Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Did You Come To Realize You Had A Dairy Issue?


mommyto2kids

Recommended Posts

mommyto2kids Collaborator

My dh and I are wondering if we should cut out dairy and are wondering what led to your decision if you have cut it out. Please explain your symptoms that led to your decision. Thanks so much. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliebove Rising Star

Stuffy nose. Ear and sinus infections. The big D.

ncdave Apprentice

For me it was the bloated belly, all i could wear was sweat paints or a bathing suit. (elastic wastband) It was very painful an unsightly. GFINDC yep ole hosehead recommended i try an give up dairy. I did give up dairy an it went completly away!!! Now even a trace amount of dairy an it comes back within 5-10 mins. extremly painful for 3-4 hours just with a trace amount of dairy. If you think dairy might be giving you a problem try an give it up for a month, when you try an reintroduce it i recommend only use a teaspoon an see what happens.

SMDBill Apprentice

I've had it my entire life, but I know when I consume milk or ice cream that there will be a lot of payback in the form of diarrhea, stomach pain, bloating and internal hemorrhoids. Sometimes even a bit of oily stool. It's rough, it hurts and it's never worth it.

I switched to Lactaid milk and I take a dietary enzyme (lactase) - 2 pills of 9,000 units each - when eating cheese or other dairy. I drink the milk nightly (well, it's Lactaid and Hershey's syrup) and that helps because the lactose is removed. The cheeses seem to be fine with the enzyme.

Lactose intolerance is fine with an enzyme for many with intolerance like myself. They're cheap as well. Target brand Up & Up pack of 12 was less than $3. Worthy investment for lactose intolerance.

GottaSki Mentor

Dairy was the toughest for me to figure out. I removed it once shortly after gluten and did not notice a difference so added it back in.

Much later I removed it along with many other foods during a strict elimination diet for several months. When I trialed each dairy item separately I was able to tolerate butter, some cheese and cooking with milk/cream. Was not able to tolerate yogurt at all. When I completed the elimination and added butter, cheese and milk back into my cooking on a regular basis I became consistently bloated -- removed those items and bloating went away.

I remain hopeful that I will get dairy back once my stubborn digestive system heals.

GFinDC Veteran

..GFINDC yep ole hosehead recommended i try an give up dairy...

:D Hah Hah Dave, you caught me! :) We hoseheads have to stick together I guess. :)

My lactose intolerance started after a virus went around. After i got over the virus I got bloated and D every time I ate dairy. Stupid virus hit most everyone in the office but I don't remember anyone else having that happen. That was 7 years before gluten-free.

I did use lactase for quite a while and it helped. Lactase is the enzyme that breaks down dairy sugar in the gut. After going gluten-free I thot things would improve and they did. But I still had symptoms and finally cut diary out completely. Cow dairy has a protein called casein in it and lactase doesn't do anything for that. So if you are intolerant to casein you just have to stop eating it. I've tried it a few times the past several years. Things start not too bad but get worse every day. Gut pain, C, D etc. I start getting bloody stool after 3 days or so and wise up. So I don't think dairy likes me much.

AnnJay Apprentice

My problems with dairy started about 10 years before I stopped eating dairy. My arms developed itchy red bumps. Then more. Then it started on my tummy. It kept getting worse, not better, so I finally realized it was something I was consuming daily. The bit of milk in my morning cappuccino was the culprit. For a while I could still tolerate ice cream but that soon stopped. I went off dairy for years. Then I started with little bits of dairy (meals at others' houses, for example) and took lactaid. That seemed to help.

Once becoming gluten free I started eating more dairy, mostly in the form of yogurt and with lactaid, as I thought it would help heal my guts. The itchy rash came back. So I'm back to dairy free, though if there's absolutely nothing else to eat that is the one from my list that I can tolerate a bit of, as in, better dairy than the 3 day misery called gluten, or the migraine headache called corn, of the headache stomach ache called soy. The stomach ache from nightshades isn't so bad either, but probably not conducive to healing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



love2travel Mentor

It became obvious that dairy was bothering me a few months after cutting out gluten. Within about 15 minutes after ingesting dairy, my stomach began to cramp and I became very bloated. Then the diarrhea began. I went off lactose for a few months which helped and re-introduced it. At first it was fine for several months but the last three months or so whenever I ingest dairy the same thing happens nearly immediately. So, now I eat very little cheese (unless it will be worth it to me and then I take Lactaid, i.e. when in Paris recently) and drink/cook with Lactaid milk. I really hoped this would not happen again but it is. :(

srall Contributor

I was so sick for awhile that I cut gluten and dairy at the same time out of desperation. So when i added dairy back in (for a split second) I realized that dairy was actually what was giving me the severe diarrhea. I think gluten was doing a lot of things to my body, but the dairy was what chained me to the bathroom. My daughter (child) also gets those itchy rashy bumps from dairy. I don't seem to get that.

mushroom Proficient

A co-worker suggested it when I would run to the restroom half an hour after eating frozen yogurt. Long before gluten was realized as a problem, I might add.

