Pegleg84
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Latest Celiac Disease News & Research:
Everything posted by Pegleg84
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	Hi Dani the pain you're having sounds familiar! I had the worst pain ever (worse than most glutenings) last year after a bowl of quinoa (which I am still avoiding out of fear), and now get the same pain (less intense, thank goodness) on occasion when I eat random things like too much brown rice, or heavy meat, or anything that my gut decides it doesn...
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ARCHIVED Gluten-Free To What Extent?
Pegleg84 replied to HuberNS92's topic in Coping with Celiac Disease
Did you have a biopsy done? Blood testing can sometimes be false-negatives, so if you're willing hold out and eat gluten a while longer, a biopsy would tell you whether or not there's damage to your villi. If there's not, then its more likely you have NCGI. Of course, it's up to you. My bloodwork was also negative and I didn't do a biopsy (couldn't wait... - 
	January was a while ago, so getting your thyroid tested again is probably not a bad idea, but jumping straight into meds without knowing if there's a problem is probably also not the best idea... especially if you don't know yet whether the iron infusions will help or not. However, there could be more going on that just iron-deficiency, especially since...
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ARCHIVED Is It Damaging To Keep Going In Pain?
Pegleg84 replied to CaliSparrow's topic in Coping with Celiac Disease
Hi Cali I think a lot of us debate the "do I stay home and wallow, or do I suck it up and go to the party" problem. I know I do, and often wonder if I'm not being too much of a wuss about it. But you know, it has to come down to what YOU want to do. If you feel its worth pushing through the pain to go do something you want to do, then do it. If you can... - 
	Short answer: NO!! slightly more complicated answer: sometimes symptoms will seem worse if I worry about them (usually neuro stuff, not gastro stuff), but the actual cause of them is legit. Yes, there are hypochondriacs out there who will have "symptoms" of conditions they don't actually have, but doing it "just to fit in?"... oy! I am amused that...
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	I eat kale. a lot of it. It's got all the good stuff. Great to hear it got your iron up so quick! When I was about 16, my iron plummeted to 4. Yep. It took a few months to get it back up to 12, so I know what anemia feels like. Thankfully it's never been that low again. (If Celiac disease had been on the radar at the time, i probably could have been diagnosed...
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ARCHIVED Has Anyone Healed Some Of Their Intolerances?
Pegleg84 replied to Maryw88's topic in Food Intolerance & Leaky Gut
I (try to, slacked off this year) take Vitamin D supplements all winter at least, which definitely helps keep the sniffles away. B12 and other B vitamins are supposed to be good for combating depression and generally good for energy and mental health. My b12 tends to be a bit low, as does my iron levels, borderline anyway, so I do (try to remember to) take... - 
	
ARCHIVED I Don't Know What To Do Anymore!
Pegleg84 replied to lovechild's topic in Coping with Celiac Disease
2 1/2 months is still pretty early days. It could be your gut is still healing from the gluten damage, and your system is all wonky at the moment. It might be a little early to do a full elimination diet, especially if leaky gut is making you react to things for no real reason. If in a few months you're still having problems, then it's time to look for intolerances... - 
	
ARCHIVED Wheat Syrup/wheat Starch
Pegleg84 replied to EmiPark210's topic in Coping with Celiac Disease
If it says wheat... I wouldn't trust it, even if it does say it's gluten free. Anything where the gluten's been "removed" kind of freaks me out. But if you don't end up getting ccd, then maybe you don't have a problem with it. Might be worth contacting the company to see what their testing standards are. - 
	Ferrous sulphate has more iron, but its harder on the stomach. May be you can talk to your doctor about switching to ferrous gluconate, something easier to absorb, and just take it more frequently? Taking it with vitamin c is supposed to help absorption. But ditto on waiting to know the actual results. Your new doctor's "standard" for low iron could be...
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ARCHIVED Have You Been Told It Is All In Your Head?
Pegleg84 replied to lovechild's topic in Coping with Celiac Disease
Nope, you can't think yourself into having the big D. Seriously. On occasion I worry that some symptoms are more linked to stress than to something I ate, but it's usually a combo of the two, but if it's something "in my head", then calming down doesn't make the stomach pain go away. The things that happen to our bodies are real, and are caused by things... - 
	Did you ever have a biopsy done? Blood test are more likely to be false negatives than false positives. Mine all came back negative, but so did my sister's and her biopsy came back positive (I'm self-diagnosed. Couldn't wait for a biopsy). If you haven't, you should have one done. You need to be eating gluten for at least the test to be accurate, but even...
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ARCHIVED Cross Contamination - The Bane Of My Life!
Pegleg84 replied to Greebo115's topic in Coping with Celiac Disease
If you were glutened recently (and over a period of time, since you say it took a while to figure out what was up with the beans) then it could be that you're still recovering from that. I find I have trouble with perfectly safe foods for a week or so after getting glutened. Digestive enzymes might help you out. If it keeps up though, try not using your... - 
	
