Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Where To Buy 'green' Household Items


floridanative

Recommended Posts

floridanative Community Regular

I am highly sensitive to fragrances, so much so that if you bathe in your perfume and sit anywhere near me in a movie theatre, I have to get up and move to another seat. Wee use Snuggle fabric sheets but now the new and improved ones are so strong that I have to return them as walking by the laundry room makes me nauseous and the box is not even open. Where do you find/purchase earth friendly househould goods - assuming some of you do? I know someone out there must offer a non scented (or more natural scented) dryer sheet. There were 12 different scents at Target and I got the least offending one which still isn't acceptable.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

I stopped using dryer sheets for that very reason.

I think Simple Green is natural. The community center here uses it to clean the fitness equipment. I checked it out because of that, and it is gluten-free. It's like Windex and I think the grocery store carries it. I was wondering myself how well it worked ... might switch to it from Windex if it works well!

Link to comment
Share on other sites
chrissy Collaborator

i am the same way with smells!!!!! i have been this way ever since i was pregnant with my 11 year old. i am not bothered too much by fruity smells, but anything perfumy makes me sick----not nauseated, but sick. once i used some "unscented" hair spray that had too much of a smell. it was really bothering me, so i washed my hair, but it must have gotten on me somewhere else because i didn't feel better until i took a shower.

i have heard that vinegar will work in place of a fabric softener---but i can't remember how to use it for that purpose----i'll see if i can find the info for you.

Link to comment
Share on other sites
Guest ~jules~
I stopped using dryer sheets for that very reason.

I think Simple Green is natural. The community center here uses it to clean the fitness equipment. I checked it out because of that, and it is gluten-free. It's like Windex and I think the grocery store carries it. I was wondering myself how well it worked ... might switch to it from Windex if it works well!

Your right carla, simple green is natural and bio degradable, its sort of an all purpose cleaner thats best known as a degreaser. The smell is nasty though its sort of a minty smell, costco has their own version of it under their kirkland brand, it smells much lighter, its less expensive, and works just as good. Sheesh can you tell this is my trade? lol...

Link to comment
Share on other sites
abc Rookie

I tend to be a little overly sensitive, not to the fragrance themselves, but to the fact that I know those fragrances are poisonous!

Dryer sheets are an "issue" in our house, b/c my husband loves them, and I think it just emits a film that then is stuck on the clothes/sheets/towels so you wear (sleep in, dry in) poison. But, we have compromised. I found Meyer's dryer sheets at whole foods, and they are supposedly natural. The ones I buy are lavender scented, and can be potent out of the box, but when put with the clothes in the dryer are rather faint in smell.

I do a lot of cleaning with natural products - Meyer's all purpose is a favorite. I also use just plain old baking soda to scrub pots and pans and like white vinegar (watered down) to clean countertops and the like. The vinegar is stinky at first - but quickly fades.

Link to comment
Share on other sites
Michi8 Contributor
I am highly sensitive to fragrances, so much so that if you bathe in your perfume and sit anywhere near me in a movie theatre, I have to get up and move to another seat. Wee use Snuggle fabric sheets but now the new and improved ones are so strong that I have to return them as walking by the laundry room makes me nauseous and the box is not even open. Where do you find/purchase earth friendly househould goods - assuming some of you do? I know someone out there must offer a non scented (or more natural scented) dryer sheet. There were 12 different scents at Target and I got the least offending one which still isn't acceptable.

I'm super sensitive to scents too. Just passing by a candle or aromatherapy store gives me a migraine. And it's the worst when you have to put up with smelling someone who overdoes it with scent.

The best earth friendly cleaning products are really the basics. Borax, baking soda, vinegar, ammonia, lemon juice, etc.

For laundry, I find even the unscented dryer sheets are hard on my skin. I don't bother with dryer sheets...they really aren't necessary. Vinegar in the rinse cycle is a very good substitute for the sheets (helps take out any detergent residue too.)

Michelle

Link to comment
Share on other sites
floridanative Community Regular

Oh thanks for all the tips and I'm glad I'm not the only person with such an aversion to this stuff. I forgot about Simple Green and I think I saw it somewhere around town. I'm going to my new Whole Foods tomorrow on opening day and I'm going to see what they offer for natural cleaning items and look for the Meyer's dryer sheets.

