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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    Here's a link, Amanda, to the surgerical procedure we are talking about: Open Original Shared Link It is usual not to be able to vomit after this surgery, I think. The reason might be that vomiting involves the contraction of the stomach, which after this procedure where part of your stomach acts as a valve to close off the esophagus from reflux, would...
  2. trents
    BTDT? What's that stand for? Since Celiac dx, has your husband been put on any new medication such as bone building drugs? Steve
  3. trents
    There is also a parathyroid hormone simulating drug for bone building called Forteo. It is administered by daily injection and is quite expensive. Can be the ticket for folks who don't respond to the orals like Fosomax or can't tolerate them from an upper GI perpective. I have osteopenia. I'm 56. I was on Fosomax for about two years but took myself off recently...
  4. trents
    You gottem'. Diagnosis is made with an upper GI/endoscopy. This is an extremely common medical problem and there is a higher incidence with Celiacs. I have a small one. Caught it pretty early and Protonix keeps my GERD in check. Steve
  5. trents
    The most common surgery to correct a hiatial hernia is called a lap nissen, a laprascopic proceedure as the name implies. I think it involves taking a muscle from your chest wall or somwhere and wrapping it around your esophagus to create a substitute sphincter valve. This keeps the stomach contents in the stomach - theoretically. It's a lot less traumatic...
  6. trents

    ARCHIVED Knee Bursa

    trents replied to debmidge's topic in Related Issues & Disorders

    The bursas are fluid filled sacs that act as cushions around joints and areas of the body where muscles and tendons must move over boney prominences. They protect the muscles and tendons from damage as they slide over those boney places with movement. Sometimes the bursas themselves become inflamed, usually due to overuse or the changes brought on by aging...
  7. trents
    A generation or two ago, before antibiotics were widely available, strep throat was associated with rhumatic fever and heart valve damage. I haven't heard the term in years, though. Of course, that is not an autoimmune condition. But, it is widely held by experts that acute illness can trigger the onset of Celiac disease in adults who have had a latent form...
  8. trents
    I went back and looked at the referenced article again. The author was not a medical doctor but someone with a BS in health studies or some such thing. It was reviewed by an MD, however. I intended to contact the author to explain that her explanation of Celiac disease was incorrect but there was no email address given for her. Her name was hyperlinked but...
  9. trents

    ARCHIVED Food

    trents replied to a topic in Related Issues & Disorders

    I don't think you can delete a post. I asked the same thing of the forum back a few months ago. Just post a disclaimer or correction. That's the best you can do. Steve
  10. trents
    Thanks for your input, Jersey angel. Sounds like the statement made in the article would better fit a food intolerance condition like say, lactose intolerance where an enzyme is actually lacking that is needed to break down the substance.
  11. trents
    Interesting. I note that in passing, the article mentions that, "None of the babies had celiac disease, in which the body cannot digest a protein called gluten, which is found in various grains including wheat, rye, and barley." Is the mechanism of celiac disease really that the body cannot digest gluten? That is not my understanding of the basis of the...
  12. trents

    ARCHIVED Knee Bursa

    trents replied to debmidge's topic in Related Issues & Disorders

    Deb, I noticed that you said this surgery has been advised by a GP. Has this dx been corroborated by an orthopedist? I wasn't aware that knee replacements were done because of bursitis. Normally, they are done because the cartilage lining the ball and socket of the joint is worn out. Is this the bursa behind the knee cap? Do you have more details? Steve
  13. trents
    Trouble is with these things sometimes, esp. if you have to go to the hospital, is that you may get the orignal infection cleared up but wind up with some colonized drug resistant bug (MRSA if you are familiar with the medical jargon) that hides in your body and waits for some opportunity to pounce on you again. I work in a hosptial and this a huge and growing...
  14. trents
    You mention she has these ulcers in stomach, mouth and lungs. Has anyone checked her for yeast infections? Doctors now know that the vast majority of stomach ulcers are caused by yeast infections (H. Pylori) and mouth sores can be the result of yeast infections as well. Coupled with that, the leaky gut syndrome that is so common with Celiacs provides an entry...
  15. trents
    Several years ago, before I was diagnosed with Celiac disease, I mysteriously developed cellulitis on the inside of my left knee and it went part of the way down the calf. I never could find an entry point. There seemed to be no wound or abrasion. My doctor said there had to be one, however. Since then I have read on the internet about a new and potent form...
  16. trents
    The key there may be: "The marrow donor was his HLA-identical sister." The marrow recipient was a close relative who may have also carried the celiac genes. It is generally accepted among celiac experts that one trigger for activating latent celiac disease in adults is significant illness or other major stress. I would think lukemia and a bone marrow transplant...
  17. trents
    I get the same effect if I take cal/mag at the usual recommended dose. You may want to cut it in half and take a calcium supplement with vitamin D but not magnesium for the other half. Also, are you getting a significant amount of magnesium from some other source that you aren't taking into account such as your multiple vitamin? Some people are just more...
  18. trents
    Excellent question! I am in the bone marrow doner registry myself but that was before I was diagnosed as a Celiac. I'm sure, however, if you were called on to donate marrow, they would do another more detailed screening and at that time you could raise the question again. With the amount of attention Celiac disease is now getting in the medical/scientific...
  19. trents
    It is well-known that many Celiacs have elevated liver enzymes (think, "hepatitis"); infact, about 20% according to one expert I read. This was the smyptom that led to the Celiac diagnosis in my case. It is not known with certainty what the connection is but most feel it is the incompletely digested food compounds that leak across the damaged mucosa of the...
  20. trents
    Then wouldn't "hypoerinsulinemia" be the opposite of diabetes which is the under production of insulin?
  21. trents
    I don't know if this is true about cubital tunnel syndrome but I know with carpal tunnel when surgery is called for it is generally very successful. Of course, surgery is always the last option. By the way, it is safe for most people to take double doses of NSAIDS (e.g. Alleve, Advil) for a short period and then back off to the prescribed dose. I occasionally...
  22. trents
    Sounds like pinched nerves. Carpul tunnel syndrome, maybe?
  23. trents
    Go see an ENT doc. Sores that don't heal can be carcenomas. I had one on my cheek several years ago that would almost heal and then break open again. It was a basil cell carcenoma. Got it cut out. No more problems. Steve
  24. trents
    IF your urine is dark, I would entertain the possibility of a UTI. It could also explain your feeling poorly in general. Your symptoms, or some of them, may be coincidental to what went on at the dentist. Steve
  25. trents
    Indeed, there certainly may be a connection between kypho-scoliosis and celiac disease. Here's an exerpt from an online article I just found (http://www.shands.org/health/information/article/000233.htm): Signs and tests: Typically, most people with celiac disease will have symptoms of malabsorption such as diarrhea. However, some will have bone disease...
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