ARCHIVED When You Don't Get Glutened
Pegleg84 replied to Pegleg84's topic in Coping with Celiac Disease
I guess I put a little too much emphasis on the Chicago part of this post. I'm wondering about people's good experiences with... whatever. Maybe it's a family dinner that went well, or discovering that your local gluten-free bakery now makes doughnuts, or just going more than a month without any issues. "Yay! No glutening!" *happy dance* moments. - 
	
ARCHIVED What Brand Of Pasta Do You All Buy?
Pegleg84 replied to CommonTater's topic in Gluten-Free Foods, Products, Shopping & Medications
I always know it's done when all the starch rises to the top. A suggestion, no matter what kind of pasta you're using: undercook it a little (al dente), rinse it it cold water, then put it in with whatever sauce or such your having it with and let it heat back up in it. That seems to help get the starch off and it holds together a bit better. - 
	Oh, Chicago, how I love thee! This weekend I went to Chicago, again. For the 2nd time, it was one of the best gluten-free culinary experiences of any city I've been in. It's everywhere! and they seem to be much more conscious of cc and such because, for the 2nd time, I've been home for a couple days and NO GLUTENING! Yay!! I was even brave (or stupid...
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ARCHIVED Need Help Finding A Good Soy Free, Gluten Free Lip Balm
Pegleg84 replied to sylviaann's topic in Gluten-Free Foods, Products, Shopping & Medications
I also can't do soy, and while I still use some creams and stuff with soy in it with no problems (as far as I can tell. They work too well otherwise for me to switch), it definitely can't go on my lips. Check out your local (if you have one) health food store and inspect all the labels. I've been using Hurraw!, which is organic and vegan, gluten and soy... - 
	
ARCHIVED What Brand Of Pasta Do You All Buy?
Pegleg84 replied to CommonTater's topic in Gluten-Free Foods, Products, Shopping & Medications
I've been eating a lot of corn pasta lately, usually Sammills (they sell it for a good price at my local grocery). I find it holds up better than rice pasta. Or I go down to the Italian grocery and splurge on some good imported italian stuff. They've really got it right! I usually get a rice/corn mix if I'm making dinner for someone or taking potluck, as... - 
	
ARCHIVED Dunkin Donuts gluten-free?!
Pegleg84 replied to Pegleg84's topic in Gluten-Free Restaurants
re: gluten free facility, that's good to hear. I hate it when they have articles like this but don't say the real magic words: made on dedicated lines! Cakey is better than nothing. If anyone has chance to try one when they show up, do report back. - 
	Hi all So, I don't live in the US so this probably won't apply to me, but while looking at gluten-free stuff in Chicago I just came across this annoucement: Open Original Shared Link from the article: The coffee and breakfast chain owned by Open Original Shared Link. will sell gluten-free cinnamon-sugar doughnuts and blueberry muffins in all...
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ARCHIVED Gluten Free Heaven And Donuts!
Pegleg84 replied to Adalaide's topic in Gluten-Free Foods, Products, Shopping & Medications
I was lucky enough to have my first gluten-free doughnut a couple weeks ago, from a gluten-free/vegan bakery here in toronto. More cakey than fry-ey, but ooohhhh sooooo goooood! Good thing this place is a bit out of the way for me, or I might end up with a doughnut habit. They also had pretty fantastic gluten-free/vegan bread. Aparently the baker went through... - 
	Sounds like you're on to something. Great to hear that you're feeling better without wheat, which i'm sure is now without Gluten. Yes, go get tested for the sake of it. Also get your vitamin levels, etc etc checked out. Talk to your doctor about your symptoms and that you've been feeling better wheat/gluten free. Even if the tests come back negative,...
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	that's good news! Less stink and more eggs. Enjoy!
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	I just had a dentist apt yesterday, so this is on the brain. I've been going to the dentist since I was little, so never had a problem with it. I had the same dentist for 25+ years, and he was great. So last year when I saw a different dentist in Toronto for the first time, I was a little nervous, and not super impressed. However, turns out he's no longer...
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ARCHIVED Not Wanting To Attend Any Social Functions Involving Food
Pegleg84 replied to Shanmegjilal's topic in Coping with Celiac Disease
Eat first or bring your own. That's really the only way to do it. I don't go to many things, but don't like to miss a chance to hang out. At least something like a bbq is more casual. A dinner party would be tricky, in which case I'd talk to the host about it first. I know a lot of other celiacs, but now with the soy/dairy trouble, even then I can't partake...