I'm with you abc on the whole poison thing. In my book about premenopause (not peri) the doc that wrote it notes that will all the toxic things we use in every day life, it is no wonder so many of our population is getting cancers of all kinds. He doesn't even like plastic toys for kids........I don't have kids but my neices and nephews have nothing but plastic stuff. He also suggest women use non toxic nail polish which is my change after dryer sheets. I have some info on healthy nail polish somewhere around here.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



debmidge Rising Star

I use vinegar to clean up most everything and if that doesn't work then I use the baking soda - last resort is Clorox or ammonia. Even some detergents are too fragranced. Between that & the dryer sheets I have sometimes re-washed clothes by hand and air dryed them just to get the smell of the detergent/dryer sheet out.

Link to comment
Share on other sites
floridanative Community Regular

Okay I went to the simple green website and called the 800#. Some of their products are in Atlanta Home Depots and Lowe's stores. They do not make dryer sheets. They seem to have a fairly large line of stuff so I'll post back what I try and how it works. I know once I saw on Today or some morning show that Windex has so many toxic chemicals in it that young children should not be exposed to it. I think it was that campaign that Kelly something (Travolta's wife) did a few years back after their son almost died after breathing in the fumes from their carpets being cleaned.

Link to comment
Share on other sites
CarlaB Enthusiast
Okay I went to the simple green website and called the 800#. Some of their products are in Atlanta Home Depots and Lowe's stores. They do not make dryer sheets. They seem to have a fairly large line of stuff so I'll post back what I try and how it works. I know once I saw on Today or some morning show that Windex has so many toxic chemicals in it that young children should not be exposed to it. I think it was that campaign that Kelly something (Travolta's wife) did a few years back after their son almost died after breathing in the fumes from their carpets being cleaned.

My husband met someone one time whose child had died from drinking Windex.

Was the book you read What Your Doctor May Not Tell You About Premenopause? If so, I just read another book by Jesse Lynn Hanely M.D. (the woman who collaborated on that book) called Tired of Being Tired. It's very good, too.

Link to comment
Share on other sites
jerseyangel Proficient

Hi Tiffany :)

I also stay away from scented things. Just walking down the cleaning isles at the grocery store can turn my stomach!

For laundry, I use Purex Free and Clear or All Free and Clear.

All makes drier sheets that are free of perfumes.

I like the idea of the more natural products from the specialty stores, but I tend to do a lot of laundry, and those products are more expensive. Just thought I'd mention some things available at regular stores.

Link to comment
Share on other sites
floridanative Community Regular

Carla - yes that's the book. After going off the pill it saved my life. I use all natural remedies and so far, so good. Mother took hormones for year and still suffered for over 15 years with hot flashes and night sweats starting around 40. My pcp agrees with the books suggestions so I was glad she didn't tell me it was bunk or esle I'd have to find yet another new doctor - lol! Thanks for telling me about the other book, I'm going to get it too for Mother as we think she has Hashimoto's in addition to celiac disease so she's going to be tested for that now.

Patti - thanks for telling me about the All sheets. I'm not sure I think we need the sheets anymore but DH is sort of addicted to them and he does the laundry. I do fine with Tide Free but it's the only detergent I've been able to tolerate for years. Anything else makes me sick to my stomach.

Link to comment
Share on other sites
2Boys4Me Enthusiast

I call the soap/laundry/detergent aisle the "stinky" aisle. I refer to perfume as "smelly".

I've tried some of these recipes below, and they work well. The vinegar ones are stinky but in a rather inoffensive way. (Sorry for the length of this post.)

Open Original Shared Link

white vinegar

Mildly acidic white vinegar dissolves dirt, soap scum, and hard water deposits from smooth surfaces, yet is gentle enough to use in solution to clean hardwood flooring. White vinegar is a natural deodorizer, absorbing odors instead of covering them up. (And no, your bathroom won't smell like a salad! Any vinegar aroma disappears when dry.) With no coloring agents, white vinegar won't stain grout on tiled surfaces. Because it cuts detergent residue, white vinegar makes a great fabric softener substitute for families with sensitive skin.

Try these recipes to harness the cleaning power of white vinegar:

Homemade Spray Cleaner Recipe

Mix in a sprayer bottle:

1 cup white vinegar

1 cup water

In the kitchen, use vinegar-and-water spray to clean countertops, lightly soiled range surfaces and backsplash areas.

In the bathroom, use vinegar spray cleaner to clean countertops, floors, and exterior surfaces of the toilet.

For really tough bathroom surfaces such as shower walls, pump up the cleaning power by removing the sprayer element and heating the solution in the microwave until barely hot. Spray shower walls with the warmed generously, allow to stand for 10 to 15 minutes, then scrub and rinse. The heat helps soften stubborn soap scum and loosens hard water deposits.

undiluted white vinegar

Undiluted white vinegar straight from the jug makes quick work of tougher cleaning problems involving hard water deposits or soap scum.

