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Latest Celiac Disease News & Research:
Everything posted by julissa
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ARCHIVED I Dread Eating Out, Please Help
julissa replied to pretty in paleo's topic in Gluten-Free Restaurants
I hear you loud and clear and sympathize with you. when I first went gluten, dairy and soy free around Thanksgiving, eating out was too difficult for me because of the fear. now, I have been eating out maybe once a week at restaurants with gluten-free dedicated menus. so far so good. I still go through my instructions, explanations, letting them know I am...- 21 replies
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ARCHIVED New To This World, Question For The Long Timers Here
julissa posted a topic in Coping with Celiac Disease
So I have been gluten free since November, and now dairy and soy free a few weeks. I find that people who I speak to have many varied reactions, from, "I could never do that", to "yes, I am gluten free too". just yesterday I met some friends for lunch at Whole Foods, they all ate off the salad bar, I didn't get anything. I don't trust salad bars, but I just... -
ARCHIVED Just A Few Questions!
julissa replied to mackahroni's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
after going gluten free and feeling great, my first glutening came when I was baking cookies with my granddaughter. I would take every precaution if you are going to be in the same room as the chefs using regular flour. -
ARCHIVED Celiacs Feel Excluded From Social Life - Celiac.com
julissa replied to Scott Adams's topic in Publications & Publicity
I find it just takes a little thought and a bit more work, when I go to someone's house, I take my own food. I can still socialize and most people don't even notice. when people come to my house, they get gluten-free food, again, most don't even notice. -
ARCHIVED To Go Full Out Or Not - Guten Sensitivity And The Fear Of Making It Worse
julissa replied to giggleburger's topic in Coping with Celiac Disease
here's my take on this, and you may get people more experienced weighing in. if indeed you are not celiac, then it should be a personal choice to eat gluten. if you are non celiac gluten intolerant, you aren't doing damage to your intestines, you are getting some discomfort of symptoms. if you are okay getting sick, or whatever happens to you, then eat it... -
ARCHIVED Reaction To Allergy Testing
julissa posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had been told I had a negative biopsy last year, and am not celiac. I went gluten free in Nov and have felt great. my symptoms that I believe are from gluten are gone, those are being dizzy. I had also been getting nausea, so I am now going through testing for food allergies. my doc thinks I am celiac even with the negative biopsy. so last week I had... -
ARCHIVED Unsure About Getting Tested
julissa replied to julissa's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
okay, I guess I am not supposed to ask about testing, I see the names have been removed. so sorry, I didn't know. -
ARCHIVED Unsure About Getting Tested
julissa replied to julissa's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
just bumping this to see if anyone might answer. I have been doing some research and am looking into (Company Name Removed - They Spammed This Forum and are Banned) and entero. (Company Name Removed - They Spammed This Forum and are Banned) is right near my house. just looking for anyone's input.. thanks -
ARCHIVED Al-Cat Vs. Elisa Food Testing
julissa replied to porkchop60c's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Davina, what test are you having? Just curious. -
ARCHIVED Fatigue And Anxiety
julissa replied to porkchop60c's topic in Introduce Yourself / Share Stuff
hi porkchop, sorry, I have no answer for you, I just wanted to say that I am in a similar situation as your daughter. I looked up entero lab and the (Company Name Removed - They Spammed This Forum and are Banned) test online. they look promising. I would love to find out more and get any opinions from the more experienced here regarding tests like this. I... -
ARCHIVED Unsure About Getting Tested
julissa replied to julissa's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
oh also, not sure if it's relevant, but I was told I have a hiatel hernia. -
ARCHIVED Unsure About Getting Tested
julissa posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I hope to get some advice about getting tested for sensitivity. Here's my story, I have had terrible symptoms for a little over a year of nausea/diarrhea/dizziness. I had no idea what it could be, went to several docs including 2 GI docs. was given every test that was recommended, including a biopsy. every result came back normal, nothing was wrong. okay... -
ARCHIVED Tyvm For This Forum!
julissa replied to WCeline's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am new here myself, welcome aboard! I echo your feelings as well. I feel like I have to be figuring out what's going on in my body, as no one else can. including 2 GI docs. the vertigo is also what scared me as well, and after doing my own research, thought it could be a gluten sensitivity. apparently I was tested for Celiac in January. the doc gave no... -
ARCHIVED A Year, A Novel, A Thank You
julissa replied to Adalaide's topic in Coping with Celiac Disease
and a thank you to you for sharing your story. you are right, it does give me some hope. at this point in my journey which has just started a week before Thanksgiving, I can't see past all the restrictions I have. I can't imagine a normal life again. I feel like I am ruled by food, and I am afraid all the time when I am around gluten. it is beyond ruling... -
I just found this thread and am so happy. I am going in June with a group, and have been pretty nervous. thanks to everyone for great info!
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ARCHIVED Gluten Free Fairy Is Watching Over Me
julissa replied to nvsmom's topic in Coping with Celiac Disease
love this! -
ARCHIVED Stupid Mistake - I Should Know Better By Now..
julissa replied to LauraB0927's topic in Coping with Celiac Disease
so sorry, hope you're feeling better today -
I am so sorry about your friend's husband. I also think this post is fantastic, you and your dh really handled it well, what a great guy!
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ARCHIVED How To Know If It's Really Gluten Free?!
julissa replied to GFreeMO's topic in Gluten-Free Restaurants
so sorry that happened to you, feel better. yesterday I was out with my dh and friends and we saw a pizza place that had a sign that said gluten free pizza. so we went in and I asked about it. I saw flour all over the counter, and everything out in the open. I was told they have the gluten-free ingredients in another room, have a separate oven, and use... -
ARCHIVED Eating Gluten Before Test
julissa replied to claireh's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
this is such a crazy thing, I don't get it at all. a nurse from my health insurance company called the other day to consult about some other issues I had been having. I told her about my going gluten free for the past 2 months, and how I felt worlds better. I had a colon biopsy earlier this year, and was told no celiac. she told me I should go to my doctor... -
I go under the premise that if you don't ask, no one can tell you no. depending on where I am going, I have been known to order a salad and top it with something I brought inconspiculously. I don't make a big deal, and no one really even notices. I feel that if a restaurant doesn't serve food I can eat, I take it upon myself to be safe.
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ARCHIVED Target-Archer Farms Nuts
julissa replied to porkchop60c's topic in Gluten-Free Foods, Products, Shopping & Medications
I completely agree and am baffled by this as well. I had a bag of walnuts from pre gluten-free shopping, and went to open it yesterday to use, it listed wheat in the ingredients. what? that is just crazy. -
ARCHIVED What Are Some Of Your Favorite Quick Staples For Meals?
julissa replied to GFreeMO's topic in Gluten-Free Foods, Products, Shopping & Medications
I get home late several days a week, so what I have been doing is making my pasta or rice staple, and freezing individual portions. I also freeze individual portions of chicken, meatloaf, whatever I am making when I get a chance, so I can pull out components of a meal and just make a veggie. super quick meal. -
ARCHIVED Nightmare At Charthouse
julissa replied to idonteatwheat's topic in Gluten-Free Restaurants
I am so sorry you went through all that. I am glad there are gluten free menus around, but I fear the education of those involved with getting them to us has not evolved. my husband loves to look for restaurants with gluten-free menus, but I am still afraid of the no control of it all. at least you may have raised some awareness there. -
ARCHIVED Gluttened... What Does It Feel Like?
julissa replied to designerstubble's topic in Coping with Celiac Disease
for me, I get dizzy and nauseous. that's how I felt coming in to my gluten free life, and that's how I felt when I glutened myself. hope you keep feeling good!