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Latest Celiac Disease News & Research:
Everything posted by kareng
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ARCHIVED Costa Rica - Advice Needed!
kareng replied to moosemalibu's topic in Traveling with Celiac Disease
Not being able to spend several thousand dollars is a legitimate reason not to go. I'm sure you aren't the only one. -
ARCHIVED Costa Rica - Advice Needed!
kareng replied to moosemalibu's topic in Traveling with Celiac Disease
I'm assuming its a destination wedding? At a resort? You could call and talk to the resort as some of the bigger places can accomadate. Also, use the google function I think someone had good luck in Costa Rica. But, if you don't want to go, I think telling her that you wish you could but can't afford it is a good reason. -
ARCHIVED Over A Year Out And Still Highly Elevated Ttg Iga =(
kareng replied to megsybeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sounds like you should worry about cc when you eat out. If you are still making antibodies, maybe you should stop eating out? Re- check what you eat at home? Medications? Vitamins? Just because you don't feel the damage, the gluten is still damaging you. -
ARCHIVED Chocolate Covered Wavy Lays
kareng replied to LauraTX's topic in Gluten-Free Foods, Products, Shopping & Medications
For most humans, corn is hard to digest. If I eat a lot of corn - Corn Chex, tortillas and corn on the cob for lunch and nachos on corn chips for dinner....I start to feel bad. But less corn is OK. For many people, I think its just a digestion issue and some corn oil on potato chips or corn starch in a bowl of chili or corn in a multigrain cracker might... -
ARCHIVED Chocolate Covered Wavy Lays
kareng replied to LauraTX's topic in Gluten-Free Foods, Products, Shopping & Medications
I think it depends on what your corn issue is. A lot of people can't eat a bunch of corn tortillas or corn on the cob but a little corn oil is OK. -
ARCHIVED Beanfield Rice And Bean Chips
kareng replied to w8in4dave's topic in Gluten-Free Foods, Products, Shopping & Medications
I haven't had those. I like these. The white ones are the closet to a regular chip but fragile. The black bean ones are good and a bit sturdier but don't taste as tortilla chippy. Open Original Shared Link -
ARCHIVED Question About Genetic Testing
kareng replied to blmoreschi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Once again - Genetic research is not the OP's question. If you want to discuss research into other genes that may be associated with Celiac, start your own thread and discuss. If you want to slam Mass General and Dr. Fasano, I'm not sure that would be a good new topic without some real evidence of whatever you are accusing Dr. F of doing or not doing. -
ARCHIVED Tylenol: Do You Take It Or No?
kareng replied to josh052980's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't know anything about that website. It is a bit confusing. I would go with what Advil actually says which is a bit of a CYA statement. Open Original Shared Link "Gluten is not added to Advil® Film-Coated products during the manufacturing process. However, we cannot guarantee that minute amounts of gluten or gluten derivatives are not contained ... -
ARCHIVED Tylenol: Do You Take It Or No?
kareng replied to josh052980's topic in Gluten-Free Foods, Products, Shopping & Medications
Why isn't Advil safe? Tylenol is the one that most doctors are advising people to not use very often because of liver damage? I think it was liver damage. Anyway, try different generics? Target Ibuprophen says gluten-free on the box. Maybe the acetaminophen is labelled gluten-free too? I think Walgreens has some things labeled gluten-free. Open... -
ARCHIVED Question About Genetic Testing
kareng replied to blmoreschi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is correct. It isn't quite as simple as Middle School genetics but the basic idea stands. Genes are "double". When an egg is made, it splits. Each egg/eventual child gets 1 split half from the mom and one from the dad. If you have the "gene" on only 1 half, it is possible the child won't get that half. Therefore, she might have gotten it from Dad... -
ARCHIVED Question About Genetic Testing
kareng replied to blmoreschi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This thread isn't about your opinions about medical research institutions or trying to argue with me. I am not "excluding" anyone. I just wanted the OP to see info from reputable research facilities. . -
ARCHIVED Dominos!
