mamaw
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Latest Celiac Disease News & Research:
Everything posted by mamaw
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ARCHIVED Celiac In 5 Year Old?
mamaw replied to Quaylern's topic in Parents, Friends and Loved Ones of Celiacs
children's hospital in Columbus Ohio has a great celiac program.... -
ARCHIVED Starting To Wonder (List My Symptoms)
mamaw replied to EverKiy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
there are many but I use digestive enzymes called DIgest Gold......I use several probiotics as one should switch brands occas.....And everyone has to find what works for them... I use Dr O'hirra's twelve point professional formula, align, pearls...floragen... Others have luck with other brands so I'm sure some will also tell... -
ARCHIVED Starting To Wonder (List My Symptoms)
mamaw replied to EverKiy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
For the tummy try Digestive enzymes & probiotics..... you will be pleasantly surprised.... -
ARCHIVED Celiac Family
mamaw replied to hmporter5's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello & welcome... I guess you can out number the gluten eaters in your house so celiac wins!!!! You don't say what state you are from but it you would mention that it would help in guiding you to friendly restaurants & such.... There is a learning curve when beginning the gluten-free lifestyle.. I don't call... -
ARCHIVED Starting To Wonder (List My Symptoms)
mamaw replied to EverKiy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with Ravenwoodglass.... Call around your area to try to find a doc who understands celiac.. A hard find but they are around... If you would post your area we could help you find a "special "doc.....Most still know next to nothing about celiac... and another thing I would check out is a thyroid panel done..(... -
ARCHIVED Celiac In 5 Year Old?
mamaw replied to Quaylern's topic in Parents, Friends and Loved Ones of Celiacs
I don't know your doctor but usually they do blood tests first then go for the scope... I guess it would be up to the doctor. blood tests are less invasive.... -
So glad things are looking better for you...The challenge can be over the top at times... congrats....
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ARCHIVED Celiac In 5 Year Old?
mamaw replied to Quaylern's topic in Parents, Friends and Loved Ones of Celiacs
You stated his girlfriend was a nurse & should know better..... My disagree was that the medical profession has come a distance but most still are in the dark about celiac or NCGS.... most never learned about celiac in med school or nursing school... I know hundreds of nurse's & most knew little or nothing about... -
ARCHIVED Celiac In 5 Year Old?
mamaw replied to Quaylern's topic in Parents, Friends and Loved Ones of Celiacs
good luck... just remember all this tip toeing around your ex is about your daughter.. ANd I know many many nurses who get dx'd with celiac & have no clue... so I'll have to disagree with you on that one...heck much of the medical profession have no idea about celiac & even less about NCGS..... You just take care of... -
ARCHIVED Celiac In 5 Year Old?
mamaw replied to Quaylern's topic in Parents, Friends and Loved Ones of Celiacs
if the test comes back negative she still could have NGCS....And at present t here is no test for that except the elimination diet....I would also get all the info I could find & shove it in his face & tell him to learn & read....I think he is just not wanting to realize she may have a problem...... -
ARCHIVED Celiac In 5 Year Old?
mamaw replied to Quaylern's topic in Parents, Friends and Loved Ones of Celiacs
okay wasn't sure about that....As bad as a scope sounds its really not that bad... Our kid had one done at age 2 1/2..... can't help with an ex-husband!!! Could it be he is pushing your buttons ? You must do right by your daughter & her health is what is important here not his feelings.... so you may ... -
I think it is wonderful they consider your needs.... just as long as they understand what gluten is..... and if it truly bothers you just offer to prepare you own food & match it to what they are having for the party....
