on your skin then DH is a probability.

lizk Rookie
lizk
Posted
  • Author

I think the definition of "mild" DH is so much up for debate.

I've been watching my 9 year olds DH develop over the past year.

My DH went full blown a year ago.. when I went to work in a bakery. I'd always been gluten lite without a thought. Didn't like breakfast, pasta, pizza etc. Was always itchy/scratchy and had "ingrown hairs" and 'adult pimples' etc etc. I think there is definitely 'mild' DH which in my definition is just itchy. Medium is definitive lesions ("mosquito bites"). This is where my son is at.

The full blown DH though is extreme, ugly, and mentally challenging. Just ask me what I've been through.

DH needs to be scientifically researched as a skin condition with a range of presentations.

It presents differently in different areas of my body. There is no 'normal'.

If you feel like mosquitos are biting (in winter) or acid is being sprayed on your skin then DH is a probability.

I'm sorry you had such a tough time of it. Does your son have multiple "mosquito bite" looking lesions in one place? Or is it one here or there? I had some that were very tiny blistery looking things and lately I have had larger "bug bite" looking ones that are usually (not always) on matching sides of my body. They usually just present as one, but for example on my ankle last week I had 3 or 4 in a cluster. And yes sometimes the skin just burns or sort of generally itches and then a tiny bump will appear.

lizk Rookie
lizk
Posted
  • Author

Oh and I would say for the past 6 months I have been "itchy/scratchy" as well and have bumps on the back of my thighs that itch that I thought were ingrown hairs or something. The burning sensation you mention I don't think I've heard before and is what I feel sometimes because I have described it as almost feeling having a sunburn when it gets itchy.

Thank you for your replies!

gulfcoastnana Newbie
gulfcoastnana
Posted

I have always had back bumps...(pimples) and under the bra line rash( thought it was heat rash) thighs chalked it up to many things ingrown hairs ect.... but now i must say i the only way to describe the warning that a break out is coming is a burning like being sunburnt and having a jellyfish tossed on your skin....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Mine starts itching and feels like an abrasion - then it comes on fast.

In retrospect I've had a dozen or so different types of lesions. Would be funny if it wasn't sad - so many that were probably DH but I wrote off as something else.

And I have a sneaking suspicion the herpes Whitlow on my hand as a child wasn't - yep, I'm betting that was my first DH.

itchy Rookie
itchy
Posted

I concur with above.

Especially the comment about photographing the lesions when they are bad. Mine are almost cleared up and it will be difficult to persuade future physicians that I am coeliac, or how bad the rash really was. I have met complete scepticism from the medical community for fifteen years, and when I had the best evidence of coeliac I failed to record it!

I frequently get burning or itching sensations in the areas where former outbreaks occurred. Lately nothing materialises from these. Am I just below the threshhold for an outbreak? Is it just a bodily reaction to the factors that are still in my skin? Hard to say.

dani nero Community Regular
dani nero
Posted

Those don't look so mild to me.. Mine are ant-bite size, and they only scar if I break the skin.

Di2011 Enthusiast
Di2011
Posted

Hi Dani,

I think you are probably lucky you discovered your gluten/DH condition whilst younger than many of us. I was always itchy/scratchy, 'ingrown hairs' type and avoided gluten full foods without making the connection. I went to work in a bakery about 18months ago and 9 months later I broke out in full blown head to toe DH. All in one 6 hour shift. Out of necessity I have had to be extremely strict with diet and bathroom/cleaning etc. I never eat out. Black tea is the only thing I've ordered in the past 12 months :(

Be sure you keep strict. You young ones would really want to avoid skin like mine!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. nanny marley
      - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      4

      Manitol and mri

      Oral drink: You will be given a solution of mannitol mixed with water to drink over a period of about 30-60 minutes this is what it says it is ,?
    2. nanny marley
      - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      4

      Manitol and mri

      Brilliant thankyou for the information I will contact them tomorrow, I was just concerned because I'm already in a bowel flare too , and I didn't want to take anything that would cause me more issues , especially with the way sweeteners make be feel I've had a really bad throat from this type of stuff before , and it upsets my digestive system too and I have...
    3. Scott Adams
      - Scott Adams replied to RDLiberty's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Toothpaste question.

