-
Posts
437 -
Joined
-
Last visited
-
Days Won
2
Content Type
Profiles
Forums
Events
Blogs
Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by ciavyn
-
ARCHIVED Is 3 Weeks Long Enough For A Gluten Challenge?
ciavyn replied to passionfruit877's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hm, I want to say go with your gut, but I think it's already biased! I am undiagnosed. So far, I've had no issues. I'm an adult, so I don't need to worry about school lunches or college issues (I am in grad school, and they've been great about it when I'm on campus) and other than that, I have had "gluten sensitivity" put on my medical chart. For me, a diagnosis... -
ARCHIVED I'm Back
ciavyn replied to stef-the-kicking-cuty's topic in Introduce Yourself / Share Stuff
I don't know you, and I wasn't on the boards during that time, but you live right around the corner from me -- I'm in New Kingstown. And kickboxing, eh? Very cool. Have to find out more! -
ARCHIVED Having A Hard Time W/ My Son And His Diagnosis
ciavyn replied to macocha's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Some of us are a little close to this topic, and it's hard sometimes to read the meaning, not just our own emotions into things. It sounds to me that you are working with your son to help him come to terms with his disease...it's just hard because he's a teenager and your mom. Let's face it -- we love our kids, but when they start throwing attitude around... -
ARCHIVED The Bready Machine-Thoughts?
ciavyn replied to proud-armywife's topic in Gluten-Free Recipes & Cooking Tips
I LOVE my bread machine. It's a Cuisinart, and it rocks! It has a gluten free setting, but I've never used it. I use the regular setting to make Pamela's yummy bread. Otherwise, I purchase Udi's frozen loaves (they are AMAZING!) for sandwiches, and I love Brazilian cheese bread for dinner rolls. But if you do want bread, I'd recommend buying a machine that... -
ARCHIVED Serious Assistance Needed!
ciavyn replied to kaki-clam's topic in Coping with Celiac Disease
I'm glad you've decided to let it go. I see so many angles to this, and believe me -- I used to be a state worker, I understand your frustration! It seems some are catered to and others aren't. But winning ISN'T everything. And in this fight, you'd only make it worse for yourself, and quite honestly, other celiacs. I thank every restaurant I'm in that offers... -
It does get better! I swear it does. Frustrating? Absolutely. But over time, it does improve. I've been gluten free for 6 months, and outside of when I get glutened, like I did this weekend, I feel great. You'll just have to be careful, wash your hands regularly, and focus on what life is like off gluten. Believe me -- this is one of the easier diseases...
-
ARCHIVED Udi's Bread
ciavyn replied to DMarie's topic in Gluten-Free Foods, Products, Shopping & Medications
I agree, Gemini. For just eating bread, give me Pamela's, any day. I love that darn stuff. A little honey butter...:slobbers: But for sandwiches...which never were a big deal to me, but they are now!...this is good stuff. And it doesn't get squishy or nasty by the end of the day. Yum. -
ARCHIVED Having A Hard Time W/ My Son And His Diagnosis
ciavyn replied to macocha's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Just another thought on this: maybe see if you can arrange for him to visit with some kids who are chronically ill in the hospital, or maybe help in a local food initiative for poor families. We support a little girl in Moldova (Eastern Europe), and I had to explain to my very spoiled kids what it means to not have food. Maybe get him involved in fundraising... -
ARCHIVED Privacy And Your Feelings About It?
ciavyn replied to seezee's topic in Introduce Yourself / Share Stuff
Others can help you on the legal aspect better on this than me, but I would fight this as though my life depended on it. What school has the right to make a decision because it might "disrupt" others? What about your kid?! Shouldn't the best interest of the child be the guiding factor? I would threaten to make such a stink about this, they wouldn't need to... -
ARCHIVED Udi's Bread
ciavyn replied to DMarie's topic in Gluten-Free Foods, Products, Shopping & Medications
I gotta add mine on here. Just got some at our local health store here in Camp Hill, PA (The Healthy Grocer). Holy cow. Definitely the closest thing I've eaten to real bread, and their blueberry muffins are to die for. As soon as I get paid, I'm going over to clean out their supply! $4.99/loaf too. It's yummy! I've had two peanut butter and jelly sandwiches... -
ARCHIVED Simple (And I Mean Simple) Gluten-Free Packed Lunches
ciavyn replied to flutterby's topic in Coping with Celiac Disease
I take sweet potatoes, corn chips, cheese, salad, carrots, fruit...let's see. Two eggs, with a very soft cheese -- like laughing cow wedges, stir the eggs and microwave in a mug for two minutes. Then mix 1t yogurt, 1t dijonaise (dijon mustard mixed with mayo -- we can buy it by name in the US) and a squirt of lemon juice...heaven. You can really play with... -
ARCHIVED Privacy And Your Feelings About It?
