Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D


ShannonA

Recommended Posts

ShannonA Contributor

What is the difference between vitamin D and D3? I saw both at the store an don't know the difference. About a year ago my doctor put me on vitamin D because of low levels and now I want to start them again but I don't know the difference between the two.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

this may shed some light?

Open Original Shared Link

ShannonA Contributor

this may shed some light?

Open Original Shared Link

Thank you!
Marilyn R Community Regular

That was a good article, Irish, thanks for sharing.

OP, I like Vitamin D 3 drops. You just stick a drop in your water, juice, whatever. It's tasteless. I get mine at the healthfood store.

IrishHeart Veteran

Me, too--I take D3, 2000 IUs now (I was tanked in D upon DX and at one time was told to take 5,000 IUs until the level came up over 60) and I have used both capsules and sub-lingual drops.

Some people use the D2, but I think the D3 is preferable?

frieze Community Regular

Me, too--I take D3, 2000 IUs now (I was tanked in D upon DX and at one time was told to take 5,000 IUs until the level came up over 60) and I have used both capsules and sub-lingual drops.

Some people use the D2, but I think the D3 is preferable?

Yup, don't take that D2 ...stuff. getting sun is even better. no sun tanning, that actually sort of, defeats the concept....

  • 2 weeks later...
Kar1972 Newbie

I have low vitamin D too. Last check was at 41 and I'm taking 5,000 IU per day! Will it ever be in the normal range? Is this a celiac thing?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

I have low vitamin D too. Last check was at 41 and I'm taking 5,000 IU per day! Will it ever be in the normal range? Is this a celiac thing?

It will come up in time as your gut heals. Eat foods with Vitamin D, too and get some sunshine.

41 is within normal range, according to the lab where I have my tests done, but some suggest over 60 is optimal.

kristenloeh Community Regular

When I was diagnosed my D levels were at 17. Not sure where they are at now, but I'm on about 6,000 IU a day.

squirmingitch Veteran

My vit D was 25 with a range of 30-100 so the doc put me on Vit D3 5,000 IU per day & I got the drops too but have been unable to tolerate them at those rates. Made me get the shaky kind of indigestion & made me nauseous. I tried 1/2 the dose & still couldn't do it. I have discovered that 1/2 dose 2 or 3 times per week is the max. I can tolerate.

frieze Community Regular

My vit D was 25 with a range of 30-100 so the doc put me on Vit D3 5,000 IU per day & I got the drops too but have been unable to tolerate them at those rates. Made me get the shaky kind of indigestion & made me nauseous. I tried 1/2 the dose & still couldn't do it. I have discovered that 1/2 dose 2 or 3 times per week is the max. I can tolerate.

get out in the sun! if you are fair skinned, you may need to break it up, but 15-20 daily, with large skin areas exposed, no sun screen. NOT enough to tan, that defeats the purpose.

Kar1972 Newbie

Is sunlight from a window on your lower legs good enough? That's the kind of exposure I get.

squirmingitch Veteran

I do that twice a day.

IrishHeart Veteran

When I was diagnosed my D levels were at 17. Not sure where they are at now, but I'm on about 6,000 IU a day.

Your doc should check you after 6 months of supplementing.

And IMHO, any sunshine is a good thing.

kristenloeh Community Regular

Your doc should check you after 6 months of supplementing.

And IMHO, any sunshine is a good thing.

I LOVE the sun, but the catch is, I live in Seattle. So we only get MAYBE 2 months a year if we are lucky of sun.

IrishHeart Veteran

I LOVE the sun, but the catch is, I live in Seattle. So we only get MAYBE 2 months a year if we are lucky of sun.

Sorry, hon. :(

er, um, move to California? (just teasing)

I've been to Seattle. Had a blast!! Pike Place Market, very cool.

GottaSki Mentor

I find this subject very interesting. At diagnosis my D was at 17 - I live in sunny San Diego and rarely missed at least a 45 minute walk outside - most days I was out in the sun much more than that.

