-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
7,184 topics in this forum
-
- 7 replies
- 2.8k views
-
- 22 replies
- 3.7k views
-
- 2 replies
- 1.8k views
-
- 12 replies
- 5.4k views
-
- 8 replies
- 3.2k views
-
- 1 reply
- 2.1k views
-
My daughter is celiac, she had the Moderna vaccines dose and now, she has Chronic Pericarditis. She is almost twenty five year old. 1 2
- 28 replies
- 10k views
-
- 2 replies
- 3.1k views
-
- 20 replies
- 3.6k views
-
Celiac.com Sponsor (A10):
Celiac.com Sponsor (A10):
-
- 1 reply
- 1.8k views
-
- 9 replies
- 5.8k views
-
- 15 replies
- 44.2k views
-
- 1 reply
- 1.9k views
-
- 4 replies
- 2.9k views
-
- 2 replies
- 2.4k views
-
- 17 replies
- 5.3k views
-
- 10 replies
- 4.2k views
-
- 20 replies
- 70.5k views
-
- 2 replies
- 2.3k views
-
- 2 replies
- 3.4k views
-
- 3 replies
- 2.6k views
-
- 6 replies
- 3.2k views
-
- 6 replies
- 13.2k views
-
- 27 replies
- 78.4k views
-
- 1 reply
- 1.5k views
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8-M):
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- Scott Adams replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications1British Coeliacs: Marks and Spencer's have launched a Gluten Free Colin the Caterpillar Cake.
Are you trying to make us in the USA jealous? 😉 -
- Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
Gluten-Mimicking Proteins that can affect some Celiac individuals.
Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free g... -
- Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease2
Second chance
It’s true that awareness of celiac disease can vary among physicians, particularly outside of gastroenterology, and many patients end up educating their own providers. Reaching out to someone you trusted for 25 years makes sense if you felt heard and supported. That said, celiac disease management often benefits from a team approach, including a knowledgeable p... -
- Scott Adams replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications1
Schar's products contain wheat!
I understand why that feels concerning. Some Schär products use specially processed wheat starch that has had the gluten removed to meet strict gluten-free standards (under 20 ppm in the U.S. and EU), which is why they can legally and safely be labeled “gluten free” for people with celiac disease. However, wheat must still be listed in the ingredients and ... -
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Celiac.com Sponsor (A22):
-
Forum Statistics
-
Total Topics121.6k
-
Total Posts1m
-
-
Celiac.com Sponsor (A21):
-
Who's Online (See full list)
-
Upcoming Events
-
0March 04, 2026 11:00 PM
Until
March 05, 2026 12:00 AM
-
0March 10, 2026 10:30 PM
Until 11:30 PM
-
0March 18, 2026 10:15 PM
Until 11:15 PM
-
-
Posts
-
By Scott Adams · Posted
Are you trying to make us in the USA jealous? 😉 -
By Scott Adams · Posted
Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community. -
By Scott Adams · Posted
It’s true that awareness of celiac disease can vary among physicians, particularly outside of gastroenterology, and many patients end up educating their own providers. Reaching out to someone you trusted for 25 years makes sense if you felt heard and supported. That said, celiac disease management often benefits from a team approach, including a knowledgeable primary care provider and, when needed, a gastroenterologist or dietitian familiar with gluten-related disorders. Advocating for yourself is not unreasonable—it’s part of managing a chronic condition. If your current provider relationship isn’t working, it’s appropriate to seek care where you feel respected and properly supported. -
By Scott Adams · Posted
I understand why that feels concerning. Some Schär products use specially processed wheat starch that has had the gluten removed to meet strict gluten-free standards (under 20 ppm in the U.S. and EU), which is why they can legally and safely be labeled “gluten free” for people with celiac disease. However, wheat must still be listed in the ingredients and allergen statement because it is derived from wheat, even though the gluten protein has been removed. For individuals with a true wheat allergy, these products are not appropriate—but for those with celiac disease, properly tested gluten-free wheat starch is considered safe under current medical guidelines. That said, it’s completely reasonable to prefer products made without wheat starch if that gives you greater confidence, and clearer front-of-package communication could certainly help reduce confusion for shoppers. -
By elisejunker44 · Posted
I have enjoyed Schar's gluten free products for years. However, some items Do contain Wheat and are not clearly labeled on the front. Indeed the package states 'gluten free' on the front, and it is not until you read the ingredient label that one see's wheat as the first ingredient. Some celiacs may be willing to take a chance on this 'gluten free wheat', but not me. I strongly feel that the labeling for these wheat containing products should be clearly labeled on the front, with prehaps a different color and not using the 'no gluten symbol on the front. The products are not inexpensive, and also dangerous for my health!
-
