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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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My daughter is celiac, she had the Moderna vaccines dose and now, she has Chronic Pericarditis. She is almost twenty five year old. 1 2
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Recent Activity
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- Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease53Supplements for those Diagnosed with Celiac Disease
@Margaret Wheatley Thank you and welcome to the forum. -
- Margaret Wheatley replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease53Supplements for those Diagnosed with Celiac Disease
I have been diagnosed with Refractory Celiac disease Type 2. Which is quite a shock because my Gastroenterologist has been performing gastroscopy & colonoscopy's - 4 in 2025 & a gastroscopy on the 20/3/26 and they didnot tell me how bad my Celiacs disease is and has been. It was my haematologist that checked more of my symptoms and came up with the... -
- Jmartes71 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Nateral remedies
Im very big on nateral remedies and just read that my go to herb is a no no and was wondering if factual or fiction. I read on Google, I know don't read or take to heart, however it stated that Echinacea isn't good for those with compromise autoimmune because it can cause inflammation. Has anyone else heard of this?Ive been battling sibo so wondering if any... -
- Known1 replied to Known1's topic in Introduce Yourself / Share Stuff13Diagnosed Marsh stage 3C in January 2026
Pardon me, I stand corrected. I did find yet another blood test for thyroid function. TSH W/REFLEX TO FT4: 2.91 mIU/L (Range: 0.40 - 4.50) As you can see, I was within the acceptable range when the test was performed. -
- Known1 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications31
Desperately need a vitamin D supplement. I've reacted to most brands I've tried.
I am curious: What was your initial level at? How many daily IUs were you taking via supplements and for how long? What did your level drop to? How many daily IUs are you taking now via supplements? Regards, Known1
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Posts
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By Wheatwacked · Posted
@Margaret Wheatley Thank you and welcome to the forum. -
By Margaret Wheatley · Posted
I have been diagnosed with Refractory Celiac disease Type 2. Which is quite a shock because my Gastroenterologist has been performing gastroscopy & colonoscopy's - 4 in 2025 & a gastroscopy on the 20/3/26 and they didnot tell me how bad my Celiacs disease is and has been. It was my haematologist that checked more of my symptoms and came up with the result. So I am trying hard to get some nutrition into my body. All of this info on supplements and nutritional diets is very helpful. Regards Margaret. -
Im very big on nateral remedies and just read that my go to herb is a no no and was wondering if factual or fiction. I read on Google, I know don't read or take to heart, however it stated that Echinacea isn't good for those with compromise autoimmune because it can cause inflammation. Has anyone else heard of this?Ive been battling sibo so wondering if any connection though haven't been religious on my vitamins these last several months because of testing ect.Sibo medications im allergic,the last few prescribed. Gi dr dropped me but took me back.Im frustrated too but its the autoimmune part .
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Pardon me, I stand corrected. I did find yet another blood test for thyroid function. TSH W/REFLEX TO FT4: 2.91 mIU/L (Range: 0.40 - 4.50) As you can see, I was within the acceptable range when the test was performed.
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I am curious: What was your initial level at? How many daily IUs were you taking via supplements and for how long? What did your level drop to? How many daily IUs are you taking now via supplements? Regards, Known1
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