Use undiluted white vinegar to scrub the inside of the toilet bowl. Before you begin, dump a bucket of water into the toilet to force water out of the bowl and allow access to the sides. Pour undiluted white vinegar around the bowl and scrub with a toilet brush to remove stains and odor. Use a pumice stone to remove any remaining hard water rings.

Clean shower heads that have been clogged with mineral deposits with undiluted white vinegar. Place 1/4 to 1/2 cup vinegar in a plastic food storage bag, and secure the bag to the shower head with a rubber band. Let stand for 2 hours to overnight, then rinse and buff the fixture to a shiny finish.

Add one cup of undiluted white vinegar to the laundry rinse cycle instead of commercial fabric softener. White vinegar softens clothes and cuts detergent residue--a plus for family members with sensitive skin.

baking soda

Baking soda's mild abrasive action and natural deodorizing properties make it a powerful replacement for harsh commercial scouring powders. Put baking soda to work in your organized home:

Sprinkle baking soda onto a damp sponge to tackle grimy bathtub rings, scour vanities, or remove food deposits from the kitchen sink. For tougher grime, make a paste of baking soda and water, apply to the tub or sink, and allow to stand for 10 to 20 minutes. Dirt, soap scum and deposits soften and are easier to remove.

Slow-running drains? Keep bathroom drains running freely by pouring 1/2 to 3/4 cup baking soda into the drain, and dribbling just enough hot water to wash the solution down. Let stand for 2 hours to overnight, then flush thoroughly with hot water. The deodorizing effect is an added bonus! [Do not use this method on blocked drains.]

rubbing alcohol

Rubbing (isopropyl) alcohol provides the base for an evaporating cleaner to rival commercial window and glass cleaning solutions. Use this glass cleaning spray recipe for windows, mirrors, chrome fixtures and for a shiny finish on hard-surface ceramic tiles:

Homemade Glass Cleaner Recipe

Mix in a sprayer bottle:

1 cup rubbing (isopropyl) alcohol

1 cup water

1 tablespoon white vinegar

ammonia

A strong alkaline solution, clear, non-sudsing ammonia creates stronger window and all-purpose cleaning recipes than acidic vinegar.

Choose non-sudsing varieties of household ammonia for these cleaning recipes. Suds may look like they're working, but they're tough to rinse and remove.

Try these formulations for spring cleaning or tough chores:

Strong Glass Cleaner Recipe

Mix in a sprayer bottle:

1 cup rubbing (isopropyl) alcohol

1 cup water

1 tablespoon clear, non-sudsing ammonia

Strong All-Purpose Recipe

Mix in a sprayer bottle:

1 T clear, non-sudsing ammonia

1 T clear laundry detergent

2 cups water

furniture polish

Most of us no longer use hard-to-apply furniture wax, but rely on oil-based polish to keep furniture protected and shiny.

Our "salad dressing" version avoids the danger of silicone oil, found in most commercial polishes and sprays. Silicone oil can penetrate tiny cracks in furniture finish and enter the wood, causing problems in the event refinishing is needed. Lemon juice dissolves dirt and smudges, while olive oil shines and protects the wood:

Furniture Polish Recipe

Mix in a sprayer bottle:

1 cup olive oil

1/2 cup lemon juice

Shake well and apply a small amount to a flannel cleaning rag or cleaning cloth. Spread evenly over furniture surface. Turn cloth to a dry side and polish dry.

Homemade cleaning wipes:

materials and equipment needed:

cylindrical plastic food storage container, 10-cup capacity

extra-large roll of paper towels

cleaning agents of your choice (recipes follow)

electric drill with 1/2-inch drill bit

electric knife

liquid measuring cups

instructions:

In the garage or workshop area, place a small block of wood beneath the plastic food storage container lid. Use electric drill to drill a 1/2-inch diameter hole in the center of the container lid.

For best results, select an extra-large roll of good quality paper towels for this project. Less-expensive towels fray or shred when pulled through the holder; thicker quilted towels have greater cleaning strength and withstand more scrubbing. Even at $1.39 per roll, cost for homemade wipes will be less than 75 cents, not including the storage container.

Without removing the paper towel wrapper, use the electric knife to cut the paper towel roll into two shorter rolls. Save the second roll for a refill later. Be patient! It may take up to two minutes to cut through the towel roll and cardboard tube inside.

