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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    I believe it is termed the medical arts or the healing arts for a reason - as good as the science is, MDs don't and can't know everything. Please forgive those who are lobbing such hate bombs on this site. I understand that you are a victim too, but in a very unique position of being in the medical field. I look at your joining this forum as one more step...
  2. nettiebeads
    It's okay, but no cigar. I love making my own crust with Bette Hagman's receipe. Fantastic!!!
  3. nettiebeads
    Dried minced onions are just that. How did the ribs come out?
  4. nettiebeads
    Sorry to hear of your set back. I've been there, as I am sure many many others have been too. Annette
  5. nettiebeads
    I never got sick right away after eating gluten. My D was usually 20 to 24 hours later. Everyone's reaction to gluten is different, and even then the reactions can change as years go by. My reactions now are severe C, rarely D, fatigue and brain fog, and horrible aches that I didn't used to get. But the really really REALLY stinky D is very indictative...
  6. nettiebeads
    I have to agree with ursula re: eating gluten. If you can tie your problems directly to gluten, why keep eating it? I have major C now, even when I don't get glutened. I used to have the D, then C, but my body changed and now it's C to the max. Even when I eat raisins, fruit cocktail, take MOM - still C. So now my major complaints when I eat gluten ...
  7. nettiebeads
    [quote name='radman' date='Mar 26 2006, 09:06 AM' post='118951 I guess I'll will find out as time goes by.
  8. nettiebeads
    It's a type of fruit grown on trees. Very safe, and I understand it to be very good. Annette
  9. nettiebeads
    It could be a mild bladder infection or uti. I'd cut out all sugar and simple starches for a few days and give her o.j. and/ or cranberry juice (probably diluted). If she still has problems, then I'd go to the dr. But just give it three days. That's always been my mother's theory - if your body can't get better on its own in that time, then call in the...
  10. nettiebeads
    Sorry, I'm no help when it comes to medical diagnostic procedures. I was dx'd via diet challenge alone. But I'm just posting to say I know it's not in your head. It definitely sounds like celiac to me. I'm fairly confident that you still have damage in your small intestine since you haven't been completely gluten-free for a long enough time to get the...
  11. nettiebeads
    the current theory is that the gluten proteins are too big and are filtered out during the distiallation process. I've used grain based distilled items and haven't had problems. You could always switch to cider vinegar. Annette
  12. nettiebeads
    Yep, hominy is just corn. You should be okay, so long as no wheat flour was used to thicken. Enjoy! (I love chowders) Annette
  13. nettiebeads
    POOP ENVY??? What would Froid think of that?????
  14. nettiebeads
    Nope, you're right, the body isn't absorbing the nutrients needed and so he sleeps a lot. My fatigue and lethargy finally cleared up when I got rid of the last of the gluten in my diet. I had ignored the four letter word malt in my cereals and alcoholic drinks for years - I should have known better. Anyhow, celiac is an autoimmune disorder and progresses...
  15. nettiebeads
    Two inches in 8 months is good. Please relax mom, and don't make food a real big issue. I would be more concerned with his motor, spatial, verbal, cognizent (sp?) skills. Is he happy, doing well with others, learning, and plain feeling better? Remember, even w/o celiac holding his growth behind, every child grows at their own rate. When did you husband...
  16. nettiebeads
    Well, keep hoping, but after 9 yrs, I still get them, but not as frequently. A month ago it was brownies. The real kind with gooey center - Don't know if it was a gluten dream or that I gave up chocolate for Lent. But it's always the same - I get mad and stick the darn thing in my mouth, then think "WHAT AM I DOING?" and then spit it out and hope there...
  17. nettiebeads
    You're for real, right? Not just joshing with us? If you are for real, then you are a breath of fresh air to a lot of people here. If you remember, celiac has about 200 symptoms, and people can be asymptomatic as well. And as with most autoimmune disorders, the severity and course of the disease can vary widely from one person to another. I think the...
  18. nettiebeads
    My reaction time varies. But what is consistent for me isn't the intestinal, but the "head" problems. Mood swings, depression, brain fog and severe fatigue that can last up to three weeks. So even if your stomach isn't responding right away, (sometimes it took me 24 hours to know that I had been glutened) you are still doing damage. Hon, you for some...
  19. nettiebeads
    I think women probably have more "fun" with this aspect then men. Especially those of us who have had at least one pregnancy. That urge can come from so many things - diet, mild uti, mild bladder infection, lack of enough liquids (I'm guilty of that one a lot) and if I'm constipated for more than a day, I'll leak. Good thing the bathroom is real close...
  20. nettiebeads
    If the bloodwork came back positive for celiac, you don't might just have it, you have it. How did you feel on the gluten-free diet? and did you feel different off? I never had any of the tests people here have had. I went to my gp with D, he put me on the gluten-free diet, and voila! No D, dx of celiac. No other dr since has questioned his dx. (well...
  21. nettiebeads
    Most products make me so constipated that I'd rather suffer with the gas. I usually curl up in bed or on the sofa with a heating pad. Lieing on your right side helps your system dispel the gas. (learned that from a nurse after major surgery) Annette
  22. nettiebeads
    I like having things bright, but I attributed it to the cave I call my office. Or aging. Remember, it's not really the gluten that causes it, but the body attacking itself in response to the gluten. Then the body can't absorb all of the nutrients, which starts a cascading affect to the rest of your body. So remain gluten-free to the utmost possible each...
  23. nettiebeads
    I enjoyed your post - it's good to hear success stories. I'm glad you were able to go out, socialize and not have problems with gluten. It proves that celiac does change certain parts of our lives, but it can't keep us from participating in life with a little forthought and planning. Annette
  24. nettiebeads
    The specialty teas that Celestial Seasonings puts out at holiday time are made with roasted barley. Their normal line is gluten free. But of course, you can check the labels each time you pick up a box. Annette
  25. nettiebeads
    You are not alone. Sorry I can't help you with the shampoo issue - My hair is fine and limp. My daughter can sympathize with the curly hair, but she doesn't have celiac so she can use whatever. Yep, this disease is an aggravation. Sometimes you do want to be able to take a pill and make it all better. But it does force you to be creative. I make a pancake...
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