Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,182 topics in this forum

  1. parkerrmmc
    Nancym
    • 8 replies
    • 2.7k views
  2. LOney
    • 0 replies
    • 835 views
  3. celiac-mommy
    • 4 replies
    • 1.2k views

  4. Celiac.com Sponsor (A8):
    Celiac.com Sponsor (A8):



    Celiac.com Sponsor (A8-M):



  5. marinewife
    • 10 replies
    • 2.4k views
  6. marinewife
    Ridgewalker
    • 4 replies
    • 3.3k views
  7. Crishelle
    • 0 replies
    • 747 views
  8. Guhlia
    Pattymom
    • 20 replies
    • 3.7k views
  9. taweavmo3
    hipretty
    • 5 replies
    • 2.7k views
  10. MrsMH
    lovegrov
    • 1 reply
    • 1.2k views

  11. Celiac.com Sponsor (A10):
    Celiac.com Sponsor (A10):

  12. mama2two
    • 0 replies
    • 900 views
  13. snomnky
    crittermom
    • 6 replies
    • 3.5k views
  14. mmcdaniels
    Izak's Mom
    • 3 replies
    • 4.2k views
  15. Erwin Heuck
    ryebaby0
    • 5 replies
    • 1.4k views
  16. vanillazeis
    jenilee
    • 10 replies
    • 2.4k views
  17. jenilee
    • 0 replies
    • 781 views
  18. jenilee
    • 4 replies
    • 1.4k views
  19. LauraWass
    puttersmom
    • 2 replies
    • 1.3k views
  20. Darn210
    mamaw
    • 17 replies
    • 3.4k views
  21. Guhlia
    • 14 replies
    • 2.2k views
  22. Hopefulmama
    LauraWass
    • 2 replies
    • 1.3k views
  23. CantEvenEatRice
    jenilee
    • 6 replies
    • 4.3k views
  24. skikat
    MySuicidalTurtle
    • 4 replies
    • 2.8k views
  25. Chuckr
    • 0 replies
    • 1.3k views
  26. snomnky
    • 9 replies
    • 14.4k views
  27. crittermom
    Gilli's mother
    • 4 replies
    • 9.9k views
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to MagsM's topic in Related Issues & Disorders
      26

      Inflammation and Menier’s disease link?

    2. - nataliallano replied to MagsM's topic in Related Issues & Disorders
      26

      Inflammation and Menier’s disease link?

    3. - Zuma888 replied to Zuma888's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Hypothetical question about antibodies

    4. - Scott Adams replied to Zuma888's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Hypothetical question about antibodies

    5. - Betsy Crum replied to Betsy Crum's topic in Related Issues & Disorders
      4

      Chest pain from celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,233
    • Most Online (within 30 mins)
      7,748

    JGBJ
    Newest Member
    JGBJ
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time. 
    • nataliallano
      Thanks Trents I'm strict with my gluten-free diet now. I just don't feel any better. I'm going to get tested for vitamins and minerals to see if I need some supplements. For sure I got some damage that doctors call Menier's and the only way they treat it is with medicine that does damage my body more than it helps.   
    • Zuma888
      Thank you Scott for your helpful response! Based on this, would you say someone who is on a gluten-free diet - but not strict about cross-contamination and occasional cheating - and tests negative for tTg-IgA while having normal total IgA is not likely to have celiac, even if they have been 'gluten-free' for years?
    • Scott Adams
      That’s a really insightful observation about antibody testing and the gluten challenge! You’re absolutely right that antibody levels can remain elevated for months or even years after going gluten-free, especially if there’s ongoing cross-contamination or occasional slip-ups. The immune system doesn’t reset overnight—it can take time for antibodies like tTG-IgA to normalize, which is why many doctors recommend waiting at least 6–12 months of strict gluten-free eating before retesting. For someone who’s been gluten-free for less than two years or hasn’t been meticulous about avoiding cross-contact, there’s absolutely a chance they’d still test positive, since even small amounts of gluten can keep antibodies elevated. This is partly why the gluten challenge (where you eat gluten before testing) exists—it’s designed to provoke a measurable immune response in people who’ve been gluten-free long enough for antibodies to drop. But you raise a great point: the challenge isn’t perfect, and false negatives can happen if the timing or amount of gluten isn’t sufficient to trigger a strong antibody response. This is why diagnosis often combines antibody tests with other tools like genetic testing or endoscopy. Your question highlights just how nuanced celiac testing can be! For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:      
    • Betsy Crum
      Thank you for your response! I have considered starting a food diary in the past, I suppose this is as good a time as any to start.  
×
×
  • Create New...