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Jmg

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Everything posted by Jmg

  1. Jmg
    That was my conclusion prior to my gluten challenge. Although I absolutely think your right to pursue a diagnosis ultimately your health and well being is the goal. So do trust your own knowledge of your body and how it reacts. You are the worlds leading expert on your own body
  2. Jmg
    It's one of the most annoying bugs as its intermittent. I can't pin down what, if any, variable is at work. Has there been a forum update recently or a patch applied?
  3. Jmg
    Sounds good. Try not to worry, lots of people have been where you are and come through it feeling better than they thought possible.
  4. Jmg
    Its toxic to celiacs. It's generating an immune system response, even a tiny amount keeps that reaction going. So there's not really any benefit to cutting down and mean times the damage is continuing. The other problem is more psychological. To heal you need to be completely gluten free for life. No exceptions, no cheating, not one crumb. That's a...
  5. Jmg
    Ah, sorry, I'd seen you'd asked previously and hoped you may have take the advice Unfortunately removing gluten prior to testing is one of the classic mistakes that so many of us fall into, myself included! It means that if you notice a difference and then go back for testing you have to reintroduce gluten for a 'challenge' period, which can be much...
  6. Jmg
    What did the doctor say when you asked about testing?
  7. Jmg
    Yes I had this prior to going gluten-free. I can't honestly remember now if it recurred during the challenge, I think so but without finding my diary I can't say for certain. I do know it took me longer to recover from the challenge than it did the first time I went gluten-free. The best source I've found on NCGS has been the Italian researchers, I think...
  8. Jmg
    Hello and welcome You've found a good site, hope you get the answers and any support you need here. There doesn't seem to be much that celiac can't do but whether it's the cause of this or not is something a doctor would need to investigate. This forum is a great resource for finding others who have suspected similar: https://www.celiac...
  9. Jmg
    I had visible gastritis but negative on the biopsy for villous atrophy, so it's not conclusive either way. I can't say whether it will have any effect. As above, people vary wildly on how long antibodies take to disappear. From the outside my advice would be to stay on gluten until testing is complete but I understand how when you've been suffering...
  10. Jmg
    Hello again You've replied to an old thread so be aware some of the info above may be out of date... So I suspect this idea seems to come from the suggestion that NCGS primarily activates the innate immune system, triggering an instant response, whereas celiac triggers the adaptive immune system where a response is delayed due to the time to create...
  11. Jmg
    Thanks just had a quick read. It reminded me that I'm a little ambivalent about Chris Kresser's work. I think he creates some good content, I spent a fair bit of time reading his blog when I first started putting my own case together, but I'm not always convinced that his conclusions are fully justified by the evidence, he's a little too quick to generalise...
  12. Jmg
    A close family member has hashimotos but her doctors have never mentioned gluten to her as a potential trigger. They also have her on a long term course of PPI which I'm very sceptical about. As some of you can imagine I tend to see gluten behind everything and as I had thyroid related symptoms when I was on gluten which have resolved on the diet and...
  13. Jmg
    My mother has two cats, one older than the other. The younger one is a real character. Very strong willed, a pain if he's not getting his own way but also very affectionate. He has a very quiet miaow and a very loud purr which is a nice combination. When he see's me he runs up and raises himself on his hind legs towards my hand to indicate that he needs to...
  14. Jmg
    I hope you're feeling better now. When you get the test results you can post them here if you'd like some input from the members. They were really helpful with me when I was going through the diagnostic process Once you've completed testing you may want to go gluten free regardless of the results as it seems as if your body is reacting strongly...
  15. Jmg
    I think that explains your doctors advice. I think she's thinking that with only 6 days off gluten that two weeks back on should be enough time. As to whether 6 days would be enough to throw a result, I honestly don't know. As far as I can work out people's reactions vary enormously. did you go gluten free before or after the stomach pains?
  16. Jmg
    I forgot before to say this: made me laugh. Ever since that Monash study came out I've seen some commenters online or doctors eagerly dismissing NCGS as fodmaps. They don't seem to realise that the study didn't establish that fodmaps was the cause they simply suggested it was a more plausible than gluten. I don't blame the laymen, it was presented...
  17. Jmg
    Hello and welcome Were you previously gluten free? For celiac blood tests to work you need to have been eating gluten for several weeks beforehand. Two weeks may not be enough for an accurate result It may be, people differ, but if the test is negative be aware it could be due to such a short time on gluten. A gluten challenge can be rough, although...
  18. Jmg
    Hello again I've answered you in the UK thread also but this one may be a better bet as its in the pre diagnosis forum. Firstly, welcome! This is a good place and you will get as much advice and support here as you need. We all remember how this: feels. Second, this can be very confusing, I tried to put together some useful Q&A here...
  19. Jmg
    Ah just found your other post I will answer there!
  20. Jmg
    The blood test works by looking for the antibodies created when a celiac person eats gluten. You have to be eating gluten for the antibodies to appear. So this doesn't make sense! If you were already diagnosed you could use the blood test to establish whether the gluten-free diet was working or to test adherence to the diet, but if celiac hasn't been...
  21. Jmg
    Hello Obviously if you've had a scope you've been down the diagnostic road a stretch so forgive me saying, if you think there's any chance your Doctor will want further blood tests then hold off on going gluten-free! It just makes the diagnostic process so difficult. Particularly as if gluten is a problem for you, it can be much more of a problem if...
  22. Jmg
    I know exactly what you mean! Once I had the negative result from the biopsy that was pretty much it as far as the medical profession were concerned. The consultant recommended I stay gluten free for life, which was never in doubt once I'd experienced the challenge, but there is no after care, advice or monitoring as might be expected with a positive celiac...
  23. Jmg
    They look good, am not conscious of having seen them so far. I usually get the incredibly cheap everyday essentials Aldi tortilla chips. They're not marked gluten free but they were in the coeliac UK guide and dont give me any problems. I can get a pot of salsa and the tortillas for less than a bag of doritos. Incidentally aldi now selling rice...
  24. Jmg
    I know it's a sad time saying goodbye to pastries and more but at least you have an answer and can now start to heal There's lots of good advice for you here:
  25. Jmg
    I didn't bother pursuing one. I don't know how readily available they are here in the UK but it wasn't going to help me in any case. As far as I know it can be used to exclude celiac but not diagnose it. I think Open Original Shared Linkin conjunction with positive serology and reasponse to GFD to diagnose celiac without an endoscopy, but I doubt it would...
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