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cruelshoes

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Everything posted by cruelshoes

  1. cruelshoes
    I consider myself a success story. Can I chime in? It started for me in 1987 when I was diagnosed with abdominal cancer at age 16. I had 2 years of chemotherapy and many radiation treatments on my abdominal area. The diarrhea started with the chemo/radiation and never went away. The doctors diagnosed me with radiation enteropathy, or damaged villi...
  2. cruelshoes
    You see how the bottom of each message in the thread there are 2 buttons - one says reply and one says quote? If you click the reply button, you will just reply to the one you clicked on. If you click the quote one, it won't pop up another window, but will change color. Do this to as many of the comments in the thread as you want. Then click the reply...
  3. cruelshoes
    A few days is not enough to skew the bloodwork, but children are notoriously fast healers. Leaving gluten out of ones diet for one week can cause enough change to be visible on the biopsy. I would put him back on gluten until the testing is complete to your satisfaction (bloodwork and/or biopsy). If you want to go ahead with testing, do it without delay...
  4. cruelshoes
    We spent the weekend planting peas, carrots (3 varieties, including rainbow), sunflowers, spinach, lettuce (2 varieties) marigolds (3 varieties) and chives. When it warms up a bit, we will plant beans, basil and pumpkins. I started my tomatoes from seed this weekend, which is a little bit late, but we
  5. cruelshoes
    It's the bean flour you are tasting. I don't use any of Bob's bread mixes or the all purpose flour for that reason. I can only stomach bean flours in something that has another strong flavor to cover it up. Try using it for making brownies or something with spices. Some of us are supertasters when it somes to the bean flour. I'm the same way with quinoa...
  6. cruelshoes
    In addition to severely damaged villi, my son was found to have 5 large polyps in his stomach. The GI said that it was probably due to the constant irritation from the gluten. She did not remove any of them, but did take a biopsy of one. It was benign, and she said the polyps would most likely go away on a gluten-free diet. Villi damage can sometimes...
  7. cruelshoes
    I was diagnosed with Osteoporosis at age 25. I took fosamax for about 6 years. I also took Miacalcin for about a year. For that year I was taking both fosamax and miacalcin. I didn't have any problem with either drug. The only thing with the miacalcin was that it made my nose run a bit when I first started taking it (that went away, though). And you...
  8. cruelshoes
    Hope your day is full of great things. That's a good lipstick color. Hotcha hotcha.
  9. cruelshoes
    Cheerios are definitely off limits. They contain mainstream oats (can be contaminated with gluten grains) and wheat starch.
  10. cruelshoes
    I bake 2 leaves a week of the Pamela's mix too. I use a 9x5 glass pan and the paddle attachment on my kitchenaid. I would not use the whisk attachment. I think it would be gummed up too much in the wires and not get mixed enough. I think an 8x4 pan would be too small. The thing that threw me about the Pamelas mix at first is that it does not rise very...
  11. cruelshoes
    I'm over here on the Left Coast, but I've heard great things about Open Original Shared Link. Maybe they do wedding cakes.
  12. cruelshoes
    Tip for the day: Do not attempt to use Mojave Camping as an eyeliner. It will make you look like you have been up all night taking Meth.
  13. cruelshoes
    Truer words have never been spoken. I filled up an eyeshadow sampler, and now I'm going to think about it. If I do order it, I would own all of the shmmers and all of the pearls. I must think about it for a few days. It's like the waiting period to buy a firearm or something. That might be a good idea. I own the following blushes...
  14. cruelshoes
    I always try to look for the best in people and believe that, most of the time, people have good intentions. BUT...... Anyone that cannot be trusted to read and understand a label cannot be trusted to feed our children. Period. I would not allow anyone to repeatedly gluten my child. I doesn't have to get confrontational or anything, I would just immediately...
  15. cruelshoes
    No problem! Just sharing the gluten-free joy. PS - I'm a girl Cruelshoes, not a boy one.
  16. cruelshoes
    At least the specials are getting better..... Now the dilemma - I don't realy NEED anything, but I like the special. What to do, what to do....
  17. cruelshoes
    I find this thread fascinating and disgusting at the same time. A question for those who have used it. Is *ahem* deworming oneself something people should do as a preventative measure, or should you only wait to feel bad? I mean, I feel pretty great 90% of the time, but maybe I could feel even better if I got rid of the proverbial bats in the intestinal...
  18. cruelshoes
    Sinking bread generally has one or more of these 3 causes: Too much water, not done in the middle or letting it rise too long before baking. The best thing I have ever done to increase my successes with gluten-free bread baking is to get an instant-read digital thermometer. Many times I would bake gluten-free bread for the amount of time that was specified...
  19. cruelshoes
    You may find something helpful on the links below. Open Original Shared Link Open Original Shared Link
  20. cruelshoes
    I would echo everything Ravenwood glass said. Easy to grab protein sources could be as easy a rolled up lunchmeat, an handful of nuts, some peanut butter on a gluten-free rice cake. It sounds like you may not be eating enough and are suffering the lows from it. You mention eating Bob's Red Mill corn flour. That is not gluten-free. It is produced in...
  21. cruelshoes
    I don't know enough about refractory celiac to comment about that. I did find this, however: Open Original Shared Link I know you said you have already done this, but I would go back again and triple check everything that goes on or in her body. This includes food, supplements, OTC and prescription medications, shampoo, hand lotion, etc. Gluten...
  22. cruelshoes
    My son and I had our antibodies tested twice in the first year. We now have them checked once a year. Open Original Shared Link
  23. cruelshoes
    From the University of Chicago Celiac Disease program. Open Original Shared Link Probably a few months at least, and then you may or may not get positive results. Good luck on your challenge. I'm not sure I would be able to do it, but I hope it gets you the answers you need.
  24. cruelshoes
    You are not being thick at all! Considering you probably hadn't heard much about celiac before your child got tested, you are practically an expert now. I'm going to give you a whole bunch of information - sorry if its overload. Open Original Shared Linkof the different types of antibodies: The five major types of antibodies are: ...
  25. cruelshoes
    I'm with Juliebove. I wouldn't chance it. Too much chance for CC. And even if it is gluten-free, it would be just about the only thing on their menu, outside of shredded lettuce and tomato slices, that is. Open Original Shared Link Not even the mashed potatoes are safe there.
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