Pegleg84 Collaborator

I cut out dairy last year after struggling with sinus problems and dizziness. After all the inner-ear tests came back clear and the doctor looked at me like I was nuts, I read that salt and dairy can contribute to sinus problems, so I cut back on salt, then cut out milk (well, milk, then ice cream, then yogurt, then cheese ---i miss cheeeeese!--- and finally anything with dairy in it).

May I note that there's a difference between lactose intolerance, which is a reaction to the sugars in cow's milk, and casein intolerance, which is a problem with the milk protein. Casein is similar in structure to gluten, so one theory is that for people with Celiac, our bodies can think casein is gluten and have a similar reaction to it. Also, unlike lactose that can be removed, casein is in ALL milk products, and in smaller amounts in goat and sheeps milk as well.

i'd say at first you should try lactose free and/or lactose digesting aids and see if that helps. If not, it might be casein and you're going to have to cut dairy completely.

I'm still clinging to hope that I'll be able to go back to eating some cheese eventually. Butter and ice cream I have good substitutes for, but cheese cannot be replaced.

Good luck figuring it out!

Peg

burdee Enthusiast

I cut out dairy last year after struggling with sinus problems and dizziness. After all the inner-ear tests came back clear and the doctor looked at me like I was nuts, I read that salt and dairy can contribute to sinus problems, so I cut back on salt, then cut out milk (well, milk, then ice cream, then yogurt, then cheese ---i miss cheeeeese!--- and finally anything with dairy in it).

May I note that there's a difference between lactose intolerance, which is a reaction to the sugars in cow's milk, and casein intolerance, which is a problem with the milk protein. Casein is similar in structure to gluten, so one theory is that for people with Celiac, our bodies can think casein is gluten and have a similar reaction to it. Also, unlike lactose that can be removed, casein is in ALL milk products, and in smaller amounts in goat and sheeps milk as well.

i'd say at first you should try lactose free and/or lactose digesting aids and see if that helps. If not, it might be casein and you're going to have to cut dairy completely.

I'm still clinging to hope that I'll be able to go back to eating some cheese eventually. Butter and ice cream I have good substitutes for, but cheese cannot be replaced.

Good luck figuring it out!

Peg

Have you tried Daiya Cheese? I can't eat dairy or soy. Daiya is gluten, dairy, soy free cheese and as good as any regular dairy cheese I've eaten. BTW, I've been dairy free (after dx of IgA mediated casein allergy) since 2004. I've found good replacements for all my former dairy favorites (yogurt, cheese, milk, ice cream, margarine, etc.) I know I can't ever return to eating dairy w/o bad reactions, because I had a few accidental consumption incidents over the past 8 years. Each one was more severe and more lengthy recovery time. If you're doing well w/o dairy, I would not advise returning to eating dairy, unless you really enjoy your reaction symptoms.

gatita Enthusiast

I am one of the rare folks who was born with lactose intolerance -- couldn't even tolerate mother's milk! Parents went crazy until they figured out I could only handle goat's milk. (I was 6 weeks preemie, apparently that goes with being lactose intolerant).

Later it went away, but in recent years it has come to rear its ugly head again (I'm 55). Symptoms are extreme gas and bloating very soon after drinking milk or eating ice cream, most yogurts and some cheeses.

Hard cheeses like cheddar are fine, thank goodness. I love my cheese.

I swear by chewable Lactaid tablets (2 at a time) but I still have a hard time remembering to take them!

Pegleg84 Collaborator

Burdee, yep, I've had Daiya. It's ok but just not the same. I've used it for pizza and mac-and-cheese(like substance), but mostly it's gone untouched in my fridge.

However, as an experiement, (and also to make sure I won't keel over in the UK next week, where gluten-free is easy, but dairy free is pointless) I had a few small pieces of hard, aged cheese and, aside from a rather mild, temporary headache, I was fine!! No problems later either! YAAY! Of course, I tried a bite of soft cheese and immediately my body said No. No way. So: hard and old, ok for a little bit. No binging. Not often. But now I know it won't kill me. (maybe it is lactose and not casein after all... or maybe all the digestive enzymes and general caution has helped. Either way, it's promising)

Of course, you're going to have to figure out what/how much you're still ok with. I'd say cut it all out for now, and try it again in at least 6 months.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.