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Scott Adams

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Everything posted by Scott Adams

  1. Which reminds me that I'm probably overdue for the same...
  2. This varies a lot from person to person as well, but I experienced similar gut feelings when I ate corn, chicken eggs, tomatoes and dairy (casein) before and after my diagnosis. This was likely due to the leaky gut situation caused by my flattened villi, and I also had internal bleeding due to the celiac lesions found during my biopsy. I had to also eliminate...
  3. Have a look at this recent study: Note that the rate was higher than 44% among female relatives, so it's actually higher.
  4. @raspberryfirecracker welcome to the forum, and thank you for sharing. I'm aware of mast cell activation, and we've covered it in many of our site's articles: https://www.celiac.com/search/?q=mast cell&quick=1&type=cms_records2 and I find your approach of dealing with it using antihistamines and anti-inflammatories interesting, and in our...
  5. I want to say "welcome back," but you now hold the world record on this forum for the longest member stuck in the denial phase 🙄. Did you know that because your mother has celiac disease you have a greater than 44% chance of also having it? That is what the latest research shows. Regarding your home test kit, technically speaking you're supposed to...
  6. Supplements should help, but of course the main thing is to cut out all gluten, which it sounds like you've done.
  7. It's not 100% clear from your first post whether you've been maintaining a gluten-free diet for the 2.5 years, as you mentioned eating a hamburger and fries. Did the hamburger have a gluten-free bun? Did you order it at a restaurant? If you eat out, that is a likely source of contamination. You are on the right track with re-checking your diet to make...
  8. This can vary greatly from individual to individual. Super sensitive people claim they get severe symptoms only minutes after ingesting gluten, while other may have no symptoms at all. Some people say it takes 24-48 hours, which can make it very hard to identify the source of contamination. How long and severe the symptoms are can also vary greatly. Generally...
  9. Yes, it is a possibility that your celiac disease, similarly to Type I diabetes, kicked in at that time. If you keep eating gluten I suspect your symptoms would continue to get worse and worse, and you may end up with full blown celiac disease with flattened villi and malabsorption of nutrients (trust me that you don't want to go there!).
  10. Here are some articles on villi damage from other foods besides gluten. They are quite old, but I will try to find newer ones:
  11. Casein intolerance...but you'd have to look at some of the summaries there.
  12. Good question. We have some really old summaries here, and I'll bet there is a lot more that have been done on this: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/casein-cows-milk-intolerance-and-celiac-disease/
  13. Many people who are gluten sensitive don't have villi damage. It would not hurt to contact the GI and aske them how many samples they took, and if they used the Marsh scale to grade them. At least 4 samples are recommended, and then they should be graded using the the Marsh scale. Given your high DGP results though, some doctors would diagnose you with...
  14. Personally I don't think it's a waiter's job to "get suspicious" about orders. The restaurant should either be able to do gluten-free meals or not, and should simply provide a gluten-free order, or not--in which case they should explain exactly why they can't provide the gluten-free order. It should make zero difference if someone orders a gluten-free...
  15. This article may be helpful, but be sure not to go gluten-free until you find out whether or not your doctor wants you to do a biopsy to confirm the diagnosis:
  16. You DGP results, which are the best tests available, are high positive, so it looks like you likely have celiac disease. Many doctors are diagnosing celiac disease via blood tests alone, however, your doctor may also want you to do a endoscope/biopsy to confirm it. Normally you need to keep eating gluten until that part is finished, so be sure to consult...
  17. I think they turn around results quickly, and you should know within a week.
  18. There is research which shows that cow's milk (casein) can also cause an increase in the ttg levels to those who are sensitive to it. This happened to the patient in a story we published today: and here is the research on this: https://www.sciencedirect.com/science/article/pii/S2341287918301601
  19. It's interesting that medicinal clay is attributed to having anti-inflammatory effects. I wonder it that's true?
  20. @knitty kitty this is very interesting, and we'll do a summary of this research: The patient in this new article we published today also experienced high ttg until they also eliminated dairy:
  21. It’s strange that your villi recovered but you still have high antibody levels. You didn’t mention your symptoms...are you still having symptoms consistent with gluten exposure? I was thinking that perhaps you could go grain-free for a time, then retest, but this is not easy to do.
  22. I am a side sleeper but you can sleep on your sides or back. It has a bamboo frame inside and is slightly flexible. It gets more flexible with age, and can last about 5-10 years. I got mine at a day market in Taiwan where the are referred to as traditional pillows, almost everybody used to use them, but many now use Western pillows.
  23. Please share your testing experience with us.
  24. This thread is inspiring! The general belief is that if celiacs go gluten-free and eat a well-balanced diet (replace the fiber missing from the wheat you subtracted), they should have normal life spans. I would add that they will have much longer life spans because they treated a very dangerous disease. Yet I still have a cousin who have this and won’t g...
  25. Yes on the feathers...and bones...I’ve never tried it, so can’t vouch vor it as a delicacy, Fresh duck eggs are great, and are almost always free range.
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