Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do These Results Look Like A Food Allergy To You?


MoMof2Boyz

Recommended Posts

MoMof2Boyz Enthusiast

Hi. My son's GI doc said the food allergy test results didn't indicate an allergy...he also had high eosonphills(boy I bet I spelled that wrong) and from doing research, that indicates an allergy whether it be food or environment. I was also told that labs will mark results as high or low even if slightly out of range.

so thought I"d run it by here, please give me your honest opinion! thanks!!

Milk(cow) low level .67

wheat .98 moderate level

peanut .51 low level

range for everything is <.35

low level is .35-.70

moderate level is .71-3.50

test was done by Prometheus.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1974girl Enthusiast

I have the hardest time with tests! (as you can tell in my posts!) I had blood tests done only to be told by my Vanderbilt Allergist that they are so unreliable, that they won't even use them. She only uses back testing and patch. And when we did the back...it did not go with the blood that I had the pediatrician run. Blood showed soy, peanuts, milk, and the back did not. She said to believe the back prick more. I am just hoping!

My daughter has eosinophils in her esophagus. They told me it was an allergy and hence the back tests. I hope you find some answers. I think someone on here said they did the blood and the back and if both showed positive, they cut that out. It is sooo confusing! Since there is a high false positive rate with the blood, have you thought of doing skin testing to verify?

Lfrost Explorer

My son's wheat allergy is only at .51 (the 'low' range) however, when we took wheat away for only a few days and then gave it back, we had IMMEDIATE reactions! He broke out on a rash on his face within a few minutes after eating a Happy Meal. He also started itching all over and started wetting his pants. We took the wheat away again (just last night) and already the rash is looking like it is going away...I will let you know about the wetting.

Also, the disclaimer at the bottom of our allergy testing stated:

"Allergen results of 0.10 - 0.34 kU/L are intended for specialist use as the clinical relevance is undetermined. Although increasing ranges are reflective of increasing concentrations of allergen-specific IgE, this may not correlate with the degree of clinical response when challenged with a specific allergen. The correlation of allergy laboratory results with clinical history is essential. A negative test may not rule out clinical allergy."

That disclaimer is referring to the level below "Low". Your son is 2 levels higher than that on his wheat allergy. Basically anything above 0.10 is considered an allergy, the severity really lies in your son's reaction. Your son DEFINATELY has allergies against Wheat, Milk, and Peanut with wheat being a Moderate allergy. Is your doctor waiting for your son to go into anaphylactic shock to prove it? (Sorry, I am not too happy with our pediatrician lately, either).

Have you tried cutting the wheat out for a few days and seeing if there is a change? Be careful if you do and then reintroduce it, when we reintroduced wheat, my son's reactions were way worse than anything he ever showed before, and like I mentioned, my son is considered 'low' by blood test. You might also consider cutting out the other 2 allergies. It is a bit of a nuisance at first, but well worth it if you see a change and it helps your little man! :)

MoMof2Boyz Enthusiast

No, we haven't done the skin test. I"ll be cutting those things out of his diet. he is a huge milk drinker, pb and j sandwich eater. I know I can replace the peanut butter with almond butter and he might not notice the difference(I won't tell him it's not pb at first otherwise he won't eat it.) finding a replacement for milk is going to be hard. I like rice milk but I don't think he'd like that or almond milk, we won't do soy since it messes with the thyroid....I wonder if goat milk would be a good replacement?? having him go wheat free will be hard though.

do you all think I should cut out everything at once or one at a time??

Lfrost Explorer

Give the almond milk a try. I didn't think my son would like it either, but turns out I was wrong (doesn't sound appetizing to me, but he is fine with it). My son was also a HUGE milk drinker. He still drinks the almond milk, just not as much. We do the sweetened, vanilla or chocolate. I like that it doesn't have soy in it (correct me if I am wrong, but I think Rice Dream has soy in it?, not sure).

Also, we cut everything at once. I really thought my son was going to be upset, he is also a HUGE PB&J eater. However, he has had no problem whatsoever. He knows he feels better and he now asks me "Does this have Gwooton (gluten)in it?" and even if it was a favorite before (chocolate chip cookies), he won't eat it if I say yes. He says "Gwooton makes me puke", or "Gwooton hurts my tummy".

We changed his morning Eggo waffles over to waffles or pancakes made with gluten free pancake mix (made ahead of time and refrigerated, or frozen), an AB&J (almond butter and jelly) sandwich on gluten free bread (I made mine at home since it is cheaper). Then for dinner we have been tweaking our recipes to make them fit his allergies (this has been the hardest part). Basically, I tried to keep his meal routine the same so he wouldn't notice the switch as much. He has been fine with it, and he WAS a difficult child when dealing with change prior to gluten-free!

Happyw5 Explorer

When I was going through all my allergies my eosinohpil count was really high. About 30% of my white blood count, normal is under 3%. Do you know what his count was? They started testing me for parasites, and it took a while to get my diagnosis of food allergies. I am allergic to raw egg, peanuts, raisins, wheat, soy, hazelnuts, I also have oral allergy syndrome. I am allergic to the protein in milk, however, I do not react to cheese or yogurt!

I would recommend that you only stop one food at a time. You don't want to take away things that don't need to be taken a way. What symptoms is he having of food allergy? When my eosinophil count was high, I would fall a sleep after everything I ate. my kids like rice milk, however, I think they recommend it for only older children. I have one son that won't drink milk at all, and with all the problems I had, I don't force them to eat-drink anything. He gets his calcium from yogurt and cheese.

