Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Back After Being Gone A While


txplowgirl

Recommended Posts

txplowgirl Enthusiast

Hidy everbody,

Well, i'm back, i've been gone awhile, a liitle over a year and I came back because i'

m having some issues and i'm alittle ashamed because I knew better.

Oh man, lets see if I can get all yall up to speed.

Was a truck driver battling Fibromyalgia, Chronic fatigue and supersensitive gluten issues. Well, it got down to where a little over a year ago I had to come off the truck due to back problems as well as the Fibro and found out that I have not 1, not 2, not 3 but 6 bulging discs in my neck and back. Can anyone say OWWW? Lol

3 in my neck with a bone spur and 3 in my lower back. Been seeing a Chiropractor, also I have an appointment in a couple of weeks with a nuerologist. See what he has to say and discuss whether or not if I should try for disability and blah, blah blah, on that.

Made the mistake of having the Celiac test due to family bugging me and of course it was negative which I totally expected but shouldn't have done because you can guess what happened next.

Yep, went back on the gluten and here I am right back where I was where I started. Have gained back 25 lbs of the 50 I lost, back on blood pressure meds, back on anti depressants, anemic again and feeling like crap on top of everything else.

So, gearing up to do this again and I plan on being gluten free from now on no matter what anybody says. So, I came back for the great moral support.

To help with this I ordered the Nutribullet to help get me started, (was wondering if anyone here has tried it?) Now, just gonna wait until it comes in, doing research and pysching myself up to do this.

Oh, and I got married to the ole Goat about 3 months ago. (Ducking behind the couch). I'm a glutton for punishment ain't I? :P

So, how's everyone doing? :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tom Contributor

The ole goat lol. I remember you tx tho we didn't talk much. You've really had a lot goin on. Welcome back.

justlisa Apprentice

Hi there!

Sorry you're having so much trouble! I hope you can get some relief for your neck and back...

Tell the Ol' Goat that you know best...it's been proven now...you have to be gluten free... ;)

flowerqueen Community Regular

Sorry you are having such a bad time. Can I just ask, when you had a test for Coeliacs disease, was it a blood test or a biopsy? (As the blood tests are not reliable) presumably you were eating gluten in your diet prior to the test also?

Hidy everbody,

Well, i'm back, i've been gone awhile, a liitle over a year and I came back because i'

m having some issues and i'm alittle ashamed because I knew better.

Oh man, lets see if I can get all yall up to speed.

Was a truck driver battling Fibromyalgia, Chronic fatigue and supersensitive gluten issues. Well, it got down to where a little over a year ago I had to come off the truck due to back problems as well as the Fibro and found out that I have not 1, not 2, not 3 but 6 bulging discs in my neck and back. Can anyone say OWWW? Lol

3 in my neck with a bone spur and 3 in my lower back. Been seeing a Chiropractor, also I have an appointment in a couple of weeks with a nuerologist. See what he has to say and discuss whether or not if I should try for disability and blah, blah blah, on that.

Made the mistake of having the Celiac test due to family bugging me and of course it was negative which I totally expected but shouldn't have done because you can guess what happened next.

Yep, went back on the gluten and here I am right back where I was where I started. Have gained back 25 lbs of the 50 I lost, back on blood pressure meds, back on anti depressants, anemic again and feeling like crap on top of everything else.

So, gearing up to do this again and I plan on being gluten free from now on no matter what anybody says. So, I came back for the great moral support.

To help with this I ordered the Nutribullet to help get me started, (was wondering if anyone here has tried it?) Now, just gonna wait until it comes in, doing research and pysching myself up to do this.

Oh, and I got married to the ole Goat about 3 months ago. (Ducking behind the couch). I'm a glutton for punishment ain't I? :P

So, how's everyone doing? :D

1desperateladysaved Proficient

There is nothing like desperation to help keep one in line. Sorry about the pressure that was on you. I am experiecing some of that, but it is starting to change. I feel better enough for others to notice since I have been gluten free 6 months and grain free 4.

You have some rather observeable problems. I can't wait to hear about them resolving.

Diana

psawyer Proficient

Welcome back, Vicky!

kareng Grand Master

Hey Vicky! I guess it wasn't a gluten-free wedding cake? :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Hey Girl! yeehaw!

I wondered where you went off to. I missed you!

Congrats to you and the old goat. :)

Glad to see you back on the gluten-free wagon and back on the forum.

...and you know what you need to do--it's just like riding a bike (or in your case, driving a big truck)

Cheers, IH

jerseyangel Proficient

Welcome back!

txplowgirl Enthusiast

Thanks everyone for the welcomes. I appreciate it.

Yes, I ate for gluten a good 2 months before the bloodtests. 2 cheeseburgers a day for 2 months plus Macaronie and cheese. The more gluteny the better and it didn't work. Just felt like crap and visiting the bathroom a lot.

And no, it wasn't a gluten free cake, but knowing how I would react I restricted the gluten stuff a couple days before and for the big day so wouldn't have a problem.

Anyway, back here to do the research again and get back on the bandwagon so to speak. It'll be easier to do this time I hope because I know to expect the withdrawals and cravings and everything that goes with it.

I've been spending a lot of my time the last year on a preparedness site. Getting prepared to try to live through an economical colapse, or even maybe the grid going down. Very interesting people.

Anyway good to be back and looking forward to a better life. So tired of feeling like crap. Hopefully, once i get my inner self working again my back and Fibro will settle down some also.

kareng Grand Master

My neighbor's doc tests his fibro patients for Celiac. But even if they test negative, he has them eat gluten free/lite (take the burger off the bun style gluten-free). He says it really helps the fibro.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    2. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,748
    • Most Online (within 30 mins)
      7,748

    NYC Sidewalk Repair
    Newest Member
    NYC Sidewalk Repair
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.