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cristiana

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Everything posted by cristiana

  1. cristiana
    How annoying. Here in the UK a lot of manufacturers now list gluten containing ingredients and allergens in bold in the ingredients. I learned a lesson the hard way when I ate a brand of chocolate that didn't put gluten in bold so missed it completely, although they listed milk and soya in bold. Colleen is so right, every label, every time. Not easy...
  2. cristiana
    gluten-free Lover - you have really cheered me up! I have the paper clip feeling in the exact same place! So it is not just me! I will ask my gastro consultant when I next seem him what is there on the anatomical chart?! Thing is yesterday I had an elasticated waist on and that is where the pain was, today a skirt that doesn't put pressure in the...
  3. cristiana
    Hi gluten-free Lover... Thank you for a very comprehensive reply. Yes, that is how the pain feels as you describe in the first para. It also sometimes feels as if there is a paperclip there (or a staple) that is trapping something! I could almost believe it was trapped wind at times. Other times it's like a bee sting. Then it is an itch. A doctor...
  4. cristiana
    Thanks Colleen - I'm sorry, I need to sort out a signature. I just tried but couldn't find out how. Anyway, I have been gluten-free for a year since May 2013, I was diagnosed by biopsy and blood test a year ago - readings were through the roof. Since diagnosis I have had all sorts of weird and wonderful symptoms but this sacroiliac pain predates diagnosis...
  5. cristiana
    Hi everyone Has anyone had sacroiliac pain (I gather SI problems are quite common in celiacs) that has referred to the front of the body? I have inflammation in that left joint but have had pain in my left groin and also, a weird sort of itch/soreness kind of midway between my left hip and my tummy button that never troubles me at night but does seem...
  6. cristiana
    Joanna Rowsell is a really inspirational young British Olympian who has suffered hair loss from a young age and it is really good to read how she has dealt with it. I have always had fine hair but it got really thin around the time of my diagnosis which I think may have been to do with being anemic. I do feel for you as I know exactly how heartless and...
  7. cristiana
    Thank you all so much. There's so much good advice above I feel I ought to print this post out and stick it on the kitchen wall and next to the medicine cabinet. I really appreciate your taking the time to reply to this. Many of my relatives have sailed through life ignoring aches and pains and even more worrying symptoms and have got through to the...
  8. cristiana
    Hi everyone I have just been chatting with a friend from this site and we thought it would be good to post this question. I have always been a little bit anxious about my health but when I fell ill with celiac disease my blood tests revealed that I had elevated blood protein (gamma globulins) and anemia and for a while my doctor was wondering if...
  9. cristiana
    Hi Celiac Ninja Anxiety was a huge problem for me before I was diagnosed, horrid - and so totally different from just being an anxious type of person, which I would say is just my personality type. What helped was my lovely doctor getting my Ferritin normal, B12 levels normal. Then of course getting off gluten when they finally found out what was wrong...
  10. cristiana
    elless, glad you brought this topic up again as two weeks down the line from glutening caused by half a very small bar of chocolate and some crumbs, and the terribly bad idea of taking several NSAIDS to help with a painful joint probably causing damage in itself, I feel I am back to square one with discomfort. Then today I happened to meet my nutritionalist...
  11. cristiana
    Mine went up by over 10 points, I think it was, in three months, through supplementation before they knew I was coeliac. I was taking some really heavy duty iron though. I would agree with kareng - if the damage is patchy, some will still go in.
  12. cristiana
    Apart from the skin bumps and GERD, I could be reading my list of symptoms, with perhaps a variation of the skin pain you mention in that for seven months now I have itchy nerve pain which at times affects the feeling of my skin on the left side of the torso, around ribs and also above the hip, like there is a rash there, but there isn't. At times it is...
  13. cristiana
    My husband will love the commercial, his type of humour! He is British but always reckoned he'd like living in a place like that. Thanks for the tip about trapped wind too, I have a new pain to the left of my abdomen above my hip which I get if I eat dairy and the peppermint tea thing seems to really work. I think you are right about the antacids, they...
  14. cristiana
    I am afraid I don't know what the symptoms are for an excess of those vitamins. I wonder if anyone else reading this can help? I do know that sometimes if I take B12 too late in the day it does make me feel very alert, I can't sleep. Maybe jittery would describe it, esp. if I have also had a lot of caffeine! Definitely start on the D vitamin, that's...
  15. cristiana
    The air bed thing, yes, I would say I had that for six months last year. I could also compare it at times as if I were walking on board a heaving deck on board ship. My legs and arms felt distant and disconnected at times, although they worked perfectly well. I really thought I might have ataxia. I kept going to the doctors who said it was probably anxiety...
  16. cristiana
    Thanks so much GFinDC for all of this, you have been extremely helpful. Boots the Chemist are in almost every town including ours so if things don't get better I can buy some easily. I have looked at the product online and recognise the packaging so I bet they do stock it. My sister who isn't a celiac told me yesterday that she took two Neurofen a...
  17. cristiana
    Sounds like we've been thinking along the same lines, icelandgirl. But I bet you are a great mom (or mum as we would say in the UK) anyway.
  18. cristiana
    I so understand what you mean about children. My husband cheered me up this evening though. As I was sitting on the sofa feeling sorry for myself, complaining that our children will remember their mother as 'always feeling ill', he replied, 'Well at least they won't remember you for nagging them to tidy up all the time' which is true because for simply...
  19. cristiana
    The mind is powerful and I wish I could switch it from negative to positive mode. I was just reading the other day how depression can make aches and pains much worse and I suddenly realised I have got so bogged down with feeling ill and imaginging the worst that perhaps that in itself is creating a vicious cycle. I shall look out this L-glutamine esp....
  20. cristiana
    icelandgirl - wouldn't it be great if in a few months time we were feeling better! I think one of the things that has got to me is the fact that the consultant treating me, a lovely fellow, said to me that when I adopted the gluten-free diet I would feel so much better. I had such high hopes! I was so glad - I thought without gluten it would all come...
  21. cristiana
    Love it - arsenal! You are so right. When I open the cupboard I have to be careful that all the bottles of supplements don't fall out and hit me on the head!
  22. cristiana
    Thanks cyclinglady and GFinDC. I think part of the problem is that I can't be at home much at the moment as it is the school holidays and yesterday I think I left too long between meals and when I did eat, it was gluten-free but rather fatty food. So I shall go equipped with lots of water and eat some bland stuff today. GFinDC, that is really interesting...
  23. cristiana
    I thought I should create a separate topic following on from my discovery that taking just a few NSAIDS over a about a week has caused gastro symptoms, probably worsened by the fact that I was glutened around the same time as taking the tablets. Cramps and indigestion, a sort of burning just under my ribs, these are the symptoms which seem to get worse during...
  24. cristiana
    Hi cyclinglady - well done for finding the reason for the twinges. I am not 100% sure yet that it was the NSAIDs in my own case or accidental glutening, perhaps the two went hand in hand to cause the problem. Just hope it goes away soon, there's always something, I would love a day when I wasn't trying to figure out why I felt 'off'!
  25. cristiana
    Thanks so much everyone. V. interesting links nvsom. I have decided that my journey with NSAIDs ends here! I wonder if anyone else has had the experience of it setting off their gut problems in the first place, like me. I foolishy thought that as a recovering celiac, many months on from giving up gluten, I would be able to cope with taking them again...
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