Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Else Not Really Gain Or Lose Weight After Becoming gluten-free?

jkmunchkin

By jkmunchkin
in Related Issues & Disorders

Recommended Posts

jkmunchkin Rising Star
jkmunchkin
Posted

I always see posts of people who either gained a ton of weight or lost a ton of weight after becoming gluten-free, but did anyone just kinda maintain their same weight without really trying?

When I first started eating gluten-free (The first 4 months or so), I lost maybe 8 lbs., but for me any weight loss is a lot because I'm really thin to begin with. I'm still probably a few lbs. less than what I was previously but really not that much change. And I eat a fair amount of the gluten-free cookies, cakes and candy.

I'm not complaining because it's not like I want to gain 20 lbs. but I'm just wondering if anyone else had this same experience.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted

I lost 25 lbs. total and have only gained back about 8 of it. Its been about 5 months now with no change. I'm bummed because I'd love to have all my weight back but right now I'm only 103.

jerseyangel Proficient
jerseyangel
Posted

My weight issues with Celiac weren't dramatic, either. In the months before my Dx, when I was the sickest, I lost 15 lbs. Within 2 months of starting the gluten-free diet, I gained 10 lbs. back and have since gained 2 more. I seem to be staying at this weight--although I wouldn't mind losing the 15 again, but this time in a healthy way!

gabrielle Contributor
gabrielle
Posted

I have the same weight issues as well. I lost a total of 20 pounds. Now, I am only 103 pounds and sometimes I fluctuate between 101-105. But really no big weight gain/loss (Since going gluten-free). I am only 5'2" so I guess I really don't need the extra weight, but I figured once I went gluten-free that some pounds would come back. Not so.

Felidae Enthusiast
Felidae
Posted

I initially gained about five pounds and my weight has not changed since. I eat constantly too since I'm always hungry. I wouldn't mind another five pounds but it just remains stable. Before I was gluten-free my weight always fluctuated so I guess this is a good thing.

burdee Enthusiast
burdee
Posted

I had lost about 3# when I had very painful symptoms, before going gluten free. Then I gained back 4# in my first few weeks abstaining from gluten. Now I stay in the same 3# range. I've been 105-110# at 5'4" for 38 years, so I didn't really expect a big weight change. Besides I like my clothes and can't afford many new ones. :lol:

BURDEE

elonwy Enthusiast
elonwy
Posted

I didn't gain or lose weight, but I did lose the bloating, which had always made me feel ten lbs heavier. I never really had weight problems though. I'm 5'1 & 3/8" and weigh 130lbs.

Elonwy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mouse Enthusiast
mouse
Posted

I lost 53 pounds, which I needed to lose, just not this way. :P The doctor said that I would gain some back but I have not. I am 5"8 1/2 and weigh between 131 1/2 to 133 1/2 pounds. I have been gluten free for 2 years this Feb. 3rd. After we moved to this townhome last June, I dropped another 10 pounds from the 135 I was at. He did an MRI for colon cancer and I was fine, but for the first time in my life I had to count calories up to gain most of the 10 pounds back. The problem was that I drank 2 Ensures (soy allergy) and 2 Frappachinos (dairy allergy) each day. There was no way I could eat that many calories without going into my food allergies. I was using my nebulizer so many times a day, just trying to stop the asthma. And my body just itched something horrible. But no way was I going to stay in a size 6 pair of jeans. I had already sold all my bigger clothes and bought and had alterations done on what I could keep. I was not going through that again. :lol:

Rachel--24 Collaborator
Rachel--24
Posted
I have the same weight issues as well. I lost a total of 20 pounds. Now, I am only 103 pounds and sometimes I fluctuate between 101-105. But really no big weight gain/loss (Since going gluten-free). I am only 5'2" so I guess I really don't need the extra weight, but I figured once I went gluten-free that some pounds would come back. Not so.

I'm exactly the same as you. Same height, same weight, same fluctuations. I probably will never gain all my weight back but I'd love to get to at least 115. Oh well...at least I'm over 100 now..6 months ago I was at 94 lbs.

mookie03 Contributor
mookie03
Posted

well, its obvious that with celiac, eating gluten and not eating gluten affect every single person differently- some gain before and lose after, some lose before and gain after, and some remain pretty much the same. I didnt ever lose weight prior to going gluten free. When i first went gluten-free, i gained a few pounds in the first 6 months- but more b/c i was ODing on the gluten-free snacks. Now im pretty much back to where i always was, so no net change. And when i say a few pounds, im small like u, so i really mean A FEW POUNDS- like 5. My weight has never fluctuated more than a few pounds.

