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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    isitgluten, welcome to the forum. Yes, it sounds like you probably have NCGS (Non Celiac Gluten Sensitivity). No, it is not necessarily true that you would not experience the symptoms you describe only when eating larger amounts of gluten. You might be sensitive enough that CC could produce those symptoms. But it is also true that you might have other...
  2. trents
    How can you you have an overload of B12? It is a water soluble vitamin and any excess will be peed out.
  3. trents
    kagey, What form does your psyllium intolerance take? How do you react to it? Are you wheelchair bound or otherwise rendered immobile? That's a lot of stuff to take to keep things moving.
  4. trents
    Welcome to the forum, Karlen! My guess would be that the "IGA-So" is a measure of total IGA. And yes, it does appear to be low which can skew other IGA antibody test values. Your physician only ran one of the several antibody tests that can be run for celiac disease diagnosis. He ran the TTG-IGA test which is the most commonly run celiac diagnosis...
  5. trents
    That seems like a wise course of action and I'm glad I could help. A couple of years ago I was having pain in my scapula. It turned out to be a "referred" pain from some nerve irritation in my C spine. The "facets" in my neck were rubbing on the nerves that run from the upper spinal cord to the shoulder blade area. And by the way, the relief you experience...
  6. trents
    No, I don't remember getting it grabbing me at night at all. But then, it was a long time ago. What I remember is just that it happened during the day. I went to the GI doc about it and he told me it was likely PF.
  7. trents
    In the past, I have suffered with PF. If I recall correctly, it was shortly before my celiac diagnosis and I haven't been bothered with it since. That was going on 20 years ago. For me, it was not an electrical shock kind of pain but a sharp muscle cramping sort of pain. And it was pretty unpredictable. I can't remember if it was associated with having a...
  8. trents
    Well, I am not inclined to agree with the the GI doc's conclusion that you have celiac disease. I am not sure how he reached that conclusion, based on the testing evidence and the fact that you are not doing better on a gluten free diet does not support his diagnosis. Could you have a problem in the thoracic spine area which innervates the organs, viscera...
  9. trents
    If you have been on a gluten free diet for a matter of weeks or months and not feeling better and since your tests for celiac disease are negative, then I would go a different direction in your medical exploration. One possibility is that you have other food intolerances that have nothing to do with gluten. And the back pain does not fit with celiac symptomology...
  10. trents
    Prolonged use of NSAIDs can damage the villi in a similar way to Celiac disease. For any celiac disease testing to be valid, you need to have been eating normal amounts of gluten up to the time of testing, both for the serum antibody tests and the biopsy. Going gluten free before testing will likely invalidate the test results. For the serum antibody...
  11. trents
    The mucosal scalloping would be of concern with regard to celiac disease but everything else in the testing does not point to it. You could be suffering from NCGS (Non Celiac Gluten Sensitivity) which gives many of the same symptoms as celiac disease but does not damage the villi. In that regard, have the symptoms improved since you started on a gluten free...
  12. trents
    The prevalence of type 1 diabetes in the celiac population is 6% and in the general population, 1%. So there is a statistical correlation between the two. Celiac disease onset requires two elements: 1. having certain genes, and 2. a triggering stress event such as a viral illness. I would think COVID should qualify for the latter. Also realize that the...
  13. trents
    Were you consuming normal amounts of gluten up until the blood antibody test draw? Going gluten free before testing will likely invalidate the results. Give it time. If you have celiac disease there is damage to the small bowel lining, where the nutrients from our food is absorbed. Once you go gluten free there should be healing of the lining and a return...
  14. trents
    An A1C of 6.1 is prediabetic level. I would have you consider that you may have other food intolerances not related to gluten. Things that are commonly found in carby snack foods. I would also suggest you look into SIBO (Small Intestine Bacterial Overgrowth) and histamine intolerance.
  15. trents
    If your serum antibody tests were positive, even weakly positive, after being on a low gluten diet, I would assume you have celiac disease. If you have already had the biopsy and are just waiting on results, why are you still eating gluten? Were you already off gluten when the biopsy was done? You mentioned you were not eating much gluten when you had...
  16. trents
    Ah! So there's a difference between fat based vitamins and fat soluble vitamins. I didn't know that!
  17. trents
    I was thinking fat soluble vitamins carried the risk of toxicity with excessive dosages, for instance, D3. Water soluble vitamins are certainly cleared from the system via the kidneys and urine but my understanding is that is not true with fast soluble vitamins.
  18. trents
    I don't know about Allithiamine but Benfotiamine is not water soluble. What is a safe dosage?
  19. trents
    Yes, symptoms are largely the same as with celiac disease. And the antidote is the same: Life-long gluten free eating and not cheating on the diet.
  20. trents
    You could also have non celiac gluten sensitivity (NCGS) in which you experience most or all of the same symptoms as celiac disease but there is currently no test for it. So, your tests would be negative. But to confirm that diagnosis, you would need to have a biopsy done. With NCGS there will be no villi damage in the small bowel.
  21. trents
    I have not heard of the " house smells like mac and cheese" thing before but the rest of the symptoms your describe are all very typical of those who have celiac disease. Have you been diagnosed with celiac disease and if so, why is your GI doc putting you on a gluten challenge? And if you have not officially been diagnosed with celiac in the past...
  22. trents
    No. Nima was bought out by some medical supply company who seems to have eliminated the sensor and it's capsules from their product lineup. The only Nima products available are used and what you might find in carried over inventory. . . but they will be expensive most likely.
  23. trents
    Yes, indeed!
  24. trents
    Yes, you can post links here.
  25. trents
    Personally, I have not read or heard that celiac disease has any effect one way or the other on the effectiveness of vaccines.
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