Remove the wrapper, and place one short paper towel roll inside plastic food storage container. Using a liquid measuring cup, gently pour one of the following cleaning solution recipes over the top of the paper towel roll.

You will need between 2 and 4 cups of cleaning solution, depending on the size and absorbency of the paper towel product selected. These recipes make about three cups of solution; increase or decrease amounts if needed.

General Surface Cleaning:

1 1/2 cups white vinegar

1 1/2 cups water

Disinfectant Cleaning:

1/4 to 1/2 cup pine cleaning solution such as Pine-Sol brand

2 1/2 to 2 3/4 cup water

Window and Glass Cleaning:

1/2 cup rubbing (isopropyl) alcohol

2 1/2 cups water

1 tablespoon white vinegar

Place the lid on the plastic food storage container, and allow paper towels to absorb cleaning solution for 4 hours to overnight.

Open the food storage container. Gently pull the wet cardboard tube from the center of the paper towel roll and discard. Carefully pull the end of the paper towels from the inside, where the cardboard roll had been. Thread the end of the towels through the hole in the lid, and replace the lid.

Pull gently on the exposed end to separate the cleaning wipe.

tips:

As you use the wipes, they will begin to dry out, so add more water and/or cleaning solution as necessary. Allow wipes to stand overnight before continuing to use them after adding more solution.

You may vary the strength of the cleaning solutions as necessary for your household, using more cleaning agents for a stronger wipe, less solution and more water for a milder product.

Link to comment
Share on other sites
Ursa Major Collaborator

I only use Lame Advertisement products for all my cleaning supplies (laundry, dishes, floors, bathtub, first-aid supplies, etc.). They are all natural, and the laundry detergent and fabric softener (dryer sheets or liquid) come in scented and unscented.

They are all non-toxic, even if a child would drink their dishwasher detergent, it wouldn't harm the kid. If a child even sticks a finger into the other stuff and licks it, it might kill the child!

I used to get terribly itchy all over, and have been fine since using their stuff. I still get sick from their cleaners, because they emit salicylates, but not like with the chemical cleaners, which made me sick to my stomach and gave me a migraine.

Check out their site: Open Original Shared Link

Link to comment
Share on other sites
floridanative Community Regular

Oh that looks like a good line too Ursula - thanks! I have never heard of that line of products. Like always, this is the best place to come for help with any given situation! Have a good night everyone. Gotta run check out a recliner a neighbor is giving away. DH can't imagine taking someone else's used furniture but it's for the workout/music room which no one ever sees and I'll get a new cover for it.

Link to comment
Share on other sites
Green12 Enthusiast

I mostly buy my green cleaning products at the healthfood stores. They carry a variety of different brands that are either unscented, or if they are scented it is usually a natural citrus (orange, lemon) or lavender, very mild.

Link to comment
Share on other sites
tiredofdoctors Enthusiast

If you want to order your green cleaning items on-line, as well as some pretty cool organic cotton items, visit Gaiam.com!

Link to comment
Share on other sites
Sweetfudge Community Regular

There is a brand of soaps, laundry/dish stuff, etc that is very mild and non-toxic (i think). I really like it. It's called method, and we have their stuff at a couple of stores (Smith's Grocery and Target both carry the stuff). They also have a website methodhome.com They have some great "softer" scents. My favorites are eucalyptus-mint, green tea, and lavender. Good stuff if you can get ahold of it :) Hope this helps!

Link to comment
Share on other sites
Fiddle-Faddle Community Regular

Target sells a line of cleaners called "method." They're supposed to be naturally-derived surfactants, essential oils, etc. I use a spray cleaner that smells like grapefruit.

I agree with you about dryer sheets--ugh. I compromise--I use a small amount (1/4 capful) of liquid fabric softener, but I put it in in the beginning of the cycle, so most of it (hopefully) gets rinsed out. Just enough stays on to counteract the static and leave a nice smell (even though I know it's all chemicals :( )

Link to comment
Share on other sites
Guest nini

I'm highly sensitive to fragrances and chemicals. I use All Free and Clear detergent and stopped using dryer sheets after breaking out in a rash from the Bounce Free and Clear ones. I'd like to switch to Seventh Generation free and clear detergent but dh claims it's too pricey for as much laundry as we do.

For cleaning products I use Seventh Generation Free and Clear, Citra Solve, and Ecover brand products. For scrubbing I use baking soda, for a disinfectant I add Tea Tree oil to my Seventh Generation all purpose surface cleaner.

forgot to mention that I find some of these products at Kroger in their healthymarket section, and others I get at either Whole Foods or Life Grocery

Link to comment
Share on other sites
Michi8 Contributor
I'm highly sensitive to fragrances and chemicals. I use All Free and Clear detergent and stopped using dryer sheets after breaking out in a rash from the Bounce Free and Clear ones. I'd like to switch to Seventh Generation free and clear detergent but dh claims it's too pricey for as much laundry as we do.