I think that if ur diet hasnt done a huge overhaul, theres no reason ur weight should change. Replacing cookies for gluten-free cookies isnt likely to make you gain weight if the rest of ur diet has become more healthy-- are u eating more fruit and veggies now? fewer bad carbs? i know for me, this diet has caused me to eat a bit healthier in general so the extra calories from the gluten-free snacks doesnt cause me to gain weight. but everyones bodies are different so i think the excessive weight gain/loss has more to do w/ an individual's absorption

Rikki Tikki Explorer
Rikki Tikki
Posted

Proir to diagnosis I lost about 25 pounds and after diagnosis I didn't put any weight on, I seemed to either drop a few pounds or maintain the weight. In the last six months I have put back on a few pounds and am now 5'7" and when I weighed last week I was at 125. So that means I have put on about 10 pounds, but it has taken me 3 years to do it. I think if I get to 130 and maintain that I would be happy. I think a lot of it is that we have taken out the bread, pasta's things like that, the ones that seem to have a lot of calories. Just a theory.

gabrielle Contributor
gabrielle
Posted
I'm exactly the same as you. Same height, same weight, same fluctuations. I probably will never gain all my weight back but I'd love to get to at least 115. Oh well...at least I'm over 100 now..6 months ago I was at 94 lbs.

Yeah, 115 would be nice... I hate people saying to me, "You're too thin...eat something." But I eat all the time!! I just can gain the weight. It's comforting to know that others understand your situation- especially when you feel like no one in the world could understand!

  • 3 weeks later...
ebrbetty Rising Star
ebrbetty
Posted

I'm still loosing, about 103 lbs at 5 feet 6..I stopped most of my cardio, but still do my weight lifting. in the winter ppl think i'm anorexic because i'm covered up, once the summer hits they're in shock at the muscle tone, I've had ppl apologize to me for things they were thinking about my weight

Moongirl Community Regular
Moongirl
Posted

105 pre dx....Im 5'3 and 2 months gluten-free, I lost about 3 pounds since, and im about 102 right now...i would love to be able to get back up to 110-115. I used to be 125 when i was about 21, now Im 26.

key Contributor
key
Posted

I have lost about 2 lbs gluten free. I think I just don't eat as much. IT is hard being vegetarian. I had lost though before because of celiac. I am 5'2inches and 103lbs now. Everyone thinks I am too skinny. I am kind of sick of it. My husband thinks it is fine, but people think I should gain weight. I don't try either way. I just stay the same basically. I do exercise, because I enjoy it. It gets me out and clears my mind. I have three boys under six years old and I homeschool, so it is more for my mental health and overall health. NOt for weight loss.

MOnica

jenvan Collaborator
jenvan
Posted

Hmmm... I gained 6lbs after going gluten-free, after about 6mos and I've lost 3 of that :) So in a few more I'll be back to my normal, which for me is a healthy weight. I attribute part of those 6lbs to not having energy to work out and trying to many gluten-free baked goods! :)

marcmtl Newbie
marcmtl
Posted

I weigh 145 which is 15 lbs less than i did 5 years ago when first told i have celiac. I have not been able to gain weight. I do go to the gym 4 times a weeks and thought that would help and did to some extent but i find that i am thin for my size. I eat my 3 meals a day and some snacking but tend to eat very healthy. I have a cousin with the same condition and like me all we ever hear is you are too thin but we feel good so maybe this is just how we are supposed to be.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      22

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    2. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    3. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
    4. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Here is a link to the spreadsheet I kept to track my nutrition intakes. Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/...
    5. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Hello @catnapt, That's so true. Every person with Celiac Disease has different symptoms. There are over 200 that it mimics. Too many still believe that it is only a childhood disease you outgrow. Or it's psychosomatic or simply a fad. Idiots. It's easy to get angry at all of them. You just have to pick at the answers until you find...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748
    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.