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pricklypear1971

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Latest Celiac Disease News & Research:

Everything posted by pricklypear1971

  1. pricklypear1971
    I had stomach ulcers when I was 9 and 18 - they saw them on a barium X-ray (@ 18).
  2. pricklypear1971
    I still get a server error.
  3. pricklypear1971
    What about a personal chef that can do gluten-free? It can be expensive, but no more do than the average cost if eating out at a restaurant. When I go back to work I'm going to have to get help with food - I'm going to try a personal chef I found who will do gluten-free.
  4. pricklypear1971
    I washed mine down with a soapy rag, washed the bowl and attachments and have been using it for a year. Turn it upside down (yeah, heavy) so you can see up inside. Clean well.
  5. pricklypear1971
    You may try Blender Girl - she does a lot of smoothies. Open Original Shared Link And a good way to bulk up a smoothie is a few spoons of nut butter. And that reminds me - I have a 1/2 flat of strawberries I've got to clean and freeze...
  6. pricklypear1971
    Their website isn't functional but tgey do have a FB page.
  7. pricklypear1971
    Could and would are two different things. Most DH Celiacs are asymptomatic except for the lovely rash. There is a link between t1 diabetes and Celiac. Are either of them on insulin? There's a chance they are t1 (or autoimmune) if they are. Also, you must be eating gluten for 2-3 months prior to testing. Also, have they given you steroids for the rash...
  8. pricklypear1971
    Sorry. Yeah, I've noticed those labels in stuff I can't figure out are gluten-free or not (natural flavorings, lots of chemical names) - no gluten-free on the label or other disclosure. Freaks me out to the point I ignore them. And then they put the wrong cans in the wrong spot - so if the label says gluten-free it may be referring to something else...
  9. pricklypear1971
    This may be helpful: Open Original Shared Link
  10. pricklypear1971
    Most of the research I've seen is in Japan....where they got majorly "wheated" after WWII when they began importing wheat from the U. S. under some agreement.... Anyhow, the train of thought isn't that it isn't there (and that it's so new) but that they aren't testing for it with the right tests, and it's thought to be a Western disease. There is archaeological...
  11. pricklypear1971
    http://megannskitchen.blogspot.com/2011/09/nuts-about-chocolate-cupcakes-gluten-free.html?m=1 I don't know why the board is truncating links...but that's what's happening. If it won't go to it the recipe is called Nuts About Chocolate Cupcakes - or search "gluten-free" on the blog. I'll try it later on the computer.maybe it won't truncate it. I'm...
  12. pricklypear1971
    You are "challenged" trying to pursue a Celiac/DH dx because of your ethnicity. They are looking at some entirely different genes and antibodies in Japan for Celiac/DH, for example. If different antibodies and genes are being activated that can make it hard for you to be tested. My advice is to search around PubMed for info on testing in Asian populations...
  13. pricklypear1971
    Kids notoriously test negative. Especially a 2 year old. They also could have run incomplete panels... The list goes on. Read through threads in this section for more stories just like yours. I'd suggest testing for all, except if you've been gluten-free that will invalidate testing. I'd find a good doctor who is willing to work with you, run vitamin panels...
  14. pricklypear1971
    It could be that the longer you're off gluten the more you can take. Thats what happened with me. In the beginning certain sals set me off horribly - colorings, MSG, just odd things - coconut to a degree. Too many almonds.... Then, after a while, after my rash healed I was ok with most sals. I have noticed I can't get them ON my rash - I was using almond...
  15. pricklypear1971
    Yes, I would suggest testing for you, and sooner rather than later, because it may be impossible for you to back on gluten later if you go gluten-free with your son - and while it may not be important to you (a dx vs. knowing you are better gluten-free) it may be very important for your son and the new baby. And other family members.,. Are they going...
  16. pricklypear1971
    Print out these tests and procedures and take with you of you're trying for a DH biopsy. Open Original Shared Link
  17. pricklypear1971
    Well, tonight we're headed to dinner at my FIL's. I'm packing baked beans for all (mine are in a seperate container), and I'm taking a leftover hamburger patty/bun and fixins from Wed. to eat in place of grilled stuff they're making - along with fruit salad (found some great berries today!). And I made some great little flour less chocolate cupcakes today...
  18. pricklypear1971
    When I've heard about doctors considering a low normal iga suspicious its generally within 10% - which would be apx. 50 for their normal range. He's still higher than that, but not much. It would make me wonder, and request igg tests.
  19. pricklypear1971
    I think the biggest benefit to buying at TJ's is the no gluten ingredients PLUS they label many foods with the type of facility it was processed in. If it says "processed with wheat" I steer clear, most of the time.
  20. pricklypear1971
    Great job looking up all of that. His Celiac panel was not at all thorough. For a doctor that suspects Celiac, it should have been more thorough. And while his total iga was normal, it's low normal - in the area where some may say he's almost iga deficient - so iga Celiac tests wouldn't work for him.
  21. pricklypear1971
    FYI, according to Pet Club here in Tucson the affected facility was in the Carolina's - the food this Pet Club sells comes from CA and wasn't part of the recall. So, that explains why we aren't dead (since the dog spreads it all over the house and I'd tossed the bag).
  22. pricklypear1971
    Their press release has hit the financial papers - WSJ, etc.
  23. pricklypear1971
    I never would have thought about that.... Thanks for posting.
  24. pricklypear1971
    Yes, when I got glutened in Dec. my allergies took a big dive - I was miserable and went back on Claritin (half dose every other day). It helped a lot. My doctor said its an immunosuppressant so that's probably one reason it helped so much....and the allergy part....
  25. pricklypear1971
    Whoa! I didn't combine it! I made two versions - the orange (which had no chocolate), and the chocolate (which had no orange). I'm going to clarify that up top..,,
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