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ARCHIVED Eating Single Ingredient Foods When At Gatherings
mamaw replied to BlessedMommy's topic in Coping with Celiac Disease
If plastic utensils are scratched & can hold crumbs & such it could become a problem. Honestly most restaurants do not use plastic. that I have ever seen when being in their kitchen.. Many do use color coded utensils to be able to separate the wheat utensils from the gluten-free utensils... -
ARCHIVED Celiac In 5 Year Old?
mamaw replied to Quaylern's topic in Parents, Friends and Loved Ones of Celiacs
so her tests came back high even though she was not eating gluten???? If she is already off gluten a scope may NOT be of any help for a confirmation....You could do DNA testing but again that does not give confirmation of celiac either... -
I would certainly check out the rot.chicken as not all rot. chik. is gluten-free....te only thing I'/we have eaten there is the chicken salad in a bowl.. We buy a bad of food for life gluten-free chips to dip ... I do know at our WF it is gluten-free....
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ARCHIVED Cc From A Teflon Pan?
mamaw replied to FruitEnthusiast's topic in Food Intolerance & Leaky Gut
Do you have thyroid issues? I know many with thyroid issues that can't eat the cauliflower, spinach, broccoli, eggplant .....I love all fruits & veggies but many of them I must be careful..... -
ARCHIVED Celiac Chef In Regular Restaurant?
mamaw replied to TCH01's topic in Gluten-Free Restaurants
some people are not very sensitive but for others that would be a disaster for their health.... There are schools for gluten free who wish to become chefs....flour can stay airborne for over four hours...High Schools make students take auto repair & cooking ( both genders) in our area... our kids being gluten-free... -
ARCHIVED For Those With Thyroid Disease: How Did Celiac Affect Your Meds?
mamaw replied to 0range's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
corrie I too have no functioning thyroid gland due to RAI...dead in the water, they can't even find any traces of a gland on my ultrasound.... I also too have Grave's.....I was on Synthyroid for years .. I got to the point where I couldn't function & got very ill... I demanded to be switched to a whole glandular ( 2 1/...- 8 replies
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ARCHIVED Eating Single Ingredient Foods When At Gatherings
mamaw replied to BlessedMommy's topic in Coping with Celiac Disease
Anyone can get glutened anywhere including Grandma's!!!!! You know your own family so I think you & you alone can be the judge on whether you would feel safe eating at another's home.... I have some family & friends that bend over backwards to make sure there's no gluten , others forget it , they don't care... I ... -
ARCHIVED Self-Diagnosis
mamaw replied to newuser01's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Also there could be a good chance of cross contamination issues here.... And I agree with other posters two isn't time to heal your body....another thought is you can be reacting to other foods now even though they may not contain gluten....Try digestive enzymes & probiotics as well.... -
ARCHIVED Eating Single Ingredient Foods When At Gatherings
mamaw replied to BlessedMommy's topic in Coping with Celiac Disease
In my eleven years being a very strict celiac I have never been glutened by fresh veggies or fruit.........you can add cheese tray to that as well.... -
ARCHIVED Digestive Enzymes
mamaw replied to notme's topic in Gluten-Free Foods, Products, Shopping & Medications
count me in on loving digestive enzymes & probiotics... Honestly all celiac folks should use these two items.... -
ARCHIVED Role Of Probiotics In Improving Gut Health In Celiac Disease - Celiac.com
mamaw replied to Scott Adams's topic in Publications & Publicity
Does anyone know of a specific brand that has these specific strains of the probiotic mention in this article? I take several name brands and alternate them... thanks -
ARCHIVED New- Just Got A Diagnosis
mamaw replied to ashleyld's topic in Parents, Friends and Loved Ones of Celiacs
aroma dough is gluten-free;;;;;; soy yer dough (modeling clay) is gluten-free.... There are many others.... The adventures of a gluten free mom blog has a review of gluten-free play doughs.... I tried to copy & paste but it wouldn't let me.... If she is school age please make contact with the school in regards to celiac... -
ARCHIVED Cracker Question
mamaw replied to mbrookes's topic in Gluten-Free Foods, Products, Shopping & Medications
Breton crackers are very yummy but do contain soy which is not good for me.... The closest cracker out there to a saltine is Galbusera.. zero grano., they come from Italy & are packaged in 4 crackers to a wrapper with 12 twelve wrappers in a package....the only thing is they are not salty like a salted saltine... but again...