Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sad :( Aggressive Brain Tumor

Di2011

Recommended Posts

Di2011 Enthusiast
Di2011
Posted

I thought I'd post because it puts all in perspective. My stepdad (as much my dad as my own) called tonight and his grandson has an aggressive brain tumor. 18 months old. His surgery last week went okay and he has been recovering well. I guess we all thought that things were going well. Who would have thought that the tumor was a terror??? His prognosis is not good.

Makes food intolerance/immune disorder seem insignificant.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

I'm so sorry to hear that Diane. My thoughts are with you all. Yes, it puts everything in perspective & I wish to heck it didn't b/c that would mean no brain tumor.

ravenwoodglass Mentor
ravenwoodglass
Posted

I'm so sorry to hear this. I will keep the little guy and his family in my prayers.

StephanieL Enthusiast
StephanieL
Posted

I am so very sorry.

I have said before we have an gastroenterologist, immunologist, endocrinologist but it isn't an oncologist so really, it's manageable. It truly does put it in perspective for sure.

IrishHeart Veteran
IrishHeart
Posted

Yes, it's so true. No matter how awful we may have it some days, it seems someone always has a bigger battle to fight.

So sorry about the little one, hon. I hold your family in my thoughts.

mamaupupup Contributor
mamaupupup
Posted

I'm so sorry! Thinking of you all! Hugs from afar... Miracles do happen!

bartfull Rising Star
bartfull
Posted

I just lost a dear friend to breast cancer at the young age of 54. But when it's a child!

Oh, when it's a child.

Prayers to you and your family. I am SO sorry!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Victoria6102 Contributor
Victoria6102
Posted

I'm so sorry! I will pray for you and I hope that this child will get well soon :)

Ninja Contributor
Ninja
Posted

Kids are incredibly resilient

1974girl Enthusiast
1974girl
Posted

I am so sorry! Prayers for your family. And yes, it does put this all in perspective!

deb445 Rookie
deb445
Posted

I am so sorry to hear your news.

Love and light to this child.

From my personal (yet relatively new) experiences and success with homeopathy, I have come across youtube videos and articles about successful treatment of brain tumours with homeopathic remedies. I just wanted to gently toss the idea out there in the event that your family may wish to explore treatment outside the conventional allopathic realm of medicine.

Di2011 Enthusiast
Di2011
Posted
  • Author

Thank you all for your thoughts & prayers.

What a calming, reassuring group of members on this forum - you continue to amaze and reassure me - 12 months since joining.

The little guy is home and they are working on a plan for treatment. Mum is being strong (relative), realistic but still hoping for a good outcome.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,594
    • Most Online (within 30 mins)
      7,748
    kathleenconley
    Newest Member
    kathleenconley
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.