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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, StrongStar! Absolutely! Ataxia and other neurological effects are a well known manifestation of both celiac disease and NCGS (Non Celiac Gluten Sensitivity) for some people. The symptoms and physical manifestations of celiac disease and NCGS are tremendously varied and go well-beyond the classic ones related to digestive issues...
  2. trents
    I just want to point out that apparent lack of symptoms does not necessarily equate with no damage being done to the villi of your small bowel. There are many who have a "silent" expression of celiac disease until the damage gets to a certain point.
  3. trents
    Were you actually diagnosed with celiac disease or do you have Non Celiac Gluten Sensitivity (NCGS)?
  4. trents
    Welcome to the forum, AnnaA. Yes, I believe you should get retested. But make sure if you do that you are eating regular amounts of gluten daily for a couple of months before. Many make the mistake of trialing the gluten free diet before they go in for testing. It is also possible you have NCGS (Non Celiac Gluten Sensitivity) which has many of the same...
  5. trents
    No one wants you to leave. You are welcome here as long as you don't try to pass fringe concepts as gospel truth in a dogmatic, authoritarian way. Please realize that there are many who join this forum who are new to the celiac disease/Gluten sensitive world. They don't know enough yet to be able to evaluate the validity of information they may find here...
  6. trents
    From Dr. Alireza own words according to the last link you provide: "Did you know that oftentimes people will purchase rice thinking that they are eating well? Even though rice is considered gluten-free based on the definition set forth by the FDA, rice does contain a form of gluten prolamin called orzenin. In my experience, those with known celiac disease...
  7. trents
    Thanks for the additional information. Your tTG-IGA is moderately high. We do see them in the hundreds sometimes. But my hunch is that your score is high enough to rule out most other possible causes of elevated tTG-IGA besides celiac disease.
  8. trents
    " Gluten is a protein found in wheat, barley, rye and triticale (a cross between wheat and rye)." https://www.mayoclinic.org/healthy-lifestyle/nutrition-and-healthy-eating/in-depth/gluten-free-diet/art-20048530#:~:text=Gluten is a protein found,cross between wheat and rye).
  9. trents
    I do not think this is true. They main contain protein chains that are similar to the gluten found in wheat, barley and rye but technically speaking they are not gluten. However, you do occasionally here of people referring to these similar proteins as "rice gluten" or "oat gluten" or "corn gluten". Strictly speaking, however, it is a misnomer.
  10. trents
    Welcome to the forum, Briezy! Yes, it is true that reducing or eliminating gluten from your diet in the weeks leading up to either the serum antibody tests or the endoscopy/biopsy will compromise your test results. Antibody testing involves looking for inflammation markers (e.g., tTG-IGA) produced by the autoimmune reaction in the lining of the small...
  11. trents
    Welcome to the forum, Barb! Have you considered that you might have SIBO? It's a common problem among celiacs. Also, are you still using oats (even gluten free oats) and dairy? Do you still eat out at restaurants? You say you have never purposely eaten anything with gluten in it. That statement makes me wonder how aware you are or how careful...
  12. trents
    https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ The link above will take you to a primer for celiac disease antibody testing. Some experts believe NCGS may be a precursor to celiac disease. Keep us posted.
  13. trents
    What I can tell you is that other bowel diseases are more common in the celiac population than in the general population. I don't think there is necessarily a cause and effect but more likely a genetic connection as, in general, autoimmune diseases tend to cluster. But, I really can't give a definitive answer to your question in regard to NCGS. We know much...
  14. trents
    Also, ask your physician to order these tests: Total Serum IGA, tTG-IGA, Deamidated gliadin peptide (DGP IgA and IgG). Many physicians are fairly ignorant about celiac disease and testing and so will only order the tTG-IGA. Some people's immune systems react atypically so these other tests may catch what the tTG-IGA might miss.
  15. trents
    Welcome to the forum Adr64! It is likely that the week off gluten will have a slight impact on the antibody test scores but unless they are very borderline positive it should not effect the big picture. To put this in perspective, when someone has been gluten free for a long time and wants to be tested to confirm their assumption of celiac disease then...
  16. trents
    Welcome to the forum, Hol.lydo! You are facing the cold realities of having a celiac diagnosis. These are struggles that we have all been through (and are going through) to one degree or another. One thing to keep in mind is that just as this is all new to you it is also to the important people in your life. Some of them will come on board and accommodate...
  17. trents
    Your dad has several classic symptoms of celiac disease. There are serum antibody tests designed specifically to check for celiac disease and then there is also an endoscoy with biopsy to microscopically check for the actual damage done to the villi that line he small bowel, this damage being the hallmark of celiac disease. The serum antibody tests are designed...
  18. trents
    Auntie, I tend to agree with you. My impression is that the more we learn about gluten-related disorders the more we realize they don't very well fit our former neat little categories that reflected the assumption that they were separate and distinct conditions. My observation is that many of our forum participants who have been diagnosed with NCGS have neurological...
  19. trents
    Agree with Scott.
  20. trents
    Low serum calcium is probably not due to malabsorption from celiac disease because the body will take calcium from the bones to keep serum calcium from dropping below needed levels. But malabsorption therefore certainly can result in osteoporosis. If serum calcium is low there is probably another metabolic problem at work. The anemia may be due to malabsorption...
  21. trents
    A lot of things have been known for a long time but still most people are still totally unaware of them. This article may be the first exposure that many in the gluten sensitive/celiac community have ever had to the term FODMAP.
  22. trents
    The genetics of celiac disease is in flux. So far, researchers have identified two main genes associated with celiac disease and are discovering other genes that play a part in the development of celiac disease. I believe we have seen some anecdotal evidence on the forum of people who do not have either of the two main genes (DQ1, DQ8) but have, or seem to...
  23. trents
    Erythema would indicate inflammation is going on and in the area of the bowel that celiac disease affects. Persistent inflammation is what damages the villi that line the duodenum/duodenum bulb. So, yes. I would think this is an indicator of possible/probable celiac disease. If there proves to be not much indication of actual damage to the villi then it could...
  24. trents
    Where was the erythema? Esophagus, stomach or duodenum?
  25. trents
    Seems obvious to me that your daughter has either celiac disease or NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms but NCGS does not damage the villi that line the small bowel. NCGS is 10x more common than celiac disease. But there is no test for NCGS yet. celiac disease must first be ruled out. We can test for celiac disease....
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