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mamaw

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Latest Celiac Disease News & Research:

Everything posted by mamaw

  1. mamaw
    Is there a specific support group for MCAS????
  2. mamaw
    Pghkid13-------------------------- butler. I'm the founder of a gluten free support group... I also run a mini gluten-free coop for our members...I test market for gluten-free & travel about for gluten-free... If you need any help or have questions let me know......
  3. mamaw
    Pghkid13------------------------------------ just curious are you from Pittsburgh?
  4. mamaw
    Irish heart I could HUG you!!!! Sorry to say I never heard of this but I really think I have it.. As a young person many years ago I was very fair, red headed, freckled gal....It seems I react to everything on the planet..... I've been to two immunologist in the last several years... I've had angio lymphatic edema for nine...
  5. mamaw
    It appears you already got some great answers...tips and booze, what else is it that you need!!!! I use the recipe from Betty Hageman & it works great... here are my few tidbits that may help. make sure all ingredients are cold. After you roll the dough , roll the dough up around the rolling pin & ease ...
  6. mamaw

    ARCHIVED So Pissed

    mamaw replied to Googles's topic in Coping with Celiac Disease

    Yep, it sounds a lot like my family.....Not that this is the correct answer for everyone but I just don't ever go back... Their loss not mine... When I go to someone else's house I always take gluten-free food for everyone & share plus I make gluten-free things they love....you have every right to be angry....remember...
  7. mamaw
    It is a sad & hurtful problem that I don't think will go away anytime soon.... I have been gluten-free for over ten years & I still get that from a few family close family members.... I once called wheat " it's for me like eating rat poison" & boy do they get on me about that... One is a nurse & she thinks...
  8. mamaw
    Hi Ken Thanks I'll check that out... I'm in small town USA ... Glad you are still out & about. happy holidays
  9. mamaw
    You are doing good...it takes time to get it all down pat, remember accidents happens.. I think mishaps are great if you learn from them, some people cheat, make excuses, cheat again & again, if they would have gotten sick on the first mishap they wouldn't ever think of trying it on purpose ever again...... As you go you...
  10. mamaw
    I must be the only one who gets an aftertaste from bread loaded with millet...I do use little millet blended with other flours... It is a good food source....so I try to use a little.. But mostly what some find is that much of the millet is CC... I suggest looking for a better brand of millet that has less CC.. Cheaper ...
  11. mamaw
    Dairy is also broken down at the tips of the villi, this is why many docs now tell patients to cut out dairy...Goat's milk is easier to digest so down the road you may want to give that a try.....no one can say for sure if she has celiac or not.. Trial & error will give you the answer. She is still very young ... SO your options would be to start out...
  12. mamaw

    ARCHIVED Nutritionists!

    mamaw replied to C-Girl's topic in Related Issues & Disorders

    glad your dietician has helped you because most have no idea about celiac....you are very lucky.......most of the good ones have celiac themselves so they are good.....
  13. mamaw
    hello & welcome. yep, many people have been where you have been & are at the present time....you know your body better than anyone so your gut instinct is your best guide....And you are correct it would be a waste of time & money to do more testing if you have been gluten-free... I too, suggest getting a thyroid panel...
  14. mamaw
    I think Digestive enzymes from Enzymedica called Digest Gold are excellent... You should rotate probiotics. some good ones are pearls, Dr.Ohirra's twelve point professional formula...Align plus many more
  15. mamaw
    Here's my cluck....... Costco's & Sam's have gluten-free rotisserie chickens... We don't care for Sam's but love Costco's.....Almost every food/grocery store has rotisserie chicks but I have found many are not gluten-free.....By the way these make awesome chicken pot pie......
  16. mamaw
    You can make a version of almost any wheat food but it sounds like you don't have time to be in the kitchen. When you get the urge try thinking Rat Poison, if I eat this then I may die... sounds harsh but it works.... temptations are always around us whether it be food or another addicting thing. We need to be able to control our desires in all aspects of...
  17. mamaw
    Open Original Shared Link has a ton of recipes... Carla's recipe box Gluten free girl & chef if you just type in gluten-free recipe blogs hundreds will come up.. Pinterest also...
  18. mamaw
    It is so hard when a loved one develops a cruel disease as this... Please take time for yourself & try to focus on knowing this isn't your Mother talking when she is distrustful.......... Could you cook some meals & have Dad put them in fridge & reheat, would she understand that he didn't fix it? That...
  19. mamaw
    helpguide.org has info about lewey body disease... I tried to paste it but for some reason it didn't work.... I know nothing about this disease being associated with celiac disease.......when brain function & mobility is involved I always am willing to try dairy & gluten free for a three month period to see if ...
  20. mamaw
    A message from the second leader!!!!!!!!!!!! Again, Irishheart gave you one.. Here are a few I like & use. probiotics (different brands) give people different results so we who use them have our favorites... here are mine>>>>> Dr. Ohirra's twelve point professional formula, Align, Pearls by enzymatic therapy.....
  21. mamaw
    IrishHeart: If you are the probiotic pusher than I must be the second leader! But I also push digestive enzymes......
  22. mamaw
    We like to add sautéed veggies & a splash of balsamic vinegar....
  23. mamaw
    IF anyone is looking for a premix gravy " full flavor foods " has many varieties & they are the best available And you can make a pumpkin pie without the crust just spray the baking dish first & bake as usual.... Whole Foods has gluten-free pie crusts plus several other gluten-free companies makes their own version...
  24. mamaw
    Probiotics are good for you makes healthy environment to ward off illness... nothing bad about them... I will say there are hundreds out there some help some people & others not so much. Some are very cheap some are not...Some are easy to find others are not... For me Culturelle does nothing...... You also should...
  25. mamaw
    Hello I have been a migraine sufferer most of my life... Ten years ago when I went gluten-free the migraines lessened , now I get them when the weather changes...always bad, no lights, noise, lots of pressure (head exploding), shakiness, vomiting...they can last for an hour or for several days...I tried the migraine meds ...
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