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mamaw

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Latest Celiac Disease News & Research:

Everything posted by mamaw

  1. mamaw
    If your Mum was on a gluten free diet before testing it would not give an accurate result....And my comment is if she feels better eating gluten-free & does not care about a formal dx's then she should stay with what makes her body feel best. anyone can have a sensitivity to gluten but not have full blown celiac...
  2. mamaw
    I don't have time to look up each place but if you Google gluten free Pensacola, Fl. a lot comes up......
  3. mamaw

    ARCHIVED Wedding Cakes

    mamaw replied to ryann14's topic in Gluten-Free Restaurants

    check out Deby's.......
  4. mamaw
    Years ago envelopes contained gluten but haven't heard of any lately....NCGS,,,, they are working on testing , ... Not sure who Dr Hyman is....lots of inaccurate info floating around..... one chews it up , spits it out & there it is......I don't swallow everything Dr Oz comes out with either!
  5. mamaw
    You are so welcome.....as with everything in life,, one size doesn't always fit all....
  6. mamaw
    probiotics debate:::::: I think we all have ones that work for us & some may work wonders for some & for others not so much.... for me Culturelle is one that didn't work for me. I had no health issues with it , it just didn't help me..... I do believe we should switch probiotics on & off giving the body different...
  7. mamaw
    Could you be getting CC somewhere? ie: pet food, not that you eat it but dog's & cats love to lick us...bird 's in the house? other members of the household eat gluten? Do you dine out a lot? boyfriend/girlfriend eat gluten? Kissing can make a sensitive celiac very ill....toothpaste have gluten? Has scratched utensils...
  8. mamaw
    While healing one should avoid many things...you need to eat very clean & pure for about at least 6 months or a year.....your body is struggling to heal , it needs all the help it can get from you.... I agree with cyclinglady..... many times it isn't the wine per say but the sulfates added in the wine..... Frey Vineyards...
  9. mamaw

    ARCHIVED Crps

    mamaw replied to Adalaide's topic in Related Issues & Disorders

    I'm so sorry this illness has come to you....You are in my thoughts & prayers... It is hard for others to understand your pain.... I have read a tad about this & I see many say to follow an anti-inflammatory diet plus vits & mins.... Are you into holistic medicine ? Also I wonder if acupuncture would help ease ...
  10. mamaw
    Hi If your tests come back negative for celiac, remember you could be sensitive to gluten. But other things: gallbladder, H-pylori, gerd, hernia to think of a few other things to check....you also can do a scope with at least four biospies... but be sure you are eating loads of gluten for a few weeks....
  11. mamaw
    glad things are looking better for you.....
  12. mamaw
    I cook with gluten-free beer but usually don't drink it but I like Green's (3 types) dam astura( sp may be wrong) there are so many now ... I had one that was st something in a unique bottle but it was sooooo strong.....husband couldn't even drink it....it was imported.... plus if you are lucky to live in a big city several...
  13. mamaw
    I went to the site..it looks like gluten-free ingredients are used but not in a dedicated gluten-free bakery....the bread looks yummy but it has soy flour as an ingredient....something I must avoid ... I still can't understand why people use soy as it to is an allergen....And from what I found it looks like the bread is the only...
  14. mamaw
    PLEASE find a new doctor..... it appears that doctor has NO knowledge of Celiac....
  15. mamaw
    let's get these two together to live with each other......they can fight & argue with each other & leave us alone.... funny in our local newspaper tonight the horoscope for me read: that I may have to move away to get away from a brutal crazy person who will not leave me alone!!!!! that has crossed my mind...
  16. mamaw
    Juliebove I have one of these people who lives in my back yard!!!!! Drives me & everyone else around crazy..... yells/fights & screams for no reason....The age of my pain is 75!!!!! Please get better soon & I hope the others can keep her away until you feel better.... it is hard to cope when you don...
  17. mamaw
    Yes, I do have copies... I'm still waiting on the 24 hour urine test.... I'll pm you when I get them back..... thanks so much....
  18. mamaw
    I think you answered your own question! You are starting to feel better being gluten-free......it does take time for your body to heal & make the new changes you are now throwing at it... just keep up with being gluten-free 100% 24/7 ....you will find health & happiness.... Since you have a demanding job I will...
  19. mamaw
    Hello &Welcome Have you & other family members been tested? if not please do that.....I'm the founder of a gluten free group if you would like to pm me I'll be glad to help you......we have many young people within our group.....both our grandchildren started gluten-free at an early age....., they are happy ...
  20. mamaw
    Just another thought... Read the book Grain Brain......very interesting......feel better soon... I understand how annoying this all is....it can drive one crazy.. Eleven years ago I was D'xd with ALS (A death sentence) a Few weeks later I went gluten free...... I'm still here! So I'm not sure if I would be the oldest living survivor...
  21. mamaw
    I'm so super hyper sensitive that I need more help than just the diet alone...... the diet is helping but I'm not there yet......when I seen a Immunologist they just said stay away from histamine stuff!!! My PCP was willing to give the script for the testing listed but has no idea what to do with it....I keep printing...
  22. mamaw
    Hello yes, one can get glutened from dog /cat & bird food.....other things are scratched utensils, scratched pots & pans, plastic or wooden items that were used for wheat ...hth
  23. mamaw
    Hello this could be almost anything so don't put the cart before the horse......breathe !!!! Have you had some very recent blood work done? I have a friend who had similar things going on & it was pre-diabetes & other foods causing the issues.... plus for some it takes years before they finally see their...
  24. mamaw
    I'm trying the low histamine diet & find it is helping but with a recent hospital stay I've not got back to being on track again... Does anyone have a list for US doctors who understand MCAS? I'm sure the list is short but it would help to know who to seek out for help... I had all the bloodwork, urine testing...
  25. mamaw
    Sorry for all the crazies who are trying to interfere with your recovery! All though I'm sure they think they are helping in some way....people do odd things in the name of helping others but it is probably what they feel they can help with!!!!! Sure doesn't help making you stressed when you are healing & feel...
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