There is a book called diet wise, and it really explains the food addiction cycle. Most people are allergic to the foods they love the most.

I never thought I would be eating a gluten free almond butter sandwich. You learn there are so many foods out there to enjoy...

I hope everything goes well with your son, and trust your gut, not the doctors...They have screwed up with me so many times...

MoMof2Boyz Enthusiast

ok, I"ll try cutting milk out first. and try almond milk

his eosinophils

range is 0-3% his is 9 and was flagged high

absolute eosinophils range is .00-.10 thous/UL and his is.35 again, flagged high.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I like that it doesn't have soy in it (correct me if I am wrong, but I think Rice Dream has soy in it?, not sure).

Rice Dream uses barley in the processing. Many of us have problems with it. Perhaps use a different brand or watch carefully for signs of reactions or delays in healing.

IrishHeart Veteran

try So Delicious Coconut Milk.

Tastes Great and high in calcium.

Comes in plain, unsweetened, vanilla and chocolate.

They also make creamer, yogurt and Ice cream (dairy and soy free)

Lfrost Explorer

try So Delicious Coconut Milk.

Tastes Great and high in calcium.

Comes in plain, unsweetened, vanilla and chocolate.

They also make creamer, yogurt and Ice cream (dairy and soy free)

IrishHeart, do you prefer the coconut? Neither my husband nor I can stand the taste of coconut so I didn't buy that one for my son, but he might like it. I honestly have never tried any of the dairy free versions of milk (I actually don't like milk, so I don't drink much at all).

IrishHeart Veteran

IrishHeart, do you prefer the coconut? Neither my husband nor I can stand the taste of coconut so I didn't buy that one for my son, but he might like it. I honestly have never tried any of the dairy free versions of milk (I actually don't like milk, so I don't drink much at all).

I do, hon, I like the taste and it can be used in cooking.

And honestly, it is not OVERLY coconutty at all. The vanilla one is sweeter. Try the plain, unsweetened one first, maybe? He'll think it's just milk.

Lfrost Explorer

I do, hon, I like the taste and it can be used in cooking.

And honestly, it is not OVERLY coconutty at all. The vanilla one is sweeter. Try the plain, unsweetened one first, maybe? He'll think it's just milk.

Ok, I will give that one a shot, too and see which he prefers. He hasn't had a problem with the almond milk (and it can be used in cooking, too) but my mother was concerned since he has a lot of other food allergies. I don't know if it can happen or not, but she was mentioning that when you have allergies, you are more likely to develop others. She said that if I can get these other allergies under control he might be able to 'grow out of them'? Her concern with almond milk was that it is a nut and she thinks kids are more likely to develop allergies to nuts. I haven't heard about very many having allergies to coconut though. It could just be a grandma being overly concerned, too. :)

Lfrost Explorer

ok, I"ll try cutting milk out first. and try almond milk

his eosinophils

range is 0-3% his is 9 and was flagged high

absolute eosinophils range is .00-.10 thous/UL and his is.35 again, flagged high.

May I ask what 'eosinophils' is? I don't think my son had this checked, or at least I cannot see it mentioned on his blood tests. Is it something I should ask for?

My son supposedly has 'low allergies', however, his symptoms were chronic constipation, and always stuffy with swollen sinuses. When when we cut out dairy his constipation improved, but he started vomitting every night/early morning with no fever and acting fine all day. Occasionally during the vomitting bouts he would also have 'D'. After 21 days of daily vomitting, I insisted on testing. After gluten free for a few days, he had a McDonalds hamburger happy meal. Immediately after eating he had a very itchy rash on his face, his whole body itched, he complained that his hand hurt, and he crashed hard. He slept for a few hours (middle of the day and he does not usually take naps).

MoMof2Boyz Enthusiast

May I ask what 'eosinophils' is? I don't think my son had this checked, or at least I cannot see it mentioned on his blood tests. Is it something I should ask for?

My son supposedly has 'low allergies', however, his symptoms were chronic constipation, and always stuffy with swollen sinuses. When when we cut out dairy his constipation improved, but he started vomitting every night/early morning with no fever and acting fine all day. Occasionally during the vomitting bouts he would also have 'D'. After 21 days of daily vomitting, I insisted on testing. After gluten free for a few days, he had a McDonalds hamburger happy meal. Immediately after eating he had a very itchy rash on his face, his whole body itched, he complained that his hand hurt, and he crashed hard. He slept for a few hours (middle of the day and he does not usually take naps).

Hi, here is some good info Open Original Shared Link

Happyw5 Explorer

May I ask what 'eosinophils' is? I don't think my son had this checked, or at least I cannot see it mentioned on his blood tests. Is it something I should ask for?

My son supposedly has 'low allergies', however, his symptoms were chronic constipation, and always stuffy with swollen sinuses. When when we cut out dairy his constipation improved, but he started vomitting every night/early morning with no fever and acting fine all day. Occasionally during the vomitting bouts he would also have 'D'. After 21 days of daily vomitting, I insisted on testing. After gluten free for a few days, he had a McDonalds hamburger happy meal. Immediately after eating he had a very itchy rash on his face, his whole body itched, he complained that his hand hurt, and he crashed hard. He slept for a few hours (middle of the day and he does not usually take naps).

Eosinophills are part of your white blood count. When they did a CBC (complete blood count) on me it showed up as being very high. It can be related to food allergies, parasites, and many other things...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,545
    • Most Online (within 30 mins)
      7,748

    PatientOne
    Newest Member
    PatientOne
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.