For cleaning products I use Seventh Generation Free and Clear, Citra Solve, and Ecover brand products. For scrubbing I use baking soda, for a disinfectant I add Tea Tree oil to my Seventh Generation all purpose surface cleaner.

forgot to mention that I find some of these products at Kroger in their healthymarket section, and others I get at either Whole Foods or Life Grocery

I am sensitive to laundry detergents as well, and have made the switch from Tide (which used to be okay for me) to Purex...not only do I find it more gentle, but it is quite a bit cheaper too. I wish, though, that there was an unscented version for front-load (HE) detergents.

Michelle

Link to comment
Share on other sites
jenvan Collaborator
Now we're doing the "will she / won't she" dance with regard to taking the meds. The pulmonologist says the liver enzymes have to be three times normal limit . . . . allergist says 2 times normal limit before declining to administer INH. One more liver function panel . . . . then we'll see. She's about as tired of this as it gets . . . . . I think she just wants there to be a decision made -- one way or the other -- and be done with it.

We'll see tomorrow . . . . . . .

Another good bk to ck out is the queen of clean's. I use mostly natural products... vinegar too and scrub with mix of borax and baking soda. I have really liked 7th generation's laundry detergents, we use them. and I love Ecover's stain remover stick. Works great! I buy these through a co-op b/c they aren't cheap, but wild oats etc stores carries them.

Link to comment
Share on other sites
bluejeangirl Contributor
I only use Lame Advertisement products for all my cleaning supplies (laundry, dishes, floors, bathtub, first-aid supplies, etc.). They are all natural, and the laundry detergent and fabric softener (dryer sheets or liquid) come in scented and unscented.

They are all non-toxic, even if a child would drink their dishwasher detergent, it wouldn't harm the kid. If a child even sticks a finger into the other stuff and licks it, it might kill the child!

I used to get terribly itchy all over, and have been fine since using their stuff. I still get sick from their cleaners, because they emit salicylates, but not like with the chemical cleaners, which made me sick to my stomach and gave me a migraine.

Check out their site: Open Original Shared Link

This is what I use also. What it has going for it is the tea tree oil because it kills bacteria. Very good to know when your in the mist of the cold and flu season. I love this stuff.

I didn't have time today to take a shower in the morning although I took one last night I didn't worry about it. But I did something I never do and sprayed just alittle perfume on. I actually feel like my head is detached and my nose has been running all day. I can't wait to get home and shower. I tried to wipe it off but didn't work.

Never again! The only thing I like is a lightly scented body lotion from bath and body works called Japanese cherry blossom. Its real light and pleasant. Otherwise everything is as unscented as I can get it.

Another hint is I bring in natural scents from the outdoors in my house. I like to put pine tree branches in a bowl with pine cones. A bowl of apples and cinnamon sticks. Oranges stuck with cloves. Some essential oils are good. In fact if you get a small slow cooker ( I don't know if they make them anymore) fill it with hot water and a few drops of your favorite essential oil it makes your whole house smell wonderful and keeps the germs away too. I read it somewhere that during the plague where it was spreading across Europe and people were dying, a small area in France stayed clear of it. It was because of the fields of flowers and lavender they grew. It apparently has an aseptic of its own along with the wonderful scent. Well if you like lavender, its not my favorite.

Alttle goes along way, and go for very light scents that agree with you.

I agree with you on the dryer sheets....yuck

Gail

Link to comment
Share on other sites
myserenityprayer Explorer

i really like a company called Seventh Generation. I have used their glass cleaner and carpet cleaner. They both have a natural citrus scent and they produce products that are all non toxic, biodegradable, and free of chlorine, petroleum based solvents, glycol ehters, phosphates, acids, caustics, dyes, and perfumes. And the best part is...I bought it at Target and it was not nearly as expensive as other popular brand name products. Definitely check it out!!

www.seventhgen.com

p.s they mention on the label that they list all ingredients.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lots of tests

    2. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lots of tests

    3. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

    4. - Smith-Ronald replied to Soleihey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lymph nodes

    5. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
    • Smith-Ronald
      Enlarged lymph nodes in neck and groin with celiac are not uncommon. They can take time to reduce even after going gluten-free. Monitoring is key.
    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
×
×
  • Create New...