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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    Your mantra from here on out is: READ EVERY LABEL EVERY TIME.
  2. squirmingitch
    Don't go gluten free until the endoscopy is done!
  3. squirmingitch
    In the last 24 hours I have received 2 notifications of threads I was watching where the notification said that Peter had made a post yet when I go to the thread there is no post that Peter made. it's either invisible or the post isn't showing up. Very strange. ??????
  4. squirmingitch
    Have you ever heard the old saying, "Don't borrow trouble"? Don't borrow trouble. If you're eating them & you feel fine then go ahead & keep enjoying them. I don't think your high number was from the oats alone. You did say you were eating 90%. That 10% is what got you. That along with your 5 weeks of gluten gluttoning gave you your numbers. Unless...
  5. squirmingitch
    I can't say definitively because I haven't read it in any medical references but I'm going to venture it could be possible BUT that would depend on how much & how long one had been eating them AND only if you're one of those who has an actual T cell reaction to the cert. gluten-free oats.
  6. squirmingitch
    Yes, as I understand it, the TTG IgG is is highly specific for celiac disease. This should be enough to go to your general doc with. You really need to have the complete celiac serum panel run. It is: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG...
  7. squirmingitch
    YVW!
  8. squirmingitch
    A Hobnob: Open Original Shared Link Yazzoo, cyclinglady is correct. There are "silent celiacs" who have no symptoms at all. But there's a good chance you have symptoms & just don't realize it as cyclinglady said. Happens all the time. The good news is....... You won't have to live without Hobnobs!!! I did a quick Google & found gluten free recipes...
  9. squirmingitch
    Am I wrong? I thought the new labeling guidelines do not require a company to test in order to label gluten free, however, if tested, it has to test below 20ppm. I understand that companies might not be testing & therefore, to cover their rear, they remove the gluten-free labeling. I do suspect this is what is happening in the case of B&G Foods/Ortega...
  10. squirmingitch
    It had to have been no more than 2 months ago when I last bought Ortega hard taco shells which were labeled gluten free. Now I can't find them. I have been to 2 of the 3 stores in my town and while there are Ortega hard taco shells at both stores; none of them say gluten free on the box. Publix has the shelf tags that contain the price as well as a gluten...
  11. squirmingitch
    Bully for you Jay!!! It won't be easy combining strict gluten free with your diabetic diet but you sound like you're willing to go the distance. We do have some diabetics on here so I'm sure they can give you some pointers on handling the requirements of both diets at one time. I've been thinking about how you said she loves beer & even trips &...
  12. squirmingitch
    Very, very lucky! How about posting that doctor's name, address & telephone # in the Doctors section of our forum? Here's a link: https://www.celiac.com/forums/forum/6-celiac-disease-doctors/
  13. squirmingitch
    Every 2 years or sooner if symptoms present and they will have to do a gluten challenge for the testing if they have been eating gluten free.
  14. squirmingitch
    Stay away! Stay FAR away from that Gastro!!!!!! Rye & barley ARE gluten!! They don't know that????? Disregard everything they said because they don't know their head from their behind.
  15. squirmingitch
    Welcome to the club.
  16. squirmingitch
    That is great!!!!! I'm glad you finally found a doc that has a brain. Let us know what happens please.
  17. squirmingitch
    Just keep going forward girl, keep going forward. This will end. But don't be surprised if you get another withdrawal symptom which is stark raving starving hungry, hungry, hungry 24 hours a day. It was part of the withdrawal for me as well as many others. If that happens just go with the flow & eat your fool head off. That too will pass. LOL!
  18. squirmingitch
    The supplements certainly won't hurt you at this point so go ahed & keep taking them. Down the line you'll want to make sure they're gluten free though. Yes, please update us when you get results.
  19. squirmingitch
    Whatever you eat make sure it's cooked. Veggies & fruits are much easier to digest when cooked. That should help you while you're healing. The bone broth LookingforAnswers mentioned is extremely nourishing and very, very gentle on the tummy. {{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}
  20. squirmingitch
    I had big time gluten withdrawal! Some people get off lucky & don't go through it but plenty of us get to experience it. Looks like you're one of us who doesn't get off lightly. The good news is that it usually doesn't last more than a month -- less for most people. Mine lasted about 2 months. Everyone is different. Hang in there.
  21. squirmingitch
    I'm going to repeat what cyclinglady said because it bears repeating. CONTINUE EATING GLUTEN UNTIL YOU ARE SURE ALL TESTING IS COMPLETED. Otherwise you can get a false negative & you don't want that. BTW, you DO have symptoms..... "iron, vitamin d, magnesium and zinc deficient" Do you know what prolonged deficiency in these will do to you over time?...
  22. squirmingitch
    No reason for your rmum to go through an endoscopy then. She could still get the blood work but if she's content to go strict gluten-free then good for her. Make sure she reads or you teach her everything in the Newbie 101 so she knows how to protect herself from cross contamination. And tell her she might go through gluten withdrawal but it will only last...
  23. squirmingitch
    Well, I guess that's a lesson you won't soon forget. I'm sorry this is happening to you.
  24. squirmingitch
    Please let us know what happens either way.
  25. squirmingitch
    Absolutely! Be thankful you have a doc who is associating the possibility of celiac disease with the anemia. And btw, there is such a thing as silent celiac where the person has zero symptoms at all. Get tested. And whatever you do do not stop eating gluten until all testing is completed.
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