ciavyn replied to seezee's topic in Introduce Yourself / Share Stuff
I have to disagree with ahoursesoul on this one...reason being...kids can be quite cruel. And now that they know about her issue, someone might try to sabotage her, for the heck of it. Let's face it, this is an easy one to mess with, and it sounds bizarre when you haven't had much experience with it. Not to mention: your daughter had a right to keep this... -
ARCHIVED Tofutti
ciavyn replied to Roda's topic in Gluten-Free Foods, Products, Shopping & Medications
It works great as a mix-in. I had the same reaction as Nor_TX when I first tried it. Horrid on potatoes... blech. But it makes an excellent chip dip or mix in for a recipe. No idea what to tell you about Soy, as I don't have any issues with it so far. -
ARCHIVED Gluten Free Pizza Cross Contamination
ciavyn replied to invisibledemon's topic in Gluten-Free Restaurants
Hm...I eat a gluten free pizza here at a local pizza joint, and they bake them in the same ovens. They are made on separate aluminum liners, and they keep a special cutter just for gluten free, but other than that...that's about the only concession. I haven't had any issues, and according to them, they have a number of celiacs that eat there. So I don't know... -
ARCHIVED I Am Feeling Frustrated
ciavyn replied to proud-armywife's topic in Coping with Celiac Disease
I will just second everything they said on here. It does get easier. I'm self-diagnosed via diet, and I will tell you, my husband no longer questions me. I have serious GI issues when I eat gluten, and now that he's seen the difference (I got glutened a few months back), he's seen (and smelled! ) the light! As for sensitivity, cross-contamination, and... -
Two additional comments: 1. To count calories, check out livestrong.com MY Daily Plate. I love it for tracking calories and it contains most things that are there. I used it before gluten-free and after. 2. Pamela's brownies suck. I make homemade brownies that are amazing, and way better than anything i ever had gluten free. Highly recommend. I must...
-
ARCHIVED I... But... Look, Can Someone Tell Me If This Is A Lot?
ciavyn replied to MagpieWrites's topic in Coping with Celiac Disease
Ugh! I can't even begin to describe how awful this woman is. I gotta say -- it sounds like you have gotten to used to having this evil in your life. Why would you ever spend one more second in her presence? I'm not being facetious or exaggerating. I have a toxic mother -- one that told my personal life to everyone and set about to convincing me I was mentally... -
ARCHIVED Gluten Free Oats?
ciavyn replied to jello5's topic in Gluten-Free Foods, Products, Shopping & Medications
I eat Bob Red Mill's Gluten Free Oats without issue. I cannot define how sensitive I am, but they've worked well for me. -
ARCHIVED How Do I Explain?
ciavyn replied to elawphoto's topic in Parents, Friends and Loved Ones of Celiacs
It seems he is not as supportive as you think he is. You don't have to prove it to anyone. You just have to do what you need to to keep yourself healthy. If he or your friends don't believe you...are these the kinds of folks you want around you? I'm not officially diagnosed, but did the diet test to figure out what my issues are. I dare anyone to argue this... -
ARCHIVED Potato Chips
ciavyn replied to BackTalk's topic in Gluten-Free Foods, Products, Shopping & Medications
Ah, yes, made the Doritos mistake 3 1/2 weeks ago -- took me this long paying for it for my body to heal. Ugh. Avoid the Nacho doritos!! They have many other flavors you can have, though, and some cheetos are gluten-free too. -
ARCHIVED Lunch Meat
ciavyn replied to dube's topic in Gluten-Free Foods, Products, Shopping & Medications
Just make sure they clean the slicer before cutting up your meat! I've gotten into Wegman's packaged deli meat as a quick snack. It's marked gluten free. -
ARCHIVED How Well Do You Feel Gluten Free?
ciavyn replied to dhiltonlittle's topic in Coping with Celiac Disease
WHEN I haven't accidentally glutened myself, I feel GREAT! Really, really good, with very few GI issues. Unfortunately, it takes me about three weeks to get over being glutened. But I really do feel 100% better...I guess I'm lucky that way. -
ARGH! I know the feeling. Hm. I think...you just get used to be hyper vigilant, and you take a lot of your own meals. When someone asks me to lunch, I either call ahead, or I have a number of restaurants that I know can accommodate me...but it is always a risk. Give yourself time to get used to packing food, making dinners. You are going to screw up. Believe...
-
WOW! I never would have considered this possibility. This forum is useful, in so many ways!