I have been above 35 for about a year, but don't think I would have got there without supplementation.

So while sunshine is very important - for vitamin D and much more - I don't think it is possible to get enough strictly from sunshine.

Edited to add: for me it was the combination of removing gluten and supplementation == for the first year gluten-free I supplemented D specifically - for the past couple years I've been fine with getting it from food + sun :)

frieze Community Regular

I find this subject very interesting. At diagnosis my D was at 17 - I live in sunny San Diego and rarely missed at least a 45 minute walk outside - most days I was out in the sun much more than that.

I have been above 35 for about a year, but don't think I would have got there without supplementation.

So while sunshine is very important - for vitamin D and much more - I don't think it is possible to get enough strictly from sunshine.

Edited to add: for me it was the combination of removing gluten and supplementation == for the first year gluten-free I supplemented D specifically - for the past couple years I've been fine with getting it from food + sun :)

it could be a combo of issues, not right time of day, not enough skin exposed, and ? too vigorous washing too soon after exposure. maybe a very low fat diet?

GottaSki Mentor

it could be a combo of issues, not right time of day, not enough skin exposed, and ? too vigorous washing too soon after exposure. maybe a very low fat diet?

Still seems strange. When I was extremely low I was out ALL times of the day with at least head, arms, part of legs exposed - only used sunscreen if I was going to be out longer than 1/2 hour. Never wash vigorously afterward...except for my face. Pre- celiac diet was not intentionally low fat - sure I was getting plenty between meat, cheese and oils/butter from cooking.

I am in the sun FAR less now - severe heat allergy has worsened so I only exercise before 8am, but am now absorbing nutrients from food -- I'm not saying that we do not get Vitamin D from sunshine, only that it is puzzling that I wasn't getting enough when exposed to quite a bit of sun each day prior to Celiac Dx.

frieze Community Regular

Still seems strange. When I was extremely low I was out ALL times of the day with at least head, arms, part of legs exposed - only used sunscreen if I was going to be out longer than 1/2 hour. Never wash vigorously afterward...except for my face. Pre- celiac diet was not intentionally low fat - sure I was getting plenty between meat, cheese and oils/butter from cooking.

I am in the sun FAR less now - severe heat allergy has worsened so I only exercise before 8am, but am now absorbing nutrients from food -- I'm not saying that we do not get Vitamin D from sunshine, only that it is puzzling that I wasn't getting enough when exposed to quite a bit of sun each day prior to Celiac Dx.

could have been a degree of fat malabsorbtion, do you/did you take a statin?

GottaSki Mentor

could have been a degree of fat malabsorbtion, do you/did you take a statin?

no meds then or now....maybe it could have been fat malabsorbtion since I was low in every other nutrient measured at diagnosis. Sure didn't seem like I was having a problem absorbing fat -- was always far too heavy for the healthful diet I ate along with getting plenty of exercise.

It does makes me curious, but am happy that although I still have serious health problems caused by decades of undiagnosed celiac - absorption no longer seems to be one of them :)

IrishHeart Veteran

So while sunshine is very important - for vitamin D and much more - I don't think it is possible to get enough strictly from sunshine.

Edited to add: for me it was the combination of removing gluten and supplementation == for the first year gluten-free I supplemented D specifically - for the past couple years I've been fine with getting it from food + sun :)

Yes, I do not think any of us suggested sunshine alone would boost those D levels up where she needs them, rather we suggested it would help. (makes me want to move to Florida. The winters are long up here in the Northeast)

Medline:

Ten to 15 minutes of sunshine three times weekly is enough to produce the body's requirement of vitamin D. The sun needs to shine on the skin of your face, arms, back, or legs (without sunscreen). Because exposure to sunlight is a risk for skin cancer, you should use sunscreen after a few minutes in the sun.

and from a recent U.S News Health report (citing a study from the Archives of Internal Medicine):