      There is no scientific evidence to suggest that hydrated silica or its relative, silicon dioxide, triggers a celiac-specific immune response or causes intestinal damage in individuals with the condition. The concern you likely encountered online is a common misconception. Here’s the key distinction: the protein in gluten (gliadin) is what causes the autoimmune r...
    4. Scott Adams
      - Scott Adams replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Probiotics

      There is no single "best" probiotic brand universally recommended for celiac disease. The goal of a probiotic in this context is to help support the gut microbiome, which can be disrupted by the damage caused by gluten exposure. The most important factor is not the brand name, but ensuring the product is certified gluten-free, as some probiotics use wheat...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Celiac attack confusion and anxiety

      What you are describing, while terrifying and severe, is an experience that others in the celiac community have reported during a powerful reaction. The systemic inflammation triggered by gluten exposure in someone with celiac disease can absolutely extend far beyond the digestive tract, creating a cascade of symptoms that feel like your entire body is in...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,790
    • Most Online (within 30 mins)
      7,748
    Lori Jean
    Newest Member
    Lori Jean
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • nanny marley
      Manitol and mri

      By nanny marley · Posted

      Oral drink: You will be given a solution of mannitol mixed with water to drink over a period of about 30-60 minutes this is what it says it is ,?
    • nanny marley
      Manitol and mri

      By nanny marley · Posted

      Brilliant thankyou for the information I will contact them tomorrow, I was just concerned because I'm already in a bowel flare too , and I didn't want to take anything that would cause me more issues , especially with the way sweeteners make be feel I've had a really bad throat from this type of stuff before , and it upsets my digestive system too and I have a wedding in a week 😳
    • Scott Adams
      Toothpaste question.

      By Scott Adams · Posted

      There is no scientific evidence to suggest that hydrated silica or its relative, silicon dioxide, triggers a celiac-specific immune response or causes intestinal damage in individuals with the condition. The concern you likely encountered online is a common misconception. Here’s the key distinction: the protein in gluten (gliadin) is what causes the autoimmune reaction in celiac disease. Hydrated silica and silicon dioxide are minerals, chemically inert compounds of silicon and oxygen, and are completely unrelated to gluten proteins. They are widely used as abrasives in toothpaste and anti-caking agents in food powders because they are stable and non-reactive. While any individual can have a unique sensitivity to any substance, there is no mechanism by which these silica compounds would mimic gluten or exacerbate celiac disease. Your diligence in using a certified gluten-free toothpaste is the correct and most important step, as it eliminates the risk of cross-contamination with wheat-derived ingredients like starch. Based on current scientific understanding, the hydrated silica in your toothpaste is not an issue for your celiac management.
    • Scott Adams
      Probiotics

      By Scott Adams · Posted

      There is no single "best" probiotic brand universally recommended for celiac disease. The goal of a probiotic in this context is to help support the gut microbiome, which can be disrupted by the damage caused by gluten exposure. The most important factor is not the brand name, but ensuring the product is certified gluten-free, as some probiotics use wheat-derived starches or are produced in facilities that handle gluten, posing a cross-contamination risk. Furthermore, the specific strains of bacteria can matter; some research suggests strains like Lactobacillus and Bifidobacterium may be beneficial, but individual responses vary greatly. Because the supplement industry is not tightly regulated, choosing a reputable brand that undergoes third-party testing for purity and potency is key. 
    • Scott Adams
      Celiac attack confusion and anxiety

      By Scott Adams · Posted

      What you are describing, while terrifying and severe, is an experience that others in the celiac community have reported during a powerful reaction. The systemic inflammation triggered by gluten exposure in someone with celiac disease can absolutely extend far beyond the digestive tract, creating a cascade of symptoms that feel like your entire body is in revolt. The severe pain, neuropathy, muscle and jaw tension, and intense anxiety and confusion are all potential manifestations of this body-wide inflammatory and autoimmune response. It's a well-documented phenomenon that a celiac attack can provoke a significant neurological and psychological component, including "brain fog," disorientation, and panic-level anxiety. While your first step should always be to meticulously re-check all foods, medications, and even cross-contamination sources, it's also possible that a previously safe product has changed its formula or that you encountered a hidden source. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.