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tarnalberry

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Everything posted by tarnalberry

  1. tarnalberry
    Yes, the celiac picture fits. You may have been reading either out of date or excessively "concise" material - constipation is a common symptom as well. Eating a lot (especially without gaining weight) is also a sign (because she's not digesting food, she's hungry a lot!). Reflux is also a common symptom of food intolerances. Really, it fits fairly well...
  2. tarnalberry
    you can get/make gluten free playdoh and ask the school to use that instead. it takes a VERY small amount of gluten to cause a reaction, and if she plays with playdoh, and then puts her hands in her mouth (or gets crumbs from elsewhere), she is getting contaminated and her body isn't ever getting a real chance to heal.
  3. tarnalberry
    There's a lot to be said for mommy intuition. We've been EC'ing (though we didn't start that early) and signing (she's slow at it, 10.5 months and just (unclearly) signing two things), and I think that you can get a good idea of what's going on from being so observant. You saw a correlation - ok. It may (or may not) be a causation, but you saw it repeatedly...
  4. tarnalberry
    don't forget that if you're trying to test gluten, wheat free isn't enough.
  5. tarnalberry
    Find a local doctor who is registered with the American Academy of Breastfeeding. You may need to do some calling around. That VAST majority of meds (including things used for sedation) are NOT contraindicated in breastfeeding (heck, they could just pick one that they use in labor, those don't even have to go through breastmilk but go straight to the baby...
  6. tarnalberry
    depending on when you gave her (cow) dairy or soy, it may not be surprising that she used to have problems but now doesn't. a baby's digestive tract matures slowly, and it's really not uncommon for the more difficult to digest protein in cow dairy to be difficult for young babies to digest. the same is true for soy. I do not know if anti-gliadin (or...
  7. tarnalberry

    ARCHIVED Snacks

    tarnalberry replied to K8ling's topic in Coping with Celiac Disease

    That's very little protein or fat. From my estimates: 2 slices udis - 180cal, 4.5g fat, 27g carbs, 1g fiber, 4g protein 1 tbsp strawberry jam - 50cal, 0g fat, 12g carbs, 0g fiber, 0g protein 1 tsp butter - 33cal, 4g fat, 0g carbs, 0g fiber, 0g protein 1 cup corn chex - 110cal, 0.5g fat, 25.5g carbs, 1g fiber, 2g protein 1/2 cup 2% milk - 70cal, 2.5g...
  8. tarnalberry
    I haven't tried their stuff for backpacking, so I can't chime in on that. One thing you can consider doing is making your own food - many things dehydrate and rehydrate well. (Chili is great for this!)
  9. tarnalberry
    There will NEVER be a test that can test for zero gluten. It is not scientifically possible to test for zero gluten in any sort of representative way.
  10. tarnalberry
    The celiac reaction in the gut can self-sustain itself for two weeks. So, if you eat gluten every other week, you are *never* without antibodies in your intestines - doing the damage they do on your intestines or on other parts of your body if they get into the blood stream. Either way, they tax the immune system and create a lot of chemical stress on your...
  11. tarnalberry
    If you haven't dealt with "small sources" like soy sauce and cheerios, or contamination sources like shared toasters and cutting boards, he's not gluten free. You could try the blood test (realizing that it has a greater than normal chance of false negative) and the genetic test, but also try taking him completely gluten free (after any blood tests, of course...
  12. tarnalberry
    You can ask the couple getting married for the caterer's name and talk to them. I always just brought my own food.
  13. tarnalberry
    Three eggs and some beans (usually half a can). Rice cakes with peanut butter (or a sub - almond or sunflower seed, for instance). Millet grits with almond milk and ground flax seed. Smoothie with protein powder.
  14. tarnalberry
    Two weeks isn't enough time to make sure that everything she gets into her mouth is completely gluten free. It's about enough time to realize that you can't share a toaster, or wooden cutting boards, or wooden spoons. Enough time to realize that playdoh has wheat and can cause a problem, and that the toys at preschool are all covered in crumbs from snack...
  15. tarnalberry
    I would put money on being contaminated - a lot. I have a 10 month old, and she will eat what I eat in the house until she is old enough to be as responsible as my husband is about his gluten (and he is quite responsible).
  16. tarnalberry
    If you go to pubmed and look at the research on oats in celiacs, you'll see that, on average, 10% of the particpants eating gluten free oats experience intestinal damage. I don't have time to link the studies for you (10 month old crawling around and all), but you may find it informative to look them up yourself.
  17. tarnalberry
    Leafy greens are the best source of folic acid - can you get her to eat salads, spinach, and so on?
  18. tarnalberry
    Gluten free oats are (theoretically, and usually via standard testing) free of gluten. BUT 10% of celiacs react to oats (the oat protein itself). You might try taking out the oats and see if it makes a difference. (But if you have corn issues, take one or the other out at a time if you want to see which it is.)
  19. tarnalberry
    I think you say what you said here "You're looking for me to approve or disapprove your choices on the diet you know you need to do but don't want to. I'm not going to do that." And then don't give her an answer - make your own meal separately if you have to. But I would be VERY clear to her that you know what she's doing (even if she doesn't) and you...
  20. tarnalberry
    Not crazy at all. Female infertility is associate with celiac disease - particularly early pregnancy loss. No guarantee it will "fix the problem", but there is statistical correlation.
  21. tarnalberry
    My daughter is only 10months, but she gets mostly the same stuff we do. (We don't cut everything into small pieces though, just some things.) Lots of fruit are fine (ripe pear and banana don't need to be cut up, if you're comfortable with it, but I do cut up even ripe mango) and veggies roasted are great. While we tend to eat at home, I plan on doing the...
  22. tarnalberry
    They do, however, have oats (and not gluten-free-certified oats) which are likely quite contaminated with gluten. (Please correct me if I'm wrong about the gluten-free oat certification on their cereal; I don't see any such note on the website, but perhaps it's one the box?)
  23. tarnalberry
    10% of celiacs react to gluten free oats. non-specialty oats are almost universally contaminated at levels too high for celiacs. what about amaranth, quinoa, and teff (even sorgum as a flour)?
  24. tarnalberry
    While I can only suggest that you contact your doctor about it (to get the name of the manufacturer of the vaccines that you would be getting so you can call them directly), I know of NO injected medication that contains gluten.
  25. tarnalberry
    eh, you don't even need to introduce cereal. my 10 month old is eating lots of solids, but the cheerio subs tend to be harder than the real kind. (of course, my inlaws gave my daughter cheerios this weekend while they were here - not actually against our plans, but ugh! - she seemed to be just fine with them.) we do a lot of hummus, beans, lentil soup...
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