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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    If you suspect celiac disease, you should get tested. celiac disease is an autoimmune disorder that is triggered by gluten (unlike lupus, MS or Diabetes Type 1 where the trigger is unknown). Going gluten free is the key to healing if you have celiac disease, but it can take months to years to resolve. Once gluten is ingested it sets off an autoimmune reaction...
  2. cyclinglady
    I have celiac disease. From what I have learned through research is that symptoms can wax or wane. There is no consistency at all. This applies to me personally. At the time of my diagnosis, I was just anemic. I had always been anemic which was attributed to my being a woman and Thalaseemia (genetic anemia), but during an initial consult to the GI for...
  3. cyclinglady
    I am not a doctor. It would be irresponsible of me to give out medical advice when I am not a doctor. I only shared my personal experiences. I think you need to listen to your doctor. If you do not think your doctor is giving you good advice, you should get a second opinion from a GI who specializes inceliac disease. I also think you should talk...
  4. cyclinglady
    You should listen to your doctor. The high IgA? For celiac testing, it is just used as a control test. Mine was really elevated and I do not have cancer. I do have two autoimmune disorders. So, I personally would not worry about that result. Open Original Shared Link I am not a doctor, but my cholesterol totals and HDL have historically...
  5. cyclinglady
    Welcome to the forum. As a newly diagnosed celiac, I strongly recommend NOT eating out under you are 1) feeling well and 2) have really mastered the gluten-free diet. You can join family and friends and order a drink. Just eat before you go and always pack a snack. The exception to this is a 100% gluten free restaurant. That said, I find that...
  6. cyclinglady
    First, it sounds like your son is still dealing with a damaged small intestine. That means he can still develop intolerances to anything, especially if he is getting any exposure to gluten. My kid does not have celiac disease, but she can not tolerate orange juice. She breaks out in a rash. Too much of a good thing. It takes about two to four...
  7. cyclinglady
    Want something to read about celiac disease while drinking your coffee or tea? Open Original Shared Link
  8. cyclinglady
    @ironictruth Excellent advice!!!! When I take a gluten hit (it has happened twice and I still do not know the source, but it has been documented by my GI). I eat super safe and totally bland foods. Simple stews and soups (think crockpot). Everything well-cooked and unseasoned. Usually just fresh veggies and meats/fish/poultry. No fruit, nuts...
  9. cyclinglady
    Welcome! The first step is doing some research in gluten ataxia and then ask for your doctor for a celiac antibodies test (full panel and not just the cheaper screening test). Gluten ataxia is very new and many doctors have not heard about it. Here is some information about gluten ataxia: Open Original Shared Link Open Original Shared Link ...
  10. cyclinglady
    Tannins. Reacting to them is especially bad if you own a winery. ?
  11. cyclinglady
    I hope they figure it out! You have been through so much!
  12. cyclinglady
    Karen is wise. Yep, it should be your husband talking to her (or at least with you.) I have been married for over 25 years, so I can approach my in-laws now with any issue. I am part of the clan. I have earned it! I do recall them having a fit about the lack of buns for a cookout. I offered lettuce wraps instead. They moaned and groaned (the old...
  13. cyclinglady
    I will just add a link to the University of Chicago's celiac website which is, in my opinion, one of the better sites for explaining all things celiac: Open Original Shared Link I hope you find relief soon!
  14. cyclinglady
    My hubby loves that "Mighty Tasty" hot porridge with added raisins and cream. My daughter prefers the rice porridge. Too many carbs for a diabetic like me. ? I am going to make some now! We are just getting up. Teen had a relapse (flu), so we are all taking it easy. Besides, it is raining. As the weather stations say, "Severe Winter Warning". Southern...
  15. cyclinglady
    My last cruise went well. We cruised Celebrity in July 2016. When only the buffet was opened, staff fetched food for us from the main dining floor. On that floor they have a dedicated allergy area (we toured). There were gluten-free choices on the buffet, but I did not risk it. Just the potatos, hard boiled eggs and while fruit. Why? They offered...
  16. cyclinglady
    Call NOW to let them know you must be gluten free (either the cruise line through all that pre-boarding stuff or your travel agent). The cruise lines need advanced notice. No time to tell more, but if you do this, you can pretty much be assured of eating gluten free safely. I do not personally ever eat at the buffet (except for wrapped baked potatoes...
  17. cyclinglady
    Yikes! You could very well getting glutened by your MIL! An RV is a tiny place! Even if you have been glutened at a restaurant, how can you relax on your vacation? We have an RV and and it is gluten free (my house too). All of our family and friends respect us and our decision not to let Gluten in the house or RV. If your MIL can not comply,...
  18. cyclinglady
    Rethink breakfast. Think lunch or dinner. I usually include veggies for breakfast. Seriously. ?
  19. cyclinglady
    Glad to hear your bone pain resolved so quickly! Let's realistic. It take TIME to heal. One month into the gluten-free diet? Not enough time to heal. Nerve damage takes the longest. Most forum members will report that it takes over a year to feel really well. I had leg tingling, numb fingers, itchy skin (no rash), eczema areas. All that...
  20. cyclinglady
    Hey, I am not a doctor. Just saying it might not be flu-related! I completely agree about keeping your body parts. Bet I would have my gallbladder (despite the family curse), if my celiac disease had been diagnosed years ago. But like so many, it went undetected for many years. I hope you feel better soon. MY own kid has the flu. Day 6, fever...
  21. cyclinglady
    Really good catch, gluten-free in DC! Oats! Some 10% of celiacs react to oats. It is worth eliminating for a few weeks.
  22. cyclinglady
    I am NOT a doctor, but my input? You have celiac disease! A biopsy will confirm and establish a good baseline. It will rule out other issues you might have in addition to celiac disease. You can go gluten-free as soon as you get the biopsy results, but with antibodies so high, you could go gluten-free right after the procedure (usually until all testing...
  23. cyclinglady
    Ah, this may not be related to the flu at all! It would be wise to follow-up with your GI. I had a non-functioning gallbladder (no stones) that caused off and on symptoms for years. Nothing on an ultra sound. Then while on a business trip, I went to ER. Admitted due to infection (thought it was appendicitis. The HIDA scan caught my non-functioning...
  24. cyclinglady
    Yes it is. You just have to rethink your diet. Some cultures never see wheat, rye or barley in their diets. The gluten-free diet should focus on meats, fish, veggies (potatoes) , fruit, non-gluten grains (like corn and rice), nuts, dairy, and eggs (might have left something off) and not processed--very expensive--gluten-free foods (cookies, pasta, gluten...
  25. cyclinglady
    Good for you. Honestly, my parents are great but I do not trust them to cook safely for me and my husband. Ask them about low carb foods (Dad has diabetes), and they are walking encyclopedias. I stay with them for weeks at a time. I keep a bin of my gluten-free cooking tools at their house. I read all labels and supervise all preparation. But to show...
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