"In the winter, it's impossible to produce vitamin D from the sun if you live north of Atlanta because the sun never gets high enough in the sky for its ultraviolet B rays to penetrate the atmosphere. But summer is a great time to stock up on the nutrient. When the sun's UV-B rays hit the skin, a reaction takes place that enables skin cells to manufacture vitamin D. If you're fair skinned, experts say going outside for 10 minutes in the midday sun—in shorts and a tank top with no sunscreen—will give you enough radiation to produce about 10,000 international units of the vitamin. Dark-skinned individuals and the elderly also produce less vitamin D, and many folks don't get enough of the nutrient from dietary sources like fatty fish and fortified milk.

The government's dietary recommendations are 200 IUs a day up to age 50, 400 IUs to age 70, and 600 IUs over 70. But many experts believe that these recommendations are far too low to maintain healthful vitamin D levels. They advocate for supplementation in the winter of about 2,000 IUs per day and a dose of daily sunshine in the summer."

heather806 Rookie

I've crawled my way from 13 to 44 in the past year by taking 2,000 IU's of D3 each day...but I wasn't gluten free until my diagnosis in June, so I am hoping my absorption improves. My B-12 is great, 875! (am supplementing with B-12 but bad about taking it every day)

IrishHeart Veteran

I've crawled my way from 13 to 44 in the past year by taking 2,000 IU's of D3 each day...but I wasn't gluten free until my diagnosis in June, so I am hoping my absorption improves. My B-12 is great, 875! (am supplementing with B-12 but bad about taking it every day)

Sounds like you are making good progress and yes, absorption will improve and those vitamin levels should normalize more rapidly.

Hang in there!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,765
    • Most Online (within 30 mins)
      7,748

    girgade
    Newest Member
    girgade
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I cannot tolerate it at all - triggers burning and nausea, ditto aspirin.  Here in the UK I take Paracetamol.
    • knitty kitty
      For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect.  These three B vitamins together work way better than those over the counter pain relievers.  Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed.  Thiamine will also help the nausea. Interesting Reading... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/#:~:text=Some of these processes include,Analgesics
    • knitty kitty
      @stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements?   Weight loss and failure to thrive are two symptoms of thiamine insufficiency.  Thiamine deficiency symptoms are not recognized as such by doctors.   I experienced similar symptoms when I became malnourished.  Thiamine deficiency symptoms can become worse quickly, and can affect one emotionally and mentally.  Although blood tests for thiamine aren't accurate, do have your daughter checked for nutritional deficiencies.  Thiamine B 1 works with the other B vitamins and magnesium.  Thiamine and Niacin B 3 help improve Gerd.  All the B vitamins are frequently low due to malabsorption.  Vitamin D will help calm the immune system.  Thiamine helps the immune system fight off viruses like those tick borne illnesses.   Thiamine Mononitrate, which is in many vitamin supplements, is not bioavailable.  I was taking a multivitamin containing thiamine mononitrate and still became deficient in thiamine. Thiamine in the form Benfotiamine has been shown to promote intestinal healing.  A form called TTFD (tetrahydrofurfuryl disulfide) is also excellent for correcting thiamine deficiency.  A combination of Thiamine, Cobalamine B12, and Pyridoxine B 6 has analgesic properties.  I take it for back pain.   Keep us posted on your progress! Interesting Reading... The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/#:~:text=Thiamine absorption in the jejunum,system [51–53].
    • trents
      Has prednisone or some other systemic steroid been tried that might quiet her immune system down for a while? I have two acquaintances with Lyme's disease. It is a wicked condition that has long fingers.
    • stephaniekl
      We have.  She is so limited as to what she can eat.  She has a nutritionist, but they are even at a loss.  Right now, her pain is so significant that she can only eat 5-10 bites a meal.   We just got some labs back today and she is hypoglycemia, anemic and her immune system is shot.  She also is positive for 3 tickborne illnesses.  Thanks for your help! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.