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Skylark

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Everything posted by Skylark

  1. Skylark
    You might have a GI bug. If you're really worried, head for the doctor!
  2. Skylark
    My, those symptoms sound familiar! You have just described much of the board (me included), except for the insulin as most of us are lucky enough to not be diabetic. Low iron, D, B12, and you're probably not getting enough calcium either. These are totally normal for folks with gluten intolerance and your nutritional status will improve gluten-free. Also...
  3. Skylark
    Yes, it's possible gluten is the root cause, especially with celiac in your family. Malabsorption and autoimmunity can really make you sick. It takes some time for it to work, so give yourself a few months eating strictly gluten-free.
  4. Skylark
    Low total IgA and type 1 diabetes are both celiac risk factors, as is the DQ8. That plus the slightly elevated TTG IgG suggests you're doing the right thing. Remember that a gluten-free diet can prevent full-blown celiac, even if he doesn't feel much different on the diet. The only thing that went away quickly for me were the GI problems, and those stopped...
  5. Skylark
    Welcome to the board. First, don't be afraid. You have survived 45 years eating quite a lot of wheat. You're going to make occasional mistakes -- we all do -- and you will be fine. Be careful with your diet and take the best common-sense precautions that you can. A lot of us get more sensitive after going gluten-free for a while so it's possible...
  6. Skylark
    Those lists Peter linked are great. You absolutely have to stick to the diet strictly and you may get a lot healthier over the next few months. Avoid everything made from wheat, rye, or barley, plus some celiacs react to oats so avoid those too at first. Gluten-free is only expensive if you buy a lot of the overpriced specialty foods. Rice and potatoes...
  7. Skylark
    Your doctor is the silly one. He must have forgotten that kindergarten lesson of not eating things that make you sick! Isn't it amazing how medical school can make a person completely lose all common sense? I've had three different doctors tell me not to even bother with gluten challenging to be tested because the blood tests are so unreliable. I have...
  8. Skylark
    There are gluten-free animal crackers that might work. Gluten-free Mall has two brands and Orgran stuff is usually pretty good. Mi-Del makes an arrowroot animal cracker that I buy locally at Whole Foods sometimes. Open Original Shared Link
  9. Skylark
    This is a pretty good article that explains the December 2010 research on people with positive blood tTG or EMA blood tests and negative or Marsh 1 biopsy and its implications. Basically, because people with positive bloodwork and negative biopsy have the same metabolic markers as celiacs with full villous atrophy. The researchers recommend a gluten-free...
  10. Skylark
    I'm sorry. I usually include references but I was so tired and brainfogged when I posted that, I didn't have the energy or wherewithal to look it up. I come here for company sometimes when I feel really bad. This is a pretty good article that explains the research and its implications for people with positive blood tests. Basically, because people with...
  11. Skylark
    Things aren't too bad! You can't judge cortisol from a single blood test like you can thyroid or testosterone unless yours is very, very low. (You didn't post the reference range but it doesn't look too far out of whack to me.) That TSH of 2.8 could have you feeling pretty rotten, and if you're hypothyroid your adrenals won't work well either. It's...
  12. Skylark
    Tom's of Maine Fennel because it's the easiest fluoride-free toothpaste to find around here and I like the taste. It's also gluten-free, of course.
  13. Skylark
    Thanks. I'll look in to the ferritin then! Waking up in the middle of the night is from the Wellbutrin. Antidepressants always do that to me, but it's better than being horribly depressed while I try to sort things out. Prozac and lithium are the ones that mess with thyroid. Be really careful with this adrenal stuff It's all Internet lore and some...
  14. Skylark

    Thanks so much for sharing your story. It is an inspiration for me.

  15. Skylark
    B12, D, B6 all good and I show no signs of iron deficiency or anemia. My supplement has plenty of all of those except D, and I take extra of that. As far as I can tell, the whole "adrenal fatigue" thing is one of those misleading alternative health fads. Adrenal failure is actually very rare. Adrenals do not function correctly in thyroid patients but...
  16. Skylark
    There was a study on people with positive TTG and GI symptoms but negative biopsy. They had all the metabolic markers of the people with celiac disease, rather than looking like the people who were controls. In other words, there is some strong evidence that if you have TTG and other conditions like Crohn's ad RA have been ruled out, you are celiac.
  17. Skylark
    I saw that Cyrex thing on coffee too. I would be so sad if I started cross-reacting with coffee.
  18. Skylark
    Udi's is here on the board? Wow, cool.
  19. Skylark
    Meh. It comes and goes. Heart palpitations yesterday when I tried to walk too fast but today I actually sort of have a brain. The anxiety is obnoxious, I totally agree! Fluoride comes in lots of places. If you get toothpaste AND water AND pesticide residues (Japan might use different stuff) it can be a pretty big cumulative dose in the US. California...
  20. Skylark
    Whoops! Thanks. Is my US-centric view showing too badly?
  21. Skylark
    There's still plenty we can eat. You will have to cook more, though. Can you tolerate soy? If so there's tofu and tempeh. I've also found miso that wasn't made with gluten grains. Also, check out Indian cooking. There are lots of great vegetarian bean or lentil dishes you can have with rice. As far as cookies, I don't know whether they're vegetarian...
  22. Skylark
    By the way, I found this too. It seems some soy/wheat soy sauces do test below 5 ppm gluten. Open Original Shared Link
  23. Skylark
    Even though there is no strict law in place, you can report their mislabeling to the FDA. Voluntary gluten-free labeling rules specify that if there are wheat-derived ingredients the product must still be below 20ppm gluten. Open Original Shared Link Here is where you call. Open Original Shared Link
  24. Skylark
    Oh, wow. Bummer about the dishwasher. I go in cooking kicks and always have. Sometimes I'm just in the mood to cook. Even pre-celiac I went through periods where I cooked a lot and I have an embarrassingly large collection of cookbooks. Right now with all the fatigue it's simply awful though. I'm eating "meals" like gluten-free lunch meat on Udi...
  25. Skylark
    Hi, Cass If you try this, please let me know how it turns out because we're in the same boat. I've read about LDN in fibro and MS, but not in thyroid disease. MS is autoimmune and there are even two peer-reviewed studies that it helps people feel better. My current thing is trying to go low-fluoride. I figured out I moved to an area with fluoridated...
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