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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Yes, quite so - let's hope some bored hacker out there doesn't reveal all our real identities! I wondered about the thyroid thing, I had read about that somewhere else. Thanks!
  2. cristiana
    Friends - thank you. I can't believe that I am even sharing something so personal and horrid on the internet! But it is great to know that it could be down to women's problems. Apologies to all male readers. I pity my gastro next appointment, but I will have to tell him!
  3. cristiana
    Hi Gals Thanks for your replies. I am not sure why my levels are dipping. I was supplementing in a very half-hearted way when I had my levels checked about 12-18 months ago. My levels were at 41. I then stopped because I assumed I was healed so no problems. Then two months ago I had the most terrifying blood loss in one period. I...
  4. cristiana
    Hello there - is anyone out there who has managed to increase their iron (ferritin) levels without supplementation. I feel I am running out of options now - I started with heavy duty tablets which caused diarrhea and bleeding. Then I went onto ferrous glucanate (sp) and eventually that started to hurt. So now I am Floradix - gluten-free - and nearing...
  5. cristiana
    Hi! That's a great attitude - good to look at it as an adventure! It is really good you are going to be tested for celiac, if I have understood you correctly. I don't know what they advise in the States but here in the UK I was told to have at least two slices of normal toast a day for six weeks (gluten challenge) before I could be tested. But actually...
  6. cristiana
    Sorry Akron, what I meant was even pure oats can cause problems in a few celiacs. Oats are naturally gluten free, but can be contaminated with gluten when they are being processed. You can buy oats that are not contaminated in this way called gluten free 'pure oats' but even these can cause problems in a small percentage of celiacs because some of us...
  7. cristiana
    Wow Akron, that's great to have a friend as a neurologist! Wish I had one of those! Frieze is right. One other 'substance' that might be bothersome: as I understand it, soy can, in certain individuals, cause problems. Have a look at this and search for the mentions of soy. Open Original Shared Link I did a lot of swapping of gluten and...
  8. cristiana
    Hi Akron I am sure that a lot of those reading will be able to identify with the fear that you are feeling at the moment - even if they don't type an answer! Before I was dx'd I had blood results that really concerned my doctor and unti I had gastro symptoms six months later there was no indication that it was celiac disease that was behind...
  9. cristiana
    Hi Akron I sympathise. I must admit of all my ongoing symptoms (I was DX'd in May 2013 and went gluten-free a month before that) my pins and needles and facial tingles and eye twitches are the things that get to me most. I have symptom envy sometimes when a friend says she has had a bad stomach after eating gluten, awful to admit, but I would rather...
  10. cristiana
    Thanks so much - v. informative. I guess it would have been easier to know if malabsorption of iron was the principal problem behind my lower levels if I hadn't had these 'womens issues'. I am taking some gluten-free Floradix every day now until my next blood test in about 25 days. It will be interesting to see if it is a bit better by then. My...
  11. cristiana
    I hope you all had a good Christmas. For the girls. A couple of months ago I had to have blood test to see if I was anemic. My blood iron which was just over 40 in April 2014 has now halved. About six months before my DX in 2013 I was put onto some pretty heavy-duty iron tablets for at that stage unexplained anemia. This supplementation...
  12. cristiana
    Hi Anyana Thanks for resurrecting this post - because of the title I would never have found it. I had no idea that this was such a common problem which makes me feel a whole lot better. I haven't had a flat stomach since I was aged about seven. By the evening I have such a feeling of bloating down my lower left abdomen - I feel like I have a balloon...
  13. cristiana
    I'm just wondering - aren't there other B vitamins deficiencies that can cause tingling? Or too much can also cause tingling - see this about B6? Open Original Shared Link I know a couple of people who have to have B12 injections several times a year as they have pernicious anemia.
  14. cristiana
    Those are the ones that are typically affected in celiacs. I am sure others will chime in.
  15. cristiana
    Hi Amina Can you tell us which liver readings went up by 60 points? What I can tell you is Liver Function Tests aka Liver Enzyme Test results can be skewed in celiacs, from what I understand. One of my own readings was out of range and is within normal range now. I totally understand your anxiety, but try to not to panic. Easily said, because...
  16. cristiana
    Hi Ender Yes, a stitch in time saves nine as we say here - maybe you do in the States. My cousin is a medical rep and says the billions that could be saved if money was spent trying to catch things before they became big problems.... I think I would be more proactive in trying to find the reason for all this myself if it weren't for the fact that...
  17. cristiana
    Hi Ender When I was diagnosed with celiac disease I had terrible tingling and buzzing going on in my extremities, particularly in my left foot. It very gradually got better after sticking to a gluten free diet but also supplementation - iron (ferritin); B12 (sublingual methylcobalamin) and vitamin D. I would get those levels checked if I were you...
  18. cristiana
    Perhaps a bit too early to be talking about this as we are scarcely half way through November, but my mother told me that the big UK supermarket chain are running a big advertising campaign for a gluten free Christmas on TV and I found it here on youtube. I was really pleased to see that they are offering a gluten free Christmas cake in their range as...
  19. cristiana
    Bienvenue - and my sympathies. I love France but have only visited it once since my coeliac diagnosis and it was as difficult as you say, although I did find a few products in a really huge supermarket in Normandy but that was just before we left. I was really suffering with neuropathy when we made that trip. We were in Bayeux one day and I was...
  20. cristiana
    Girls, thanks so much for your replies. And the hugs! I think I ought to print your advice out to pursue the thyroid question with my doctor once I know how the scan goes. Wow - anemic for 20 years? That is dreadful. I have just received some Floradix in the post, a German iron supplement that one can add to OJ and hopefully it will be easier...
  21. cristiana
    Okay - as expected my iron has taken a dive (from 41 to 20). I imagine what I am going through has a lot to do with this, plus the fact that I have ceased supplementation over a year ago. Cyclinglady - is it common practice for celiacs to have to routinely resort to supplementation? I have been gluten-free since May 2013 and ceased iron tablets about...
  22. cristiana
    Hi cyclinglady - thank you so much. This month has been awful, worst ever, and yet other months are fine. I can't help thinking my thyroid is playing up and could be behind all of this. I guess I will need to ask for more thyroid tests if my scan doesn't reveal anything.
  23. cristiana
    Like many of you I had anemia at dx. With various tablets and including red meat in my diet things improved and last reading, over a year ago, I had reached 41 on the scale. I have had to stop taking the tablets as increasingly they disagreed with me and my readings were going up without them. However, approaching the menopause with episodes of menorrhagia...
  24. cristiana
    Do you have problems with you sacroiliac joint? It could be that. Open Original Shared Link Periodically I get something similar except in my case it is not warmth but the feeling that my hip is on fire, and it refers down my thigh. It was bad last night but having rested it is good again. In my case it is, I think, made worse by certain exercises and...
  25. cristiana
    If you can bear to eat them, tins of sardines and bags of nuts are good portable source of protein. On a recent trip to Scotland I discovered the supermarket over the road made some nice bowls of salad, ready to eat, so I didn't go hungry and in fact it would have been a very healthy diet had I not discovered they also sold excellent gluten-free Scottish...
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