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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    With NCGS there isn't villi damage, so it would not be detected via an endoscopy/biopsy. There also may not be high levels of tTG-IgA or tTG-IgG (sometimes they can be elevated, but in the normal range), but these blood tests may be slightly elevated or even high in people with NCGS: DGP-IgA and DGP-IgG (Deamidated Gliadin Peptide), but, you can still have...
  2. Scott Adams
    Do you happen to have the reference ranges for those blood tests, as they vary from lab to lab? Just the results don't mean much without those ranges. A gluten challenge would be the only way to get a formal diagnosis of celiac disease, and if the idea of eating lots of gluten for weeks sounds horrible to you, then you likely have either celiac disease...
  3. Scott Adams
    More information about "Is McDonald's Gluten-Free? A Complete Guide to Safe Menu Options (+Video)"
    Celiac.com 03/07/2025 - For individuals with celiac disease or gluten sensitivity, dining out can be a daunting experience. Fast food restaurants, in particular, pose unique challenges due to the high risk of cross-contamination and limited...
  4. Scott Adams
    I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t sh...
  5. Scott Adams
    Sorry but I don't have specific recommendations for doctors, however, starting out with good multivitamins/minerals would make sense. You may want to get your doctor to screen you for where you different levels are now to help identify any that are low, but since you're newly diagnosed within the past year, supplementation is usually essential for most celiacs...
  6. Scott Adams
    More information about "New Study Reveals High Risk of Digestive Cancers in Patients with Celiac Disease"
    Celiac.com 03/06/2025 - Celiac disease, a chronic autoimmune condition triggered by gluten ingestion, is widely recognized for its impact on the digestive system. Beyond its more common symptoms, the disease has been linked to an elevated...
  7. Scott Adams
    It sounds like you’ve been through a challenging journey since your celiac diagnosis, especially with the unexpected neurologic symptoms like muscle twitching and hand tremors. While celiac disease is primarily known for gastrointestinal issues, it’s important to recognize that it can also manifest in non-GI ways, including neurological symptoms. Research has...
  8. Scott Adams
    Thanks for sharing this! Here is more info about those cookies: https://partakefoods.com/collections/cookies
  9. Scott Adams
    According to their site: https://shop.hersheys.com/our-brands/reeses/034000943265.html
  10. Scott Adams
    The positive Anti-deamidated Gliadin IgA result (12 U/ml) suggests possible celiac disease, but it is not definitive on its own, as this marker can also be elevated in other conditions or even in non-coeliac gluten sensitivity (NCGS). Do you know if they also ran a tTg-Iga test? This is the definitive test for celiac disease. The absence of classical symptoms...
  11. Scott Adams
    You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance"...
  12. Scott Adams
    Little Leaf Farms is voluntarily recalling a specific lot code of its Southwest Salad Kits due to the potential presence of undeclared fish and wheat allergens. People who have an allergy or severe sensitivity to wheat and/or fish run the risk of serious or life-threatening allergic reaction if they consume these products. The affected product was produced...
  13. Scott Adams
    Celiac disease can be tricky to diagnose, especially if you've already started eliminating gluten from your diet, as this can lead to false negative blood test results. The gold standard for diagnosing celiac is typically a combination of blood tests and an endoscopy with biopsy, but if your gastroenterologist isn't recommending further testing, it might...
  14. Scott Adams
    As I mentioned, gluten intolerance encompasses more than just those with celiac disease, and in the past was used more like the term "gluten sensitivity" is used today.
  15. Scott Adams
    By the way, have you been diagnosed with celiac disease, and if so, are you on a 100% gluten-free diet?
  16. Scott Adams
    More information about "Gluten-Free Tamago Sushi: A Sweet and Savory Delight"
    Celiac.com 03/04/2025 - Tamago sushi, or “egg sushi,” is a beloved staple in Japanese cuisine, often enjoyed as a satisfying finish to a sushi meal. Its name, “tamago,” simply means egg, and it refers to a sweet, layered omelet that is...
  17. Scott Adams
    Welcome to the gluten-free community! It’s great to have you here. While gluten sensitivity or celiac disease can indeed cause skin issues, such as dermatitis herpetiformis (a blistering rash), abscesses in areas like the lower buttocks or thighs are less commonly linked directly to gluten. However, chronic abscesses could be a sign of an underlying immune o...
  18. Scott Adams
    PS - Many new celiacs report that they can go gluten-free, with the exception of giving up beer. That seems to be a bridge too far from many celiacs, and may be why nearly 20% cheat on their diets:
  19. Scott Adams
    For those with celiac disease we know that there is a huge range in sensitivity, for example we've had many members here who report that even smelling wheat bread cooking in a bakery, for example a bakery in a supermarket, triggers an immediate gluten reaction that can last days or longer. Is there science to back this up--not that I've seen. Does this mean...
  20. Scott Adams
    Actually, gluten intolerance and celiac disease are not the same. Celiac disease is an autoimmune disorder triggered by gluten, while gluten intolerance is a broader term that can include Non-Celiac Gluten Sensitivity (NCGS). NCGS involves gluten-related symptoms without the autoimmune or allergic response seen in celiac disease. The terms are often used...
  21. Scott Adams
    Given the nefarious nature of celiac disease and how it strips nutrients from your body, I believe we've seen virtually every type of abdominal pain here described as a symptom. In my case it was mostly in my lower right quadrant. While gluten intolerance or celiac disease primarily affects the digestive system, it can sometimes cause referred pain in areas...
  22. Scott Adams
    I was also surprised to learn that Morton Iodized Salt contains: "Salt, Calcium Silicate (an anticaking agent), Dextrose, potassium iodide." Their non-iodized version contains only salt. https://www.mortonsalt.com/home-category/culinary-salts/
  23. Scott Adams
    Given your history of a high TTG (167) that decreased to 16 on a gluten-free diet, along with genetic confirmation of celiac disease, it’s likely the negative biopsy is a false negative due to not eating gluten before the endoscopy. Gluten is necessary to trigger the intestinal damage seen in celiac disease, and avoiding it can lead to healing and a normal b...
  24. Scott Adams
    Yes, it sounds like great progress, but what was the time frame between the two endoscopies?
  25. Scott Adams
    Your symptoms—headaches, dizziness, nausea, irregular bowel movements, anemia, and menstrual changes—along with a family history of celiac disease, strongly suggest celiac disease could be the cause. The mild duodenal changes seen in your biopsy are consistent with early or mild celiac disease, though they could also be due to other factors. The improvement in ...
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