kareng replied to Moongirl's topic in Gluten-Free Foods, Products, Shopping & Medications
This is a 3 year old thread. In the last year, Dominos has offered a gluten-free crust. However, because of cc issues, they do say that the " gluten-free" pizzas are not for Celiacs. Here is one of the many discussions: https://www.celiac.com/forums/topic/93298-dough-dominos-makes-gluten-free-crust-but-its-not-safe-for-celiacs-opposing-views/ -
ARCHIVED Question About Genetic Testing
kareng replied to blmoreschi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm not trying to argue. I'm just putting some links to reputable Celiac Research Centers. Blogs and forum posts of people's experiences are interesting but not necessarily the best place to get your scientific info. -
ARCHIVED Gluten Free Greenbean Casserole?
kareng replied to Waitingindreams's topic in Gluten-Free Recipes & Cooking Tips
Pacific has gluten-free cream of chicken. Maybe you could add some cheese? -
ARCHIVED Gluten Free Greenbean Casserole?
kareng replied to Waitingindreams's topic in Gluten-Free Recipes & Cooking Tips
What do you usually make green bean casserole with? Usually its cream of mushroom soup and does not contain cheese. -
ARCHIVED Question About Genetic Testing
kareng replied to blmoreschi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
More info: "What is the meaning of HLA DQ2/DQ8? As an autoimmune disease, celiac disease is the consequence of the interplay between genes and the environment (gluten). We don’t know all the necessary genes to develop celiac disease; however, HLA DQ2 and/or DQ8 are absolutely necessary to develop the disease. Since 1/3 of the general population also h... -
ARCHIVED Gluten Free Greenbean Casserole?
kareng replied to Waitingindreams's topic in Gluten-Free Recipes & Cooking Tips
I know some people use Funyons for the onions and this gluten-free cream of mushroom soup Open Original Shared Link We aren't a big fan of the traditional GB Casserole. We like the one I posted here: https://www.celiac.com/forums/topic/104920-recipes-needed-please/ -
ARCHIVED Question About Genetic Testing
kareng replied to blmoreschi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This isn't true. At least not with current knowledge. If you do not have a DQ 8 or DQ2 gene, you cannot have Celiac. The DQ8 is the least common. Only around 5% of people have this gene. Open Original Shared Link Open Original Shared Link -
ARCHIVED Testing Question After Gf
kareng replied to barbiannc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
While it sometimes takes a few months for antibodies to go down, That is usually people with sky-high antibody numbers. Not everyone is that bad off. Open Original Shared Link -
If you have Celiac - those "little things" are too much gluten. Eating burgers off of buns and foods with a little gluten in them means that you have not been gluten free. However, I'm not sure if that is causing your episodes. If you believe gluten is the cause or were diagnosed with Celiac, you need to eat very gluten free.
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ARCHIVED Gluten Free Wine
kareng replied to MichLab's topic in Gluten-Free Foods, Products, Shopping & Medications
If they add a flavoring in or something like that, you would want to know what they used. But plain wine is gluten free. -
ARCHIVED Gluten Free Wine
kareng replied to MichLab's topic in Gluten-Free Foods, Products, Shopping & Medications
Its an evil myth that wine has gluten! I think the key here may be " when I went out to dinner". Perhaps the food is not as gluten-free as you may think it is? -
The What's For Dinner Tonight Chat
kareng replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
We had left-over Mexican lasagna! Hard to get it hot in the microwave as it doesn't have much fat, but maybe better left-over. Trying to decide on dinner for tonight. I will be busy until about 8 so I was thinking something in the crockpot. Just can't get too excited about anything. I have some grilled chicken, maybe I will make some spicy peanut... -
ARCHIVED Chocolate Covered Wavy Lays
kareng replied to LauraTX's topic in Gluten-Free Foods, Products, Shopping & Medications
Should we change the title of this thread to "Everything is better covered in chocolate?" Or "Would you eat it chocolate covered?" Open Original Shared Link