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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    It gets worse for me if I'm hypothyroid though I'm still struggling with some fog. See if your Dr. will check your vitamin D and B12 levels.
  2. Skylark
    Huh. I like the Van's too.
  3. Skylark
    Q: Are the ZonePerfect Nutrition Bars that do not have gluten-containing ingredients tested for gluten? No, only our Perfectly Simple bars are tested and certified gluten free. Looks like the oats in the Perfectly Simple bars are safe. Cool, nice to have another snack bar.
  4. Skylark
    Cereal grasses are technically safe but if any plants have gone to seed there will be gluten. I was considering Garden of Life Primal Defense probiotic that contains barely and oat grass and found this out on the web. Q: Is Primal Defense ULTRA gluten free? A: While every effort is made to cut the cereal grasses before the gluten head is formed and...
  5. Skylark
    Ooh, congrats! That seems to happen a lot around here when women go off gluten. It makes you wonder how the human race ever made it eating all that wheat. Be sure to pick up a gluten-free prenatal vitamin.
  6. Skylark
    Good! Maybe there will be a cure in the future, but accepting the celiac diet is the only way to stay healthy right now.
  7. Skylark
    Hi, and welcome. Gluten intolerance/celiac is not allergy. They are very distinct immune reactions. It doesn't sound like you have had a proper blood celiac panel?
  8. Skylark
    It's not a stupid question at all. What does healing even mean? You are healed in the sense of villous atrophy but there is clearly still some kind of issue. The full SCD (or GAPS is a slightly different version) can eventually transition you back to eating some grains and starch. It's not a fast process. Both Elaine Gottschall (SCD) and Patricia...
  9. Skylark
    Being hypothyroid does that to me. I don't recover from exercise properly.
  10. Skylark
    You still might be celiac. Two biopsies isn't enough, as you already know, especially if you're early on developing it. Damage is typically patchy. Also did you see the biopsy report? Did it mention increased intraepithelial lymphocytes or any abnormalities? Your doctor seems to not want to really consider celiac so he might have downplayed the early...
  11. Skylark
    Yes, it gets much easier with time. Gluten stops looking like food. I would no sooner eat a kitchen sponge than a regular cookie. Come to think of it, the kitchen sponge would probably make me less sick! Until it becomes easy, as everyone else has said it helps to bring gluten-free cookies or some chocolate in to work so you have something safe when...
  12. Skylark
    Carry the gene, yes. Have the disease, not necessarily. Remember that 30% of the US has a celiac gene, but only 1% has celiac. The incidence of celiac is rising so your DD may be the first in your family unlucky enough to have the autoimmunity. It's also possible that she got a genetic double-whammy. If you and DH each have a gene, she might have gotten...
  13. Skylark
    Karen, that's brilliant. I need to remember it too!
  14. Skylark
    Barbecue? No problem. Bring your own meat, aluminum foil to cover the grill, and a clean seat of tongs. I joke about my "food OCD" to make people more comfortable. I usually offer to bring homemade potato salad, which is a perfectly normal "glutenoid" food and goes well with barbecue. Serve yourself first so the bowl doesn't get CC. (My friends are...
  15. Skylark
    I think diagnosis misadventures are more common than not. I spent many years on psych meds and nobody thought to connect the fatigue, bipolar illness, chronic diarrhea, stomach-aches, thyroid problems and .... CELIAC. Like you, I'm not going to eat wheat and get tested. I don't really care about the labs or results because there is no question in my mind...
  16. Skylark
    I've been nervous about grain products since Tricia Thompson's study. Open Original Shared Link Bob's Red Mill makes gluten-free grits. They won't cook as quick as the Quaker ones but you don't have to be nervous about them. Open Original Shared Link I don't think there is any realistic way to assess whether grits in a restaurant are CC'd with wheat...
  17. Skylark
    Here, read this. It explains why enzymes won't help fructose malabsorption, though they may help you in general the way they helped IrishHeart. Open Original Shared Link This is the Fructosin they are talking about. It supposedly converts fructose to glucose and they've got it enterically coated so it goes past your stomach. Open Original Shared Link
  18. Skylark
    Alice, offering you help about how to get over a willful, self-imposed glutenening is a level of enabling behavior that I'm not comfortable with. I understand that your "I'm going to eat gluten... I ate gluten" announcement was a way of asking for help (otherwise you wouldn't post) but this is a message board. We can only offer so much through our posts...
  19. Skylark
    I'm casein sensitive and kefir makes me sick.
  20. Skylark
    That you are rather sensitive to one of the foods you chose for your elimination diet (what did you just stop eating???), plus GI sensitive to whatever you added back. Bummer! It's always hard to decide what foods to eat for eliminations for exactly that reason.
  21. Skylark
    Someone wrote Progresso and they can't guarantee the soups not labeled gluten-free are not CC.
  22. Skylark

    ARCHIVED Nueropathy

    Skylark replied to AVR1962's topic in Coping with Celiac Disease

    The right lawyer could probably get you some money. That stuff looks toxic with the bearberry and diuretics. Bearberry has to be taken with great caution and going onto it for a month with other kidney herbs seems like really bad advice. Are your BUN and creatinine the same as before the "cleanse" or have they risen?
  23. Skylark
    In truth, it's not good to heat any unsaturated oil. The "healthiness" of cooking with vegetable oils is food industry propaganda and partly responsible for American diet-related health problems. They all produce free radicals and trans-fats when you heat them, especially in a frying pan. I don't know whether baking is as bad. Stuff I've read says nut...
  24. Skylark
    Whew, I'm glad you're not going to challenge pecans without medical support. Tree nuts include almonds, Brazil nuts, cashews, chestnuts, filberts/hazelnuts, macadamia nuts, coconut, pine nuts, pistachios, and walnuts. If I were you, I'd avoid them all until I got to the Dr. Maybe sunflower seeds or pumpkin seeds for the baklava? I agree with Ciamarie...
  25. Skylark
    Absolutely. My big problem with all these alternative diets is that there is no CHOCOLATE! What is with these people??? Don't they understand that chocolate is an extremely important food group? I'm doing OK sticking to Failsafe so far, except I have to slow taper off coffee. I can't do without my supplements though